posted
The only way to describe the odd sensation I've been having lately is having total control over my limbs but a lack of sensory feedback. For example, I can type fine but sometimes I can't really feel my fingers moving around or hitting the keys. I experience the same thing walking sometimes too; I'll have to concentrate on it a bit. My legs will feel a little heavy and dull. Sometimes the back of my head will get all tingly and numb. Serious ringing in the ears at times too. Thankfully, I don't really have any joint or muscle pain.
Can anybody relate to this?
Posts: 13 | From MD | Registered: Jul 2010
| IP: Logged |
posted
I had no idea what was going on, but I kinda felt like my mind was on auto pilot.
I knew to pick up my hairbrush with my right hand, but then it sorta felt odd....like when you are trying to write with your left hand and you are right handed.
It was like I was not making a sensory connection. I first noticed it June 30th and when I woke up on July 4th I was 99% normal again (coordination wise that is).
Even typing felt akward. I could turn off a lightswitch but when I did it was very purposeful and there was just some kind of cognitive disconnect. Swallowing was difficult too and I had to concentrate on the action.
Those were my scariest days since starting treatment in April.
Hope this helps, does it sound like what you are expperiencing?
Posts: 25 | From AL | Registered: Apr 2010
| IP: Logged |
posted
I have had this. For me it was related to my ears and vestibular disturbance. It took me a long time to connect the two.
Posts: 433 | From new york | Registered: Dec 2004
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Q: "Can You Feel Your Arms & Legs?"
A: Yes. But I'd rather feel someone else's. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Now, really . . . some of the symptoms you describe (lack of sensory feedback) had me wondering just what happened to my body's "control" panel.
Be sure your LLMD is aware of your symptoms.
Much is explained in the links below - just to show you the range of symptoms and that these can come and go - and it can get better.
================
ANY time you have a question about symptoms, refer back to these top two articles. So much makes sense when you know others have experienced it and lyme researchers have made note:
AMERICAN TINNITUS ASSOCIATION (Ringing, whooshing, hissing, roaring, etc.)
===================
The inner ear is often affected by lyme and by medicines. When that is off kilter, the brain and body can short circuit, too. Proprioceptive receptors are all haywire. Here's a clue as to just some of the things the inner ear affects:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
============================
And, toxicity from lyme can cause the symptoms you describe. LIver support is vital. That is also addressed in the thread above. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When you are fuzzy about the connectedness of your body, focus on the bottom of your feet and work up from there. If your finger tips just can't feel the keys when typing, just let your brain guide them.
The feeling, or connectedness, can improve over time and with treatment.
For what it's worth, I have been diagnosed with "severe sensory dysfunction" My sense of where I am in the space is like being in a "fun" house at a carnival during an earthquake. It's just not fun. But, treatment often helps and, at times, vestibular training or rehabilitation. That is address in the Tinnitus thread above.
Aspects of the topic proprioceptor are discussed in the several places at Britannica - just clink onto the links
. . . three main groups of sense organs:
* exteroceptive, such as those that detect light, sound, odour, and tactile stimuli;
* interoceptive, exemplified by taste receptors;
* proprioceptive, or those receptors that detect events occurring in the interior of the organism.
. . . human sensory system (in human sensory reception: Approaches to the study of sensing)
. . . nervous system (in human nervous system (anatomy): Movement)
. . . receptor (nerve ending) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Any (or all) of the sensory systems can be affected by lyme. I've just focused on proprioceptive but you can take it from here: ----------------
Proprioception . . . meaning "one's own" and perception, is the sense of the relative position of neighbouring parts of the body.
Unlike the EXTEROCEPTIVE senses by which we perceive the outside world,
and INTEROCEPTIVE senses, by which we perceive the pain and movement of internal organs,
PROPRIOCEPTION is a third distinct sensory modality that provides feedback solely on the status of the body internally.
It is the sense that indicates whether the body is moving with required effort, as well as where the various parts of the body are located in relation to each other.
. . . The cerebellum is largely responsible for coordinating the unconscious aspects of proprioception. . . .
[In the section] Impairment:
. . . It has been proposed that even common tinnitus and the attendant hearing frequency-gaps masked by the perceived sounds may cause erroneous proprioceptive information to the balance and comprehension centers of the brain, precipitating mild confusion. . . .
- Full page at link above. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Wow. Looks like I've got some serious reading to do tonight. This odd symptom definitely comes and goes. Today it was in my face and head, and I actually decided not to finish my lunch because I was having the same odd sensation while swallowing. Yikes!
Posts: 13 | From MD | Registered: Jul 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- That sounds like you need to call your LLMD if you have sensory dysfunction WITH swallowing.
Are you getting enough magnesium ? Do neck / throat relaxation techniques. Yawn. Massage the area lightly.
In addition to all the sensory stuff I posted, Bleiweiss and Grier also speak to the dysfunction with nervous systems. There are usually many factors.
Cranial-sacral therapy may help. Find the site for UPLEDGER INSTITUTE for a practitioner near you.
Check out FELDENKRAIS, too. -
[ 07-12-2010, 06:46 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Dr. Burrascano's Treatment Guidelines, 16th edition, October, 2008
Page 6:
. . . Magnesium deficiency is very often present and quite severe.
