bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Hi folks:
So had my 6 week follow up with my LLMD today after starting treatment on 5/10/10. Was originally on 400mg / day of Doxy and pulsing 1000mg / day of Flagyl for 3 days every 2 weeks.
Overall...I am much improved. Energy is returned, brain is clear, vision and balance better. I'd say I"m at 90% +/- 10% on most days. Not bad for 6 weeks.
I complained about the Doxy and the sun and asked to be put on an alternative for the summer. So she put me on the following:
-500 mg of Biaxin (Clarithromycin) 2x / day (1000mg total) -100 mg of Amantadine 2x / day (200 mg total)
-500 mg of Flagyl 2x / day (1000mg total) - 3 day pulse every 2 weeks.
She said this would cover the intracellular, extracellular and cyst forms and allow me to go in the sun.
Have others used Biaxin with Amantadine?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I guess the only thing I will add is Burrascano's guide says 250-500 mg of Biaxin every 6 hours. I'm doing 500 every 12. So it is longer intervals than Burrascano says.
Still...My MD and Dr. M in CT both said his guidelines are "a few years old now" and that newer research supports some modifications in some areas. Maybe this is one.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
I've wondered about any updates to Dr Bs guidelines. Interesting to see your report.
I too want to ask about alternative to Doxy.
Congrats on your progress!
Posts: 104 | From No. VA | Registered: Aug 2009
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Sounds like a common summer protocol to me! Now you can get out for a good walk. I built up to 2 miles every Other day, weather permitting. Really helped!
My PCP recommends the time-release version of clarithromycin ("Biaxin XL") & taking both tablets together in the morning. Something about a higher peak serum level, making it more efficacious. Ask your LLMD about this. (I assume you know it's available as a generic.)
-------------------- I'm no doctor... but I play golf!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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