posted
Good question!! I am finding this difficult as well.
I asked around in support groups for LLND's in my area and haven't been successful. Even people in my local online group all gave me someone different. There wasn't one that stuck out. And most hadn't been seeing them for very long so it is too soon to even see how effect any of them are.
Then I find ones by googling that say they can treat lyme disease but just because they say that doesn't mean they are any good at treating it. You can't just take their word.
So yeah...I am having a hard time as well. Word of mouth would be preferred but I can't seem to find one that is recommended by more than one person.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I go by cost. I feel some ND's are all about the money, and some just genuinely want to help people, and are willing to work within your budget. The ones that don't listen when you say you can't afford this or that, I'd avoid.
That's not to say all the costly ones are all about money, but it seems like some ND's will do tons of tests before they treat you ($$$$), while others will just find easier or more efficient ways. Some things obviously will need to be tested, like hormones.
Knowledgable about Lyme is not a requirement, in my mind. I usually am just looking for someone to support my body through all this, so understanding Lyme is not essential, because my LLMD treats me for that.
If your insurance covers chiropractic care, you might be able to find someone that is covered by insurance for some things. I had a good ND that did muscle testing that my insurance was covering the office visits. Nice!
For Lyme, I just depend upon what I read on Lymenet and things like Buhner's book Healing Lyme, other Lyme books.
A lot of the info is out there, you just gotta know where to look. I wouldn't look to an ND for Lyme treatment unless an LLMD recommended them. It is just too complicated of a disease for the basic ND to be an expert in. But there's not reason they shouldn't be able to support your body as it fights.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- First look to the national registers for licensed NDs. Then, ask for a 5-minute conversation so you can learn a bit more about their education. Let them do the talking. Listen.
Usually a very short phone conversation is gratis.
You can also ask what fee (if any) there would be for a 15-20 minute phone call so you can better assess if this would be a good fit.
Surely, it is never enough to go on their saying "yes, I treat lyme" I've done that and it was a mistake. I've had many different NDs and only one really knew.
If you can find an ILADS-educated LL ND, that is best. Even then, you will need to learn more about their style and philosophy. What books do they recommend? Who are the top LL authors in their estimation?
Who taught them about lyme and about other tick-borne infections?
How do they treat? If they say they let the body get stronger and then it will handle infection on its own, run . . . run . . . run.
Lyme changes everything about a person's body. If they don't know about lyme, they don't know enough to treat you -- even if just for support for your LLMD's protocol.
I have a full post on this topic somewhere in my computer. But the leaf blowers are coming down the parking lot and I must evaporate for a while.
I'll come back later and see if I can add to this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Other things you could consider are seeing an LLMD that uses herbals as well as antibiotics.....or finding an LLND that other people's LLMD's have recommended to them.
You just wanna make sure *someone's* LLMD has recommended this person, unless you aren't looking to have the ND treat your Lyme.
I think we could better help you if you gave us more detail into what you are looking for.
Are you looking for someone to replace an LLMD, so you don't have to use antibiotics? If that's the case, there are only a handful of people in the country that would actually be able to treat your Lyme without antibiotics....so I hope you are willing to travel, depending on where you live.
A lot of people do things like Buhner, Cowden, etc....which you don't necessarily need someone helping you with. All that info can be found in books or online.
Please tell us more about what you are looking to do.
Posts: 4590 | From Midwest | Registered: Jun 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- To compare and contrast the work of authors regarding some of the most common complementary methods. Each author is ILADS-educated. -----------------------
The Cowden protocol is not listed here other than in the "Insights . . . " chapter. That can be found through a Google search. Some LLMD and LL NDs incorporate that. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers, No I did not want to stop abx. I am looking for one who is has knowledge in Lyme, can give supplements/herbs, offer detox, nutrition.
My insurence does cover for Chiro care if a Physician refers.How much do they charge?. I am open to Chrio also.
Thank you, Barb
Posts: 96 | From Germantown | Registered: Mar 2010
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massman
Unregistered
posted
Where is Germantown ? I may know some chiros in your area that may some about Lyme.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For D.C. (chiropractors) or D.O. (doctors of osteopathy) you might check the site for UPLEDGER INSTITUTE and find one who does their style of gentle cranial-sacral therapy.
Whomever you see, be sure they never suddenly twist your neck.
Some D.Cs. and D.O.s have additional educated in nutrition and nutritional supplements. (vitamins; minerals). D.C.s and D.O.s can be very helpful with body work. Be sure to ask about their training, techniques, etc. as there is a wide variety of styles.
NDs will have four years of course work mostly in herbal medicine and physiology - with some emphasis on the nutritional supplements (vitamins).
L.Ac.s generally have a little less formal training in herbs than N.Ds. but still, a couple full years worth. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Keebler: - For D.C. (chiropractors) or D.O. (doctors of osteopathy) you might check the site for UPLEDGER INSTITUTE and find one who does their style of gentle cranial-sacral therapy.
Whomever you see, be sure they never suddenly twist your neck.
Some D.Cs. and D.O.s have additional educated in nutrition and nutritional supplements. (vitamins; minerals). D.C.s and D.O.s can be very helpful with body work. Be sure to ask about their training, techniques, etc. as there is a wide variety of styles.
NDs will have four years of course work mostly in herbal medicine and physiology - with some emphasis on the nutritional supplements (vitamins).
L.Ac.s generally have a little less formal training in herbs than N.Ds. but still, a couple full years worth. -
You are full of information Keebler thanyou so much.
Posts: 96 | From Germantown | Registered: Mar 2010
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