posted
In May of 2006 I got what seemed like the flu. Went to my family doctor, but they weren't too concerned.
Over the next 18 months I started experiencing severe dizziness, problems concentrating, enough for me to go to the emergency room twice. I had quite a battery of tests, including for Lyme's, and nothing came back positive. Perfect health.
I was prescribed anti-deprressants and that didn't help at all. I don't take any meds currently.
Since them my symptoms have progressed. I have had sever panic attacks. I have days where I feel like an alien on a foreign planet. My knees feel like arthritis is setting in. Both hands are getting numb and tingle. I have electric shocks that originate in the top right side of my head and shoot down my right arm repeatedly. I have trouble talking to people and making conversation. I have insomnia. I can no longer consume alcohol or everything is worse for days.
My doctor is stumped and I continue to get worse. Is this undiagnosed Lyme's?
Thanks!
Posts: 3 | From Southern NJ | Registered: May 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Sounds like it to me. Especially the alcohol intolerance. You have the classic symptoms of arthritis, tingling and numbness, insomnia, and the alcohol thing. Everything you have named is a lyme symptom.
Have you looked at the Burrascano lyme treatment guidelines? They are here:
Look at the list of symptoms on pages 9-10. You will see the alcohol one near the end.
Why not call the lyme support groups in your state (see Support Groups on left side of page) and ask what doctor in your area is getting rid of this disease for people.
You want a doctor with lots of expertise. Many docs treat lyme disease, but not that many know enough to get rid of it for people. Find a doc who has gotten rid of this disease for at least 3 people. You can learn such things from the support groups.
Once you pick a good doctor, at the first appt he should test you for lyme disease and its coinfections through a good testing facility like Igenex. They are a tick-borne disease speciality lab in Calif. This will be expensive, but is worth the money in my opinion. It gives you the best chance of finding out all the diseases that tick gave you. Lyme generally travels with a few "friends."
You can ask your reg doc to test you for lyme, but generally they will use LabCorp or Quest, and these labs miss many, many cases of lyme disease. Still, I got a positive test through LabCorp.
The main point is that if you get a negative through LabCorp or Quest, that DOES NOT mean that you do not have lyme disease. It just means that the lousy lyme test did not find your lyme disease.
So, you have to get in with a good lyme doctor to find out if you have lyme. That is because none of the lyme tests are 100% accurate. So, the way you get diagnosed, believe it or not, is to go to a doctor who has treated thousands of lyme cases (or at least hundreds) and tell him all of your symptoms and he tells you whether he believes it is lyme or not.
The proof will be when you are treated for lyme and how you react to treatment.
A Boston TV station did a great show on lyme disease a little over a year ago. Here is the link to it: http://www.kettmann.com/Lyme/Save/
Then, click on "Here"
The show was taped by a girl on LymeNet and she put it on-line for all of us to be able to view it. You will learn a lot about the medical controversy surrounding lyme disease and why it is so hard to find a doctor who knows how to cure a person of lyme disease.
I recommend you try to find a doctor who follows the Burrascano lyme treatment protocol. That is the way I got rid of lyme disease 5 years ago. Also, this protocol has gotten rid of lyme for all of my friends. That's why I believe it is the best way to treat lyme.
Don't pick your doctor based on location, or insurance coverage, or price. As one doctor said, "Lyme disease is a rich man's disease." The best doctors will be expensive. But, the doc is the key to getting rid of this disease. Just remember that. The doc is the key.
You have a lot to learn. Start by reading the Burrascano guidelines. Study them. Wish you the best.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Hi! First of all the tests that have been run for you - are you going to a "lyme literate medical doctor"? (LLMD) If not, most doctors will only run the basic ELISA test which is almost worthless. It's hit or miss - might get false negatives or false positives...then your doc might run a Western Blot test.
Most patients have gone through the ringer with regular docs - you'll get tested or diagnosed with lupus, rheumatoid arthritis, chronic fatigue, and the list goes on. In my case, even when a doc finally did test for lyme - it actually came back positive - they STILL said I don't have it.
Then I found this wonderful site. Found a good llmd and they ran the proper tests.
My recommendation is if you think you have lyme or some other tick borne disease, then find a reputable llmd and get tested. That is the first step in getting proper diagnosis and treatment.
Do NOT procrastinate on this!! The longer it goes untreated the worse it gets and then it can become chronic. Once it's chronic it is much harder to get rid of it.
Others here are wonderful and can give you better advice.
Best wishes!!
-------------------- I am not a doctor and am only expressing my opinions...please do not take this as medical advice. Posts: 44 | From US | Registered: Jun 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
All sounds familiar except mine started with mono in 2006. You'll find a lot of useful info here. Just try to find a good LLMD and then run the appropriate tests. Good luck.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Regular docs are worthless when it comes to Lyme. I was one of those people that thought if I asked my PCP about it, he would be open and would test me...ha ha ha, NO. I couldn't even get a test for Lyme through a mainstream lab until I saw a Lyme friendly doc.
My symptoms are crazy and drawn out, possibly over years and years. But Lyme is the only thing that fits completely.
Definitely check out the page that TF posted, great info. Your symptoms are there for Lyme that is for sure. Do what TF said and find a support group or post in the seeking a doctor here and find you a good LLMD who you can see. Go and see what they say. Lyme is like a different world in the medical field. Sometimes it feels like a whole different universe.
lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Those are also symptoms of mold/fungus.
Lyme lives where mold and fungus are brewing in your body....
Have you recently (past 2 years) been in a wet environment or an area where you could have inhaled mold spores?
Also the EMF frequencies make the fungus/molds grow out of control in the body...
Do you have difficulty on the computer for long?
This is a sign of mold/fungus being the main issue to address first.
Could be many things causing your symptoms as yo are finding out, these symptoms are common in many issues, and overlap.
The key is finding out what to address first.
Everyone has lyme....but not everyone has symptoms. Those with active lyme, have an underlying brew of toxins...this is the problem. Clear the brew, and your immune system will take care of the lyme bugs.
Successful treatments always include detox!!
Research here on lyment those who have cleared lyme symptoms and are off treatment....those are the ones who address detox of the brew!
I am one of those, and will be addressing detox for the rest oif my life to keep things in balance. I am here comparing notes with others and learning this.
blessings lp
Posts: 1009 | From NJ | Registered: Aug 2009
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