tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Does anyone know of a good GI doc in or around MA that would be familiar w/gastroparesis caused by neuro Lyme?
I just had a horrible experience with, I'm not going to sugar coat it, a STUPID, IGNORANT, PIGHEADED, DEAF GI doc.
After telling him about my Neuro Lyme and how I'm on disability due to how sick I am he looked at my 4 year old child and asked if she was my only one. I said yes and he said "why don't you have more?" Are you frickin' kidding me?
Then I tell him I suspect a possible blockage in my guts/stomach somewhere due to gastroparesis based on symptoms I'm having and a previous dx of gastroparesis (from him) and he says "why would you suspect that in a normal healthy person like yourself?". And, he didn't want to do ANY testing even though I've barely been able to eat for a month and have lost weight.
Told him when I eat the food doesn't go anywhere and sits there and he said must be just a sensation I'm having since when he last tested me 3 yrs. ago the gastroparesis was mild. So, I guess nothing can change or worsen in 3 yrs. w/Neuro Lyme huh? He said, the type of severe gastroparesis I was describing only happens with diabetics with neuropathy. Hello, I just told you I have NEURO Lyme, hence neuropathy!!!!
Anyway, if anyone knows of a good GI doc that is familiar with what Neuro Lyme and Co. can do to the GI system, please help. This doc is going to do an endoscopy on me but that was b/c I asked him to.
Posts: 2541 | From Northeast | Registered: Jan 2008
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WildCondor
Unregistered
posted
I know a good GI outside Boston, but he is not especially Lyme literate, just very nice/kind and open minded. He refers to these kind of things as dis motility syndrome and prescribes meds to help treat it. If you want the info just ask.
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
your mailbox is full. tried to send some good info
Posts: 3905 | From USA | Registered: May 2007
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posted
I dont know any docs but I wanted to say I AM SO SORRY for your interaction with the idiot GI.
I have severe GI issues as well with lyme. I have had SOOO MANY bad GI Docs over these last 7 or so years. I was just diagnosed with lyme and hoping it is the cause of my GI stuff.
It is still unclear. However, I have had multiple GI tests to no avail. In my experience, GI docs kinda suck
Good luck!
Posts: 341 | From NY/FL | Registered: Apr 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Dr. Klipstein, Vernon, CT is lyme friendly. I'm posting his name because he is NOT an LLMD by any means. Just Lyme friendly.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Wild Condor, can you pm the name of the gastro? Have a friend, as well as myself, who is interested. Thank you.
Artistdi
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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