You need to log-on to Medscape to view it I think. It's a 30 min presentation. Good to see the medical community shows such dedication to FM treatment.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Can you tell us more of what it's about so I don't have to log in. I would log in if it's something I haven't read or heard about before or something I'm interested in.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I actually don't have time to watch it tonite - maybe later, but wanted to say clindamycin takes my fibro muscle pain to zero.
Posts: 13116 | From San Francisco | Registered: May 2006
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massman
Unregistered
posted
Isn't fibro early stage lyme ?
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posted
I think it is late stage lyme (or other viral or bacterial issues). I think there comes a time when your body is just too run down to fight anymore....but that is just my opinion.
Posts: 893 | From Florida | Registered: Dec 2008
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dmc
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Member # 5102
posted
clindamycin is an antibiotic...hmmmm
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
I had fibro and was definitely late stage. However, if I look way back to HS (almost 30 years ago), I had fibro back then (of course, they didn't call it that, they called it "hypochondria" and a "low threshold of pain"). I was bitten about 4 years before I started HS.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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massman
Unregistered
posted
I was taught that late stage (4th stage) lyme is MS, ALS, Scleroderma etc. RA is 3rd stage, FM + CFS 2nd etc.
But IMO they can be all wound together, especially with coinfections.
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posted
Yup if they had accurate tests the doc in the video would have to eat his words. Just like the docs who believed stress caused ulcers.
Watched most and I think his solution is to diagnose Fibromyalgia early and then tell patients to exercise and take drugs to alter their perception of pain. Posts: 472 | From New Jersey | Registered: Dec 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Everytime I see the pharma commercial advertising lyrica for Fibromyalgia I want to scream. Why would there be tens of thousands of people with achey, painful muscles? Just moronic IMO.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
If you interrupt a person's sleep long enough, they will develop fibromyalgia symptoms.
I read a study years ago where they "caused" fibro this way.
Also, some people with mild fibro are depressed. If given an anti-depressant, they will sleep better and their fibro will go away.
However, those people whose fibro symptoms just accumulate and pile on more and more as time goes by, including the mental problems we know as lyme problems, these are the fibro cases that are actually lyme disease.
I had a friend with the "mild fibro" for years and years. Her fibro totally disappeared when she went on an antidepressant.
I know a woman with mild fibro and sleep apnea. I say the sleep apnea has caused her fibro. If she can resolve the sleep problem, her fibro will go away.
Sorry I never kept the reference to the study that showed how fibro could be induced in anyone simply by preventing deep sleep (REM stage).
Posts: 9931 | From Maryland | Registered: Dec 2007
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I must have read the same article you did about causing fibro by continually waking people up as soon as they hit deep sleep. I think it only took 3 days for them to feel like they had full blown fibromyalgia.
Then, after about 3 more nights of good sleep, they were "cured"!
I think Fibro is caused by many many things. Things as simple as lack of quality sleep, lack of nutrients, gluten intolerance, unknown allergies, and then also by baterial or viral infections.
I just don't think Doctors care enough, or have been taught enough to help us figure it out. And, I know I don't get deep sleep (Stage 3 and 4) but I haven't found a fix yet. No sleeping pills or supplements seem to help.
Posts: 893 | From Florida | Registered: Dec 2008
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merrygirl
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posted
I have sleep apnea and use cpap and I still have awful pain.
Posts: 3905 | From USA | Registered: May 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
It's hard to know which comes first... Sort of a chicken/egg issue. When I first developed "fibro", I don't recall having any sleep issues. Recently, it's the pain that wakes me up. If I take a pain med before I go to sleep - I don't wake up as often.
I think the fibro comes from something other than poor sleep to begin with. Everyone is different, though. Sleep deprivation is a kind of torture. I don't doubt that it can make a person unwell.
I'm sure each case is individual.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
So much has been so confused by lack of testing, definitions and failure to use the clinical diagnostic procedures that are available.
I think the Fibro (or CFS) label is handed out too readily by doctors who are at a loss and the symptoms seem to fit, but no real investigation is done into whether the label really fits. My PC diagnosed me with fibro, started me on lyrica and got me an appt with a pain doc who refused to dx fibro b/c I didn't fit the criteria. Looking back, I see this as such a gift (almost as much of a gift as if I had gotten a CDC WB from LabCorp--that would be like winning the jack pot).
I'm not saying those criteria are fool-proof or anything, but I think lost doctors handing out this diagnosis without consideration to whether it really fits causes a huge problem.
My opinion is that one day, in the future, these dx's will be better defined and further separated by what is actually causing the symptoms. People are looking into xmrv as the CFS agent; the theory behind lyrica is that the pain is neurologically based and lyrica does work for some people to reduce the pain (same for cymbalta). Ultimately, the "lyrica condition" will be separated from other conditions. But, right now, they all tend to be labelled the same thing.
I've also struggled with sleep issues. My opinion about sleep is that there is something that disturbs sleep in the first place and that is the real issue (the disturbed sleep may lead to more pain, but it's the underlying thing that needs to be healed. (BTW, my sleep is "fixed" now, with antidepressants, and the pain is still excrutiating).
So many things disturb sleep.
But, I don't believe that Fibro is really lyme, exclusively. There may be lyme patients who have been misdiagnosed with fibro, but there do appear to be people who have "fibro," but don't have lyme. Nor do I buy the opinion that someone who has been treated for lyme who still has symptoms now just has fibro, without further, very specific exploration. Sure, it is possible that that scenario could exist. But, I don't buy it as a wholesale proclamation. If it were suggested of me, I would demand specific diagnostic criteria written up by the doctor.
This is all why a true differential diagnosis is needed. THAT would be a great resource. A sort of chart of all the (not thought of enough) conditions that could cause or contribute to the overlapping symptoms with criteria on how to rule them in or out.
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