posted
I haven't had any negative effects from tindamax. It game me some improvement. Hope she does as well. It's so hard to have kids going through all this...
Posts: 964 | From san diego | Registered: Oct 2009
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posted
I pulsed Tindamax for approx 6 months for 1 week every month and every time that is exactly how I felt.
I had to step back on dosage at one point bc the head pressure was so bad.
I am sorry your daughter is going through this. Best of luck to you.
Posts: 104 | From No. VA | Registered: Aug 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My kids both take it on weekends. Neither one has mentioned feeling any differently. But then they never notice much of anything! Or mention it....so I'm not a good judge. But there were no outward, obvious changes when they started it.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
My daughter started Tindimax last Friday. She will take it for a week, then off for 2 weeks.
She hasn't mentioned any changes. I have noticed she seems happier and a little more active.
There was one day that I thought she was complaining about her head more than usual and her OCD flared up a little.
When I took Tindimax, I was lightheaded, my arm tingled, and my leg vibrated. I had never had those symptoms before. I also had more headaches than usual.
Posts: 984 | From US | Registered: Dec 2007
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posted
Jane, I havent talked with you in a quite a while. My daughter pulses Tindamax 3x a week and she has had no side effects or herxing at all.
She has tolerated all her abx very well throughout this 20 month journey so far.
She is actually doing very well..best since her relapse in Sept..the only thing I can attribute it to is Artemisinin capsules which she started about 2 months ago.
Deb G
Posts: 499 | From Malta, NY | Registered: Dec 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thanks for all the response.
Anyone else have a tough start on Tindamax?
Glad to read that many have had positive results.
mmcmann-sorry it has caused problems. Hope you are doing better.
Deb- So glad to read your daughter is doing better. Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
My experience on Tindimax was rough. I started on a high dose and tapered off to a lower dosage. I was on it for a month total.
However the hardship was worth it as I improved greatly afterwards.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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How's your daughter handling the Tindamax and Bactrim?
Mine uses Tindamax 500 mg twice a day twice a week and hasn't experienced anything noticeable--no herxing nor improvement--not even sure it is really doing anything, which can also be frustrating.
I hope she experiences some relief soon!
Posts: 648 | From northeast | Registered: Feb 2009
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Hi Everyone, Thanks for all the replies.
Laura, glad you had improvement.
Mom, Hope you notice improvements soon.
I Have a call into the Dr. I think she may be herxing from the Bactrim too.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
I was afraid of my first dose of tindamax. Took it VERy carefully. The only herx I had was increased headache. It readily crosses the BBB. ALso, it has a much longer half life than flagyl so it does stay in the system longer.
HOpe that helps.
Posts: 747 | From Utah | Registered: Apr 2010
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