posted
Hubby was diagnosed with Borna Virus back in 2002 I think. He has been on the antiviral med Amantadine ever since. It has not really worked -- tested positive for Borna Virus a total of 4 times I think in total over 2 or 3 years. Unfortunately there are currently no labs which can test for this virus in the U.S. There is a test available in Germany, but we have not had the funds to have that test done.
Valtrex is another med possibility I think. But it is fairly expensive. Hubby's docs have never been very interested in pursuing viral issues and I know at some point that may need to be addressed.
If you do a search here on LymeNet there are a few threads I have posted over the years, but there has been very little research done on this virus since it was first discovered in humans. Lots of initial interest since it was found mostly in schizophrenic patients.
I am pretty sure Borna Virus was discussed at one of the Lyme conferences in the last year or two. Dr B didn't really know anything about it back in 2003 when hubby was his patient and had had a couple of positive tests at that time.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
My daughter did the German borna virus test and was positive.
Her LLMD put her on Valtrex. He said he had seen bad things happen to his adult patients on Amantadine. The German lab used Amantadine in their studies.
My daughter got very giggly (in a good way) the first few days on the Valtrex. That wore off and she started having balance problems.
When I picked up the Valtrex for the second month, I noticed a side effect of Valtrex was balance problems. I asked the pharmacist about this and surprisingly, he said the balance problems were probably caused by die off of the virus.
She got bad enough that she couldn't really walk without help so we took her off to see what would happen. Her balance problems cleared up.
Her LLMD thinks she does need to do the Valtrex at some point, but we aren't doing it now.
Posts: 984 | From US | Registered: Dec 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Thanks for the responses.
Bea - how was your husband diagnosed? You said you didn't get the German test done. Is there a test here that you did?
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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