posted
I know im going to have to start taking it sooner or later for this Bart but i've heard terrible stories about it.. It makes my stomach turn whenever i think about taking it... Why does it cause so much (mental) discomfort?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I loved it.
The first three weeks were rough but I expected that so it was tolerable.
I felt down and anxious but after that it was so worth it.
It helped me feel SO much better!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
posted
Was the herx really bad, like did it intensify your depersonalization alot?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
posted
@Deb- How old is your daughter? & has it helped her at all?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Bad move For me.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
for me the depersonalization was much worse at first. It took a couple of months before it got a bit better. That's just my experience.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
If depersonalization means feeling like I have no feelings then yes. It also brought back depression and anxiety.
But again, knowing what to expect helps and you can get thru anything if you believe it is a hope for something better.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
posted
@17hens- By depersonalization, i mean the feeling of being invisible & feeling sort of unreal, like your living in your head
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
posted
I have been on Rifampin since Jan 1 and was worried too but have really had no problems on it. I am less a fan of Flagyl (which I am doing OK on now) and Ceftin (feels like I am swallowing poison). I didn't herx or have any side effects from Rifampin! Good luck!
Posts: 376 | From New York | Registered: Jan 2011
| IP: Logged |
posted
okay well its good to hear not everyone has a bad experience from it
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
| IP: Logged |
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My daughter has been on it for six months and is doing fine on it.
Her brain fog has went away and that's always a positive. She hasn't complained of any negative side effects from it.
I think that at some point everybody finds that ONE drug that makes them feel awful. Doxy has been really hard on my daughter.
She hasn't felt well at all in the last two months since she has been taking it. It's just so different for everyone.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
| IP: Logged |
posted
I had the most severe headaches of my life the first few days on rifampin but I didn't even mind because I knew what it was doing. 1+ month later I'm doing better.
Posts: 258 | From Spokane, WA | Registered: Oct 2008
| IP: Logged |
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I had no problems with it at all.
Posts: 2238 | From East Coast | Registered: Jul 2010
| IP: Logged |
posted
Why worry about it if your not yet on it. Heck, the No 1 fighter against Bart is Levaquin not Rifampin an older antibiotic.
Now your going to hear the people talk about Levaquin and tendon ruptures. My point is you can't worry about meds and what people say. We are all different and react differently then others.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
| IP: Logged |
posted
I would not worry so much. Rifampin caused a headache for me at first but it in time resolved.
Also, you may want to consider increasing the dose gradually. That was so helpful to me and helped me get adjusted to the drug. At first I took 300mgs per day. Then 450mgs day and after that I went to the full 600mgs daily.
posted
Ha! I am the opposite of you...I can't wait to get on it! I did doxy and though it helped tremendously, the first 2 weeks were the herx from hell and then by about month 3-4 I felt like I had swallowed a bowl full of glass shards and I would get a sunburn after being outside for 10 mins. on a cloudy day. In December. In New England.
Posts: 206 | From In the shadow of a mountain | Registered: Feb 2011
| IP: Logged |
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Rifampin was the easiest drug I have taken and I've taken more than you can imagine.
The first time i did rifampin with bactrim and got to remission.
The second time I did it in IV form with IV levaquin. Not problems.
Good med...don't fret...for as many nightmares as you read about there are at least as many good stories.
Posts: 1104 | From N.California | Registered: Jan 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic