posted
Is it true, that once u have lymes, u can not donate ur organs upon ur death?
Posts: 25 | From Allentown PA | Registered: Aug 2009
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posted
I would not. Lyme only goes into remission. You would not want someone sick enough to need a transplant to be getting an organ with dormant bacteria.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- True. It's actually babesia that is the official turn-a-way for blood donations: for LIFE.
But most of us know that lyme should also be on that list. It would be if the politics were not so messed up and testing could be more accurate.
Anyone with any kind of "stealth" infection should not donate blood or organs.
If you want to help out, take a CPR or First Aid class. Maybe get certified to teach one of those. Or just take care of yourself and get better and then find your community niche. But we are off of the donation list forever. -
[ 06-17-2010, 03:05 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I have been thinking of this lately, too, as I feel so strongly about organ donation.
I don't know what the official policy of organ donation program is, but, for me, I'm just not comfortable passing along my organs to someone when the information is still too murky. Ultimately, I want to help people.
Instead, I'm changing my will to provide for donation of my body to be studied for TBI research.
Posts: 252 | From New York | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- greengirl,
Speaking solely about postmortem donation here, for research only, never for a living person or a bank.
You can find out specifically where that would be. Not all donation/research centers would do that. As with life, even in death, we'd need LL (lyme literate) researchers.
Especially if you use the term on legal documents, it's also important to know that "TBI" was already a medical term before tick-borne infections needed a nickname. TBI means traumatic brain injury. So, TBD, to mean tick-borne diseases, is the shorthand most used by LLMDs, etc.
There are past posts that say which postmortem donation center might be studying tissue from TBD patients. For details, maybe the LDA (Lyme Disease ASSOCIATION) or ILADS. Maybe Columbia's Lyme Research Center. I'm not sure but someone in one of those places could guide you so that legal documents can be completed.
I also want to urge TBD patients with inner or middle ear dysfunction of ANY kind to consider specific donation (for study) of the vestibular system. Specifically, to study SCD - Superior Canal Dehiscence. It is absolutely vital that any postmortem study include SCD assessment.
And, with that, it's vital to look at the liver and kidneys as they actually have quite an effect on the entire ear system.
I don't know if porphyria can be determined postmortem but that is something else that I'd want any researcher to study - so that others, after us, can have a far better chance if there is a deeper understanding of all aspects of TBD.
(From a special CT scan) it appears that I have SCD and I suspect many others affected by lyme/TBD do, too. Lyme is just one of many causes. Discussion and links about SCD can be found here with all the other ear links:
posted
It's clear to ME that we would be condemning someone to a life with Lyme if we donated any body part.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
It would be irresponsible to donate an organ after having Lyme and co-infections.
Not only would it transmit the infections to the recipient - whose body is in no shape to fight off any type of infection - it would also mean that the recipient misses the chance to get a healthy organ.
A healthy organ means a chance at life!
A diseased organ - or one with a dormant disease that will come roaring back to life soon - means an early death for someone fighting for their life, and it is not "the gift of life."
I was active in the organ donation community long before I knew I had Lyme. And I feel very strongly about healthy people donating organs!
I lost my best friend while she waited for an organ. So I am no stranger to the fear, the pain and the anxiety of waiting.
But - the key here is that healthy people need to be the ones donating.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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