posted
I started Nuvigil about 6 weeks ago. It really helps for my fatigue, BUT, I've noticed that my pain symptoms are really much more intense. Happen to anyone else? I'm wondering if the pain only seems more intense because my brain is more awake OR if it's something more nefarious. Thanks.
Posts: 252 | From New York | Registered: Apr 2010
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
I have this happen too...
I think it's due to increased stress on the liver (cp-450) and the body trying to process more drugs that are burdensome to the body.
I do notice that this affect you speak of happens more so when I am more sick, and less so when I am feeling better.
I took Provigil for the 1 year I was in remission and it kept me going nicely, hopefully that will happen again soon.
Best
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Hmmm, Derek, I would think that if you were truly in remission, that you wouldn't have needed Provigil. (This is not a scold, just an observation). What a difficult disease complex to deal with!! We are often left with not great choices like this.
Posts: 3771 | From around | Registered: Mar 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Rather than taking something to mask the symptoms, you need to treat the cause.
I think fatigue is a warning for your body that something is wrong.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Remission for me then = I could work and function if I had something like Provigil to help keep me going.
The main reason the functionality came back was my protocol, which was intricate and covered all the bases. Provigil was and is for me a tool. Same as all the other stuff I employ.
I'll take what I can get.
If any one of you who has been disabled for 2+ years was able to function again after intensive abx therapy and just needed a little something to keep going, I am sure you would have done it too.
Imagine getting your life back. Is a beautiful thing. Lyme becomes a distant and horrid memory, and you move on. I know that's hard to imagine, but it is possible.
Many w/ Lyme take Adderol & Provigil like stimulants long-term; not because they are not treating the cause, but because sometimes there is no alternative.
I realize I need to treat the cause. I am doing more to treat the cause than 99% of people w/ Lyme.
I don't plan on being like this forever, and I don't care what I have to take or what I have to do to overcome it; I will.
Furthermore, the topic is regarding why a stimulant such as Provigil would increase one's pain levels, not if it's wise to take it or not.
Again, optimally we would all desire our bodies to work as they once did, but that doesn't always happen, especially for some time.
Best
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Derek I understand what you are saying. I know that once the lyme is gone, there is still a lot of "reconditioning" that has to take place to get our body back to what is was before we became ill.
We can not treat an illness for years and then just suddenly bounce back into the life we had before.
Greengirl, in your case, you need to take heed to the symptoms of pain and fatigue and treat the cause. Don't just mask the symptoms.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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