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» LymeNet Flash » Questions and Discussion » Medical Questions » High CD 57, still bedridden

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Author Topic: High CD 57, still bedridden
Sophie1234
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Hi, my DC 57 is 296, and yet I am bedridden most of the time, racked with pain, etc. I have Lyme plus three coinfections. I thought the higher the CD 57 the better your body was doing.

Can anyone shed some light on this? thx.

Posts: 113 | From CA | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
steelbone
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This is why i havent got the test done

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

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jkmom
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I was told by my LLMD that CD57 is only affected by Lyme and not coinfections.
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JR
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This is why my LLMD said they were not a reliable marker for degree of illness. He no longer orders the tests for his patients.
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bcb1200
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Dr. B and my Doc say the CD-57 is for lyme only. Not co-infections. If the CD-57 is high then lyme's role is most likely minimal.

You probably feel bad due to co-infections.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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Dania84
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Its surprising how co infections can feel worse than the actual disease.

--------------------
[IM]

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Sophie1234
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This is actually great to know, that it most likely my coinfections that are keeping me unwell. Progress, right?
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littlebit27
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I was coming to post the same thing as bcb. If the CD-57 level is high Lyme is not the main culprit at the moment.

I put a lot of faith in CD-57 as does my LLMD. He ordered the test, but I actually asked for it out of curiosity. He wasn't suprised by my results though.

--------------------
*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/

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Wonko
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I also never had a low CD-57, the only time it was measured, near my lowest point in my illness, was over 100.

I was told the same thing as noted above, that it is not always a good indicator esp. if co's are a major problem. My LLMD has stated that he things Bart is my biggest issue.

A high CD-57 doesn't mean you're not sick, just that the test is not a good measure of your illness.

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Katrina
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The same as many above have mentioned. My cd-57 was always above 100 but I was severely ill. It turns out that I had babesia Duncani that was untreated.


Treatment of babesia has made a huge difference in my life.

Katrina

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supergirl
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My cd-57 was tested a month ago and it was 20. My llmd didn't really explain it to me but I read Dr. B protocol so I know if it needs to be above 60.

--------------------
PHOENIX: mythical bird that rises from the ashes
July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began
bite: unkown - no rash

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littlebit27
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Dr. B says it should be a lot over 60, someone chime in-I think it's 200 Dr B says?

--------------------
*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/

Posts: 2310 | From Southeast | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
   

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