. . . Hyperreflexia, muscle twitches, myocardial irritability, poor stamina and recurrent tight muscle spasms are clues to this deficiency.
. . . Magnesium is predominantly an intracellular ion, so blood level testing is of little value.
. . . Oral preparations are acceptable for maintenance, but those with severe deficiencies need additional, parenteral dosing: 1 gram IV or IM at least once a week until neuromuscular irritability has cleared.
Page 25:
. . . Levofloxacin is generally well tolerated, with almost no stomach upset. Very rarely, it can cause confusion- this is temporary (clears in a few days) and may be relieved by lowering the dose.
There is, however, one side effect that would require it to be stopped- it may cause a painful tendonitis, usually of the largest tendons. If this happens, then the levofloxacin must be stopped or tendon rupture may occur.
It has been suggested that loading the patient with magnesium may prevent this problem, and if the tendons do become affected, parenteral high dose vitamin C (plus parenteral magnesium) may afford rapid relief.
Page 28 (in the supplement section):
6. MAGNESIUM (required)
Magnesium supplementation is very helpful for the tremors, twitches, cramps, muscle soreness, heart skips and weakness. It may also help in energy level and cognition.
The best source is magnesium L-lactate dehydrate (``Mag-tab SR'', sold by Niche Pharmaceuticals: 1-800-677-0355, and available at Wal-Mart).
DO NOT rely on ``cal-mag'', calcium plus magnesium combination tablets, as they are not well absorbed. Take at least one tablet twice daily.
Higher doses increase the benefit and should be tried, but may cause diarrhea. In some cases, intramuscular or intravenous doses may be necessary.
Page 30:
OTHER OPTIONAL SUPPLEMENTS
VITAMIN D
Surprisingly, most people in America are vitamin D deficient. In the Lyme patient, low vitamin D levels can cause diffuse body aches and cramps that are not responsive to magnesium or calcium supplements.
Magnesium: The Underappreciated Mineral of Life Part II
-----------
All this on magnesium is partly because it has helped me so much. However, be sure to ask your doctor. Most lyme patients are very low in magnesium as the infections seem to do that.
One thing that makes lyme hard to treat is that the bacteria creates a sort of film around it, a biofilm.
Some are concerned that the magnesium can "feed" infection as magnesium has been found in the biofilm of borrelia (but - along with many other things).
However, there other ways to address the problem of biofilm besides with-holding the a key nutrient from all the cells in our body.
if the body is severely depleted the body must be replenished as magnesium is a necessary mineral for survival. We would die without adequate magnesium. Many of the severe symptoms of lyme can be greatly relieved with proper magnesium, along with other key nutrients.
Taking magnesium with B-6 helps it get into our cells better. And B-6 is a calming vitamin, too. -
Magnesium Malate is an essential mineral that is required by every cell in the human body and is important for helping to maintain normal cardiovascular, muscle, nerve, bone and cellular function.
Magnesium deficiency is one the most common nutrient deficiencies in the United States. No longer is there a sufficient amount of magnesium in most people's diet to maintain proper magnesium levels, even in a non-stressed individual.
Magnesium requirements can increase four to six fold under stress.
Under stress, magnesium is wasted through the kidney through the urine. It is also wasted from the body by the intake of coffee, soda, and alcohol.
A person mildly deficient in magnesium will have difficulty sleeping, sore muscles and constipation. A person moderately deficient in magnesium will experience muscle cramps, palpitations and muscle twitches.
A person severely deficient in magnesium will develop fatal cardiac arrhythmias, coronary spasms and heart attacks. Also, the possibility of seizures is more likely during severe magnesium deficiency if the patient has an irritable focus in his or her brain.
Magnesium Malate is likely to be the most effective form of magnesium.
Most alternative and integrative practitioners find a wide variation in the efficacy of different forms of magnesium.
Magnesium Oxide has the lowest absorption and utilization rate by the body, and this is the form most commonly found in health food stores.
Magnesium Malate is best absorbed and utilized by the body. According to many health care practitioners the cells utilize the malic acid for energy production in the mitochondria and simultaneously draw magnesium into the mitochondria, where it is most needed.
Most people in the United States are constipated because they have less than three bowel movements a day .
Constipation causes toxins to back up into the liver and gall bladder and then into the rest of the body. This back up of toxins will cause fatigue, brain fog, muscle aches and a variety of other symptoms.
Magnesium in sufficient amounts will correct constipation in most patients. Patients who should be most concerned and cautious when taking magnesium are those with kidney insufficiency or failure.
(from BIONATUS LABORATORIES NUTRAMEDIX DISTRIBUTOR IN ECUADOR Guayaquil, Ecuador)
(GiGi) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Thanks for all the information. It's going to take me some time to sort through. But just to let you know, I CAN still swallow. I wouldn't even say that it requires extra effort. Just feels different somehow...in the same vague, impossible to describe way that typing, walking, and other repetitive motions do. Anyway, thanks again for the info. I'm in touch with an LLMD in my area and should have my initial appointment soon.
Posts: 13 | From MD | Registered: Jul 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic