LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Does anyone else get POTS?

 - UBBFriend: Email this page to someone!    
Author Topic: Does anyone else get POTS?
Dania84
Member
Member # 26278

Icon 1 posted      Profile for Dania84     Send New Private Message       Edit/Delete Post   Reply With Quote 
It seems when I stand up and sometimes even just out of no where my blood pressure drops, I feel very faint and my heart starts racing.

It only started after my treatment! I have been on 2 diff medications and its the same thing.

--------------------
[IM]

Posts: 64 | From Calgary | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
aiden424
LymeNet Contributor
Member # 7633

Icon 1 posted      Profile for aiden424     Send New Private Message       Edit/Delete Post   Reply With Quote 
I get severe bouts of POTS. I've had it since I got sick. I take atenolol which seems to help some.

When I have severe POTS symptoms all I can do is stay laying until it passes. It has gottten better since I've been treating lyme.

Kathy

--------------------
You never know how strong you are until being strong is the only choice you have.

Posts: 807 | From South Dakota | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
massman
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I get PANS !
[Wink]

[Eek!]

IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wish I got PANS instead of POTS but unfortunately I have POTS as do many of us with lyme and co-infections.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Dania84
Member
Member # 26278

Icon 1 posted      Profile for Dania84     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lol. I just find it very weird that I got them after treatment..My heart is really effected and thats my only symptom.

Thanks for the replies [Smile]

--------------------
[IM]

Posts: 64 | From Calgary | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

Icon 1 posted      Profile for lymetwister     Send New Private Message       Edit/Delete Post   Reply With Quote 
POTS is Lyme, no doubt. If it isn't Lyme then it's one of the Co's.

I had a variant of it. My BP didn't drop, but my HR would go from 60 to 160 from sitting to standing.

This was at it's worse before treatment. Much much better now. Still taking a beta blocker as I havn't got it all yet, but I can tell you that I have been treating Lyme and Bart only, so it has to be one of those.

Getting ready for Babs now....

Sad thing is that there is a Dysautonomia site called POTS Place, or something like that where the folks there all talk about their POTS, and they are all doing "bandaid" treatments such as salt, hydration, and some other things, but they don't know they have Lyme.

I tried to tell them a while back, but they all told me they were tested for Lyme and were negative. A few though did listen to me and came back thanking me as they tested pos.

I tried to tell them about the bad testing, etc., but they got tired of hearing me and I got booted.

I tried :-)

BTW, FYI, there is a Hopkins pediatrician treating POTS with Minocycline and getting results. I read an article on this a while back. I guess in a few centuries or so, the other Dr.'s will catch on.

Gary

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
All sorts of blood pressure stuff is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

Topic: To everyone with cardiac symptoms please read !
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
massman
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Terry - in all the natural health care I have studied and performed, my focus has been on results results RESULTS ! And you gotta take ACTION to get RESULTS !

People do not want to try something new. I am the opposite - I do.

When I posted about greatly decreasing my Babs load in two weeks, did anybody show interest in learning more ? Close to nobody, if I remember correctly.

All that happened was bashing, saying NO WAY could it be close to be true ! Gotta take months ! Gotta take years ! I must be trying to sell something and on and on...

So that example tells me interest is poor. Another poster in that thread said about the same thing.

Why did you post this here ?

IP: Logged | Report this post to a Moderator
sapphire101
LymeNet Contributor
Member # 6638

Icon 1 posted      Profile for sapphire101     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, I have it. It got better with treatment but had a bad bout with it just recently. I wasn't on any treatment at the time.

Sapphire

Posts: 495 | From KY USA | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
valeriedc
Member
Member # 24950

Icon 1 posted      Profile for valeriedc     Send New Private Message       Edit/Delete Post   Reply With Quote 
Massman,

I'm curious about your babs treatment. Can you post the link or tell me how to find it?

The bashing must be tough.

Thnx!

Posts: 72 | From washington dc | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Here is some info that explains this


www.wildcondor.com/bp

Make sure you get a Tilt Table test.

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.