LymeNet Flash: Plasmapheresis

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Plasmapheresis

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Author

Topic: Plasmapheresis

Evangeline
Member
Member # 13310

posted

Hi Everyone,

I just spoke to a swiss patient who got Guillain-Barr� Syndrome due to tick bite (maybe Lyme alltogheter).

He was really sick for 7 years, given no antibiotics until one doctor suggested only plasmapheresis.

Then he got cured after the 3rd session of plasmapheresis.

I was wondering if anyone who has lyme got plasmapheresis and got better from it or even cured?

Thanks.

Posts: 10 | From UK | Registered: Sep 2007 | IP: Logged |

Marnie
Frequent Contributor (5K+ posts)
Member # 773

posted

What it is:

http://www.mda.org/publications/fa-plasmaph.html

Removing our own antibodies.

Neat idea!!!

mAB CB2 isn't working anyway. It is defective.

Bb does look to trigger "self destruction" - to its own advantage.

Posts: 9424 | From Sunshine State | Registered: Mar 2001 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

My husband had plamapharesis in 2007 and again in 2009 for CIDP. Which is the chronic form of GB. He had five sessions. One every other day for ten days, both times.

He also had five days of IVIG in 2007 and again in 2009.

He still has lyme, bart and possibly babs.

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

Marnie
Frequent Contributor (5K+ posts)
Member # 773

posted

My thought...20 years infected?

Longer treatments...many more.

5 treatments in 2007 and 5 treatments in 2009.

Not enough.

CIDP = Chronic Inflammatory Demyelinating Polyneuropathy

If you want to go the Rx route to deal with the inflammatory component:

The Food and Drug Administration has approved a medicine, Lovaza, which can deliver higher doses of EPA and DHA--but only with a doctor's prescription.

Posts: 9424 | From Sunshine State | Registered: Mar 2001 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

I am looking into this for treatment of small fiber neuropathy. I have had some problems with IVIG with my body possibly rejecting the donor plasma. I thought that plasmapheresis also involves donor plasma, doesn't it?

I'm still trying to sort it all out.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

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