posted
My daughter will enter college this fall. She has been to an llnd and had the Western Blot test with two positive bands. She also has symptoms of lyme that are hard to deal with but not debilitating--fatigue, stomach, etc. We have decided not to treat her at this time
Please do not respond about our choice of non treatment. What my question is: Has anyone had any experience with having lyme and receiving the meningitis vaccination? I am nervous about giving it to her considering her lyme but also am apprehensive of sending her to college without it. Thanks for your help.
Posts: 123 | From Montana | Registered: May 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What STRAIN of meningitis will this particular vaccine cover. Meningitis can be caused by lots of different bacteria and viruses. Which exact strain does the vaccine address?
If the LL ND is ILADS-educated, ask him or her. They would know best. No one else would understand all the complexities involved unless they are Lyme Literate.
A ND will also be current on this matter and have suggestions that may be even better. Even if you've decided not to treat at all, the ND whom she saw should still be able weigh in on this.
And the ND can suggest adrenal supplements to help reduce fatigue. She may suggest magnesium to help reduce pain and Gotu Kola can help reduce brain fog.
Is she decides to take the vaccine, can she get one that is mercury-free? But, still, there are other additives.
Can her LL ND give her some homeopathic boosters - and an educational course in urgent-care self-treatment for when things pop up?
I have had horrible experiences with various vaccines over the years. I will never, ever get another one. The worst one was for tetanus. Others, I don't know - whatever was required of the university.
I had one vaccine at the start of grad school. I had to drop out after 2 months because I was so sick. I had lyme then, just didn't know it and the vaccine triggered seizures and brain fog beyond belief. I never knew exhaustion could be so deep. I wish I had never had that shot.
After a full year being bed-bound, It took me 4 years of part-time to complete a one year master's degree elsewhere. I never could think again after that. But, I didn't had a doctor who understood any of this until two decades later.
Years later, still sick but not know what was wrong, I got a flu shot. That was 1993. Another full year of being bed-bound. Had to learn to walk, talk, read and write again - twice - over the next couple of years.
Still, at that time the lyme trio had not yet been dx so it's hard to know if it was just the vaccine, the mercury or that it all triggered the tick infections to just blossom. But, I know that the vaccine started the ball rolling and it never stopped.
For more about vaccines, cross search through Google for Russell BLAYLOCK - he is a neurologist who has written about this.
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Hi Imaginit,
I don't know the answer to your exact question, but I can tell you our experience.
My daughter has had lyme&co for about 7 years. She was treated briefly 7 years ago which seemed to put most of the illness on hold (hybernation more likely) but more common symptoms started presenting this past xmas.
She started treating 2.5 months ago with our LLMD.
About 5 weeks into it, I took her to our family doc and since my daughter's going to camp this summer, she needed a tetanus shot. Not really thinking too much about it, I allowed her to get it.
She herxed hard for 2 days. On the sofa, in fetal position, aching all over, feverish, tight throat, sharp headache. Third day, back to normal.
THe shot she had was TDP - Tetanus, diphtheria , pertussis vaccine.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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onbam
Unregistered
posted
I'm just finishing up my junior year in college at a big 10 school and have not known one person who's gotten meningitis. The risk of that is vastly overblown in an effort to make $, IMO.
I personally am more worried about spreading my infection than about catching others...
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Interesting point, onbam...
I would avoid all vaccines at any cost. I'm not in college or have any children attending school.
I have had friends who were able to get some permission to go without vaccines (to some degree) from a chiropractor's institution that is against vaccines. I think it's a quasi religious type of organization. There may be other ways to get around it, too.
I remember my friend's daughter got mono or epstein-barr virus right after she was vaccinated for the first time prior to attending college... She didn't have Lyme as far as I know. I don't know if they (the parents) had any idea of a link between the 2 events but I thought it was kind of peculiar.
You never know what they put in those vaccines... Just research SB-40 virus some day when you have time.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sammy
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Meningitis is one of those scary illnesses that you hope and pray no one you know gets it.
The worst part is that if you get sick with bacterial meningitis, you can die within just a couple hours of onset.
Symptoms start out like the flu: fever, headaches, stiff neck, vomiting, cough, sore throat, etc. People don't realize how sick they are until it is too late.
Students are considered one of the high risk groups because they live and work together in close quarters. People with chronic infections (like Lyme) are also higher risk.
Complications of bacterial meningitis include shock, seizures, paralysis, coma, and death. If diagnosed and treated quickly, CDC says that it is fatal in 10-14% of the cases. 11-19% of the survivors suffer permanent damage (hearing loss, loss of limbs, seizures, and other neurological problems).
You can easily find more information about bacterial meningitis along with the pros and cons of vaccination online.
Just read and consider your options thoroughly. She is your daughter. You want to be well informed before you make your decision.
Posts: 5237 | From here | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From my past experiences and the lasting damage, I would not do this again. But . . .
If you are leaning toward doing this, at least the LL ND could offer suggestions for obtaining a vaccine that has the least additives (and no mercury) as well as major support measures for a couple of weeks before and afterward.
And, if there is an emergency right after the shot - with lyme, there likely could be an emergency reaction from the shot so it'd be great to have at your fingertips someone who would know exactly what to do. I had to go to the E.R. a couple hours after a tetanus shot (I actually developed tetanus symptoms, including lockjaw) and they gave me some shot as an antidote- they were ready to cut away my sweater and put another shot into my heart but that was avoided.
If it is to be done, it should probably be done long before she actually has to show up on campus so that she has a chance to really rest and work through any effects with at little pressure as possible. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I will never get another vaccine again!! I had the tetanus shot about 12 years ago and felt like I was going to die for many, many months.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Imaginit...
I understand you concern...I had the same issue with my daughter last year as a freshman...
She was forced to get the shots...as MA schools require them...and she is an athlete...and the NCAA requires them her coach says.
WE were i a bind...
So I started my daughter on Allergie Immune...which clears toxins...
She did not get sick from them.
But during the year, she was told to get the swine flu shot...and she did not.
She was fine until last week...and came down with a severe flu...most likely the new version of swine we believe...
It was a full week of severe symptoms.
She did was folish and did not get the homeopathic remedy/antidote that I recommended to her...and started it too late.
But once she took it, she immediately started to see relief ofa symtmpoms.
So I recommend putting together a grouping of homeopathic remedies, with written instructions for your student...to "put awaw" until the needed time. They will call you hopefullly when the get ill, and you can remind them to take the appropretat remedy...
Homeopathy helps many college kids! Especiallly when their is no traditional help for things like the flu etc.
lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Also...
Always send "liver support" away with your child to college!
Mlk thistle...or other liver aids.
They all enjoy the college"party" life...at one time or another...and can over do it.
Kids who have lyme need major liver support in general...
I also send my daughter a liquid bottle of a multi mineral...( intra-min, by drucker, or Biopure's matrix minerals are great) to take a cap ful each day...if she remembers.
This helps her amazingly...she notices it...and does take it when she feels she needs a boost! Much better than a multi vitamin!!!!!
Keeping any protocol is not easy for any student...but having the right things in when they sense they need something is very valuable for them to get thru this big first year.
Posts: 1009 | From NJ | Registered: Aug 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
They have an amazing new test for vaccines that can
detect contaminants like the one they just found in
the Rotavaccine. They are trying to decide now if
they should use it on all==like they have to
ask...But I do not take vaccines either way.
It is said that the reason so many aboriginals died when WHO and Unicef went into Aus. and
started vaccinating them was because they were deficient in Vitamin C. If you get your daily C
it should help in the prevention.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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