posted
So a co-worker of mine collapsed two weeks ago and now, a team of 16 doctors (no infectious one) diagnosed him to have lupus, Addition's disease, low (or no) plalete, Crohn's disease, plus eye floater with strange shape of hands (he said), and a couple more other serious illnesses. No doctor is able to explain how he got all 6 or 7 serious diseases all at once, and in his words, they are doing a medical jornal on him. He stays at OSU hospital, where the doctors insist no infections involved in his case.
Well, you know, there is no Lyme in Ohio.
What should I say to him?
Posts: 822 | From midwest | Registered: Apr 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
IGENEX?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
First of all it's Addison's disease...
Lupu, ALS, MS, Crohn's Disease, Ankylosing Spondylitis, etc and so on were all first
diagnosed by IDiot doctors from Ohio back when I first became ill...not to mention that
afterthe Igenix lab results came back positive/serum and urine....all of a sudden the
symptom of rashes left my doctor files and strangely were replaced with
"Attitudinal Problem"
and "Alcholic, substance abbuser and pain med drug seeker"
type entries were made in my doctors reports.
All along the edges were fax machine dates and times and phone numbers so my PCPoophead of a
duck could send out the "ALARM" to the eleven or so ducks that misdiagnosed me to
line up with him and check my records verrrry closely!
I was'nt interested in suing anyone at the time! I'm still not....
but, after I read the panel results I may whistle a different tune...
what the he!! I have nothing to lose after the bancruptcy anyway!....LOL!!!
What can they do....?
Shave my head, Put me on an LPH and send me to Viet Nam??? HAH! zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
yes Igenex and an llmd.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
So Sad. Our doctors (in OH) are clueless. They naively trust their infectious disease colleagues.
Posts: 5237 | From here | Registered: Nov 2007
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Remember that not everyone tests positive who has Lyme. So I think he needs to see an LLMD for clinical workup and treatment.
Posts: 13116 | From San Francisco | Registered: May 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Needs to see a LLMD!
Sammy, those ducks are not naive! They ignore all the facts on purpose.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
While everyone in the office is sending him flowers and cards, I might just send him a printing out of this thread, a copy of UOS, and IgeneX contact info.
I hate sticking my head into someone's business, but I guess this is too important to ignore.
Posts: 822 | From midwest | Registered: Apr 2009
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posted
way too important to worry about minding your business!
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- He needs to be sure to AVOID STEROIDS. Also know that a LUMBAR PUNCTURE is not a good lyme test but probably the only one they will give him.
I hope you can talk with his family - share ILADS and IGENEX and get him out of the state if at all possible. Does he have any good friends or relatives in a lyme-literate state?
Would his insurance transfer or can he afford to pay out of pocket for a LLMD?
It's times like this when I see just what a travesty this can be for families in states where they are lyme ignorant. I live in another state where it is declared that "no lyme here." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I went to the hospital with articles I gathered and UOS. I sat and watched the film with him, and for the first time told him that my wife is under treatment. But i realize that my wife is not a good case since she has so far not yet responded to the treatment to see any improvement. But I think both he and his new wife got the idea.
I also passed on to him our llmd contact info.
They seem to be open-minded but while we were watching the film, his hospital doctor came in. He didn't say much but when I left, he was giving me a lecture, something in the nature of consequences of influencing patients with inaccurate medical information. He reminded me again that there is no Lyme in the State.
I am going to checking on him again but as far as I know, he is still on IV steroids. I hope at least he is open-minded enough to call the doctor I gave the name to him.
This whole thing makes me feel somewhat sad, and responsible...feels like watching someone walking onto his sick bed right under my nose.
Posts: 822 | From midwest | Registered: Apr 2009
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posted
When you send your co-worker info on Lyme, also pass on www.roadback.org It's a website devoted to the treatment of autoimmune conditions with antibiotics. The lupus falls right into that category.
My husband became seriously ill almost overnight and the doctors labeled him with autoimmune diagnoses. First it was scleroderma, then undifferentiated mixed connective tissue disease and then dermatomyositis. They can't pinpoint one disease because the symptoms all overlap.
Anyway treatment of his autoimmune condition with a Lyme protocol made it go away. Tell your coworker there is hope if he doesn't let these supposedly knowledgeable doctors kill him.
Posts: 984 | From San Diego | Registered: Nov 2006
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