posted
I just wonder. bartonella seems more or less incurable. the only one who can fix it is a Dr S- and the method is a secret- how come?
----Please do not use the names of LLMD's----
[ 07-05-2010, 11:19 PM: Message edited by: Lymetoo ]
Posts: 268 | From europe | Registered: May 2008
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
I AM NOT A DOCTOR. I can tell you what others have taken, and what helped them, but you really need an LLMD.
There are several w3asy to treat bartonella. Which one will work for you is often trial and error, unfortunately.
Levaquin ( and other drugs in this class like Cipro) is often the drug of choice, but it can, in a few people, ruin your tendons, so you have to be vigilent about any singsn and symptoms of tendonitis.
Azithromyacin can also work. Sometimes doctors add rifampin to these drugs. Sometimes doxyxycline and rifampin.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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massman
Unregistered
posted
How about testing the patient with bart with an EDS machine and different drugs and herbs and herbal mixes to find what would work best for them ?
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Dr. S really annoys me for that reason. As he cannot prescribe abx via the telephone he was telling people who paid $1000 an hour for a telephone consultation to take 20-25 capsules of Zhang's HH. Well that secret is out now and I can tell you it does not work. I relapsed!
I did levaquin and it helped get the bart under control but it also gave me tendonitis and I floxed so bad I could not use any other drug for months.
Next rifampin which didn't help much. Now I am using Bactrim DS with biaxin or zithro (or roxithromycin if you order online) and it is very effective. I add tindamax twice a week and often herx those days.
Massman, what is a EDS machine? I hope it isn't like muscle testing which doesn't work for me. I guess my channels are not "open".
Another pet peeve of mine are the people out there selling "out there" promises that just rip people off that are desperate and to the point of buying anything. I have spent my fair share on them.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Gale,
I'm not sure why it seems that Dr. S is the only one who can fix it? Many patients have gotten better with many LLMDs.
I think it's good to read what all authors have to say - to compare and contrast and figure out what seems to ring true. However, there is never only just "one" cure. Ever.
No patient has the same history, exact combination of infections, etc. And each person reacts differently to medicines. Each person also may have a set of supplements that works well for them but it might not be the correct set for someone with seemingly similar symptoms. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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massman
Unregistered
posted
EDS / BioMeridian etc (check for recent thread about "Anybody Used This Machine ?" or something close to that) check for disturbances in the electricity in the body.
Read the thread and see what you think. Muscle testing ? Many people do it many different ways. Those trained by Dr. K seem to be the best. If you think it is all sales then skip it all. I will paraphrase Paul Simon - A man hears what he wants to hear and disregards the rest.
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
gale, the doc you named was NOT my doc, and I got rid of my lyme, babesiosis, and bartonella.
It has now been over 5 years since I completed my treatment, and I am still symptom free, enjoying my life. I have the same life I had before lyme disease.
The doc who got me well followed the Burrascano lyme treatment guidelines.
I have sent a number of my friends to another doc who also follows Burrascano. This doc was trained by my doc. They all had lyme, babs, and bart. And, they all got rid of all 3 of their diseases.
So, I don't agree that bartonella is more or less incurable. And, I don't agree that the doc you named has the "secret cure,"--even though he would like people to believe it. He has told that exact statement to a few of my friends!
Posts: 9931 | From Maryland | Registered: Dec 2007
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I don't know who Dr. S is, but I don't think I want to know him. UGH!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Bartonella is curable. Many people on this forum have been cured.
There is no one size fits all to cure any tick borne disease and the doctor's name that you mention does NOT use one treatment plan for everyone.
Nefferdum, I would never take medical instructions from anyone other than a qualified physcian. But, I can tell you that this doctor would never recommend a dosage that high. You are putting your own health in jeopardy by listening to so called patients of doctors. Don't do that to yourself. I suspect it was NOT a patient of this doctor that you spoke to since the hourly rate was not even correct.
I would like people to STOP putting down this fine expert in tick borne illness. He knows what he is doing and doesn't give a specific "cure" because there is no magic pill that will cure ALL. There are different treatment options. Each patient is so different.
That "secret waiver" that language (that seekhelp mentioned) is so he doesn't wind up like that wonderful caring pediatric doctor in CT.
I know this since I am his patient and so is my husband and my adult son. We are all doing extremely well with our treatment. I would pay him more then he asks since his research is 1-2 months old and not years old like some others. We have seen wonderful and fast results with his treatment plan, which is different for each in my family.
If you don't have anything nice to say, just don't say anything.
Seekhelp, thank you for removing your negative post. I really appreciate it.
And, please, if you haven't had the pleasure of being treated by him, don't comment. You are saying things about him that are NOT true.
We need to protect our doctors.
Please, if you have something negative to say about a doctor due to personal experience with him/her, send a PM.
[ 07-06-2010, 10:55 AM: Message edited by: Elaine G ]
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
I go to a practitioner who uses an EDS machine and it is showing the bartonella gradually disappearing in my children. They are taking Cumanda from Nutramedix for their bartonella, along with other herbal products for their other infections. Their symptoms are going away, consistent with the machine's readings. They did herx on it for about a month or more.
If the machine eventually shows it is gone and their symptoms are gone, then I will be able to say their bart is cured. (They also tested positive for bart through blood work, so that is additional evidence that they have it.)
The Cumanda tested better on the machine against bart than Rifampin or Bactrim. These antibiotics did show they worked against bart, but not as well as the Cumanda. My observations about my children's improvement during treatment with each of these at different times is consistent with this. Cryptolepsis also tested well against bartonella.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I didn't get that information about how many HH capsules to take from one of Dr. S' patients. I got it from three of them! One wrote, "save yourself the money. . . I have spent thousands. . . " 20 a day was the bottom side. One person was told to take 25 a day. When I emailed with Dr. Zhang to ask about the strength of the new HH-2 compared to the regular HH capsules, he emailed me back referring to me as "one of Dr. S. . . ' patients".
I never had a problem taking that many. When I first got the HH-2, not realizing how much stronger they were, I took 18 of them and had diarrhea.
The problem is it cost hundreds of dollars a month and I relapsed. I was also taking TOA free cat's claw and grapefruit seed extract bought from other sources, and they were helpful for keeping the lyme dormant.
Currently in addition to Bactrim DS, zithro (or roxithromycin) and tindamax, I take resveratrol. lactoferrin, nattokinase, artemesinin, and cysteine specifically to address the bartonella and babesia.
I am almost symptom free but can quickly relapse if I quit abx. Today for instance, there is absolutely nothing bothering me at all. I feel completely well.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I hope you have stopped taking medical advise from people who CLAIM they are a doctor's patient. Obviously they were not patients but someone trying to do the doctor and YOU harm.
A person could PM anyone on this list and say they were a patient of any doctor and give a ridiculously high or low amount of drugs and claim it as their treatment. They could also give negative comments about any doctor. Who is to know if that person is a patient or not?
My point is that you didn't get it from the doctor himself.
I have been treated for a year with this great doctor and never, ever has he told me to take HH in the high exorbitant doses as stated by "so called" patients. My dose is no where near to the lowest dose of 20 that was recommend to you.
My dose is a bit higher than what Dr.Z recommends but not 20 !!! That's a ridiculous amount and I'm not surprised you had diarrhea. I'm surprised you didn't get ill on that amount of HH.
From what I understand and this is only my opinion, relapses are caused because we do not stay on the med long enough.
I am glad to hear you are getting well.
Please remember what works for one patient will NOT work for all.
I sincerely hope you continue your good health.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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janet thomas
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-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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