posted
I just got my blood work back and i tested negative for all the co-infections. Is it still possible that I could have them and get a false negative?? Can anyone help on this??
Posts: 42 | From Southern NJ | Registered: Mar 2010
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posted
Yes, it is possible. I had both bart and babs yet tested negative for them. It's a clinical diagnosis based on symptoms. They don't even test all strains of the coinfections, so you could have a strain they don't test for.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I dont know what I should do...Should I get tested again for these?? The only symptoms I have is very tired and air hunger. other then that I dont really have any symptoms. Ive been on abx for about 1 1/2 weeks so far.
Posts: 42 | From Southern NJ | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What lab was used?
Q: Can anyone help on this?
Your ILADS-educated LLMD is your best guide since many tests, even at the best labs, cannot tell us all we would like to know. It takes an experienced and knowledgeable expert who has treated hundreds, or thousands, of other patients with a variety of tick-borne infections. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Lap corp was used. My LLMD said they were all negative. So I guess hes not worried. I am though. I want to make sure I really dont have the co-infections. So frustrating!
Posts: 42 | From Southern NJ | Registered: Mar 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
My LLMD says there is a method to his madness. And I believe him.
If you have only been treating 2 weeks I would worry more about getting bacteria load down without getting bed ridden.
And then think about what else may pop up. If you have bart.-many get a rash somewhere in treatment. If you have babs. many show signs of
that-RMSF some break out in the rash. Etc. Etc. I would not worry till something pops up or out.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
First, were you tested at Igenex? Don't trust mainstream labs on these tests, I tested negative at Labcorp, but found the truth, positive for 2 at Igenex.
A good LLMd can help decipher co-infection treatment and many will cycle abx, etc., to cover the co-infections anyway.
If you do not improve over time during LD treatment, a co-infection would be why. There are very few who have LD alone and not co-infections.
posted
My LLMD had been doin this for 20 years. Im goin to call the office again today and see if I can get some answers. Very tired and air hunger are my only 2 symptoms. Ive been told that the tireness is a sign that the abx is working. Is this true???
Posts: 42 | From Southern NJ | Registered: Mar 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes and the air hunger can be helped with replacement of electrolyte drink mixes like they make for vomiting and diarrhea.
They come in dry packages to mix or bottles-more expensive.
Your are killing the bugs and also killing cells that carry the electrolytes. They have to be replaced to feel better-if your body is not doing a great job of that, you can be experiencing those symptoms.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I called Igenex today and they want $660.00! I cant afford that! What is fry??? I never heard of that before??
Posts: 42 | From Southern NJ | Registered: Mar 2010
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posted
Well I did get a positive result for Lyme through LabCorp. But i was also tested twice before I got a positive.
Posts: 42 | From Southern NJ | Registered: Mar 2010
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posted
Try Clongen lab in MD, they might be cheaper. I believe they offer a wet mount/blood smear for $100.
Posts: 269 | From VA | Registered: Jun 2005
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posted
If seeing a ILADS LLMD I'll assume he knows what he's doing. If co-infection symptoms show up, he may do a trial of meds, as others mentioned.
And I think the obsession with tests has a lot to do with human nature. Basically people want to know for certain what they have. If they have bartonella, they would like a test that says so in front of them. I'm no different, but it's also important to realize a negative test is sort of meaningless. And you can have the diseases without a positive test.
And in the case of bartonella, it's sort of psychologically helpful to know for certain you have it, if you have to take a quinolone. Due to tendon risks, I think most would like to know they are taking that risk for a reason, at least.
Posts: 584 | From NY | Registered: Feb 2009
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posted
I agree with lemon-lyme. I dont want to take all kinds of meds if its unnecessary but also dont want to take a chance getting really sick. I guess im stuck between a rock and a hard place.
Posts: 42 | From Southern NJ | Registered: Mar 2010
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massman
Unregistered
posted
It is human nature for sure.
But.....why stick with the obsession ?
There is so much posting here about this obsession. I will now give all permission to change. www.mercola.com + search EFT. You can work on your reasons, which may be different from others reasons.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- EFT can be helpful if emotions are involved in symptoms.
If infection is the cause, anti-infective medicine is required. But EFT can help with the emotions around all this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Many doctors order labs so that when they are investigated by the Department of Health for treating outside of standards of care, they can justify their treatment protocols, keep their licenses and businesses, and continue to treat their very sick Lyme patients.
posted
Keebs - IME it is all pretty connected. You don't get one without the other.
BoxerMom - it really annoys me that lyme docs have to play Cover Your A$$ when cancer docs can treat away. And charge away. With no real science to show their treatment helps most cancers.
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I hear ya, Massman. As long as you treat within the standard of care, it doesn't matter whether your patient lives or dies. You get paid, and have a fine career. I often wonder how these types of doctors live with themselves.
The obsession with testing body fluids is due to the nature of the treatment. Long term antibiotic use is harmful to the body with many risks, not the least being superinfection or antibiotic resistance.
If I am going to undergo long-term treatment with antibiotics AND drain my entire savings account, I want to make darn sure I have what is indicated for treatment.
Perhaps others share the same view.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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