posted
My daughter was clinically diagnosed with Lyme Disease in May. Since the end of March she has been sick with her main symptom being a horrible non-stop headache right above her eyes. She was in the hospital for a week where specific brain or head injury/illness was ruled out. No pain medications have worked for her. Does anyone have advice or experience with this presentation of the disease? We are concerned about coinfections but initial bloodwork did not come back positive. Our Lyme doctor seems convinced that coinfection is not the issue but we are not convinced. Any thoughts or advice would be most helpful.
Posts: 5 | From East Montpelier, VT | Registered: Jul 2010
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D Bergy
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posted
I would get some saline nasal wash solution and irrigate the sinuses, as sinus problems seem to often accompany the disease. It cannot do any harm, and may help.
This will not cure the original cause, but may offer relief in the short run. A headache above the eyes is often sinus related.
Vicks petroleum jelly may loosen it up also.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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Jane2904
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posted
Treatment for Bartonella has helped our daughter with this same symptom.
Best of luck to you and your daughter. Hope she gets some relief.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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D Bergy
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posted
I was also going to say that it sounds like a Bart symptom, and also a Bart die off symptom, but I was not 100% sure on that point.
From personal experience, these tests for most any pathogen are unreliable at best. I would not base my treatment, or lack of treatment solely on the test results. I have been burned more than once on negative tests for Lyme, H-Pylori, etc.
They can only prove you have the infection, but cannot prove you do not have it.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
She was originally diagnosed by her primary care physician with a sinus infection. We tried all kinds of remedies to loosen the sinuse, including a neti pot, herbal salves, etc. but came to conclude that there was nothing there that needed to be cleansed. She did not originally have any cold symptoms or other signs of congestion. They were very interested in the hospital about Bartonella but ruled it out based on testing.
Posts: 5 | From East Montpelier, VT | Registered: Jul 2010
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Jane2904
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Our daughter did not test Positive for bart until Months after a short treatment for Lyme.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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D Bergy
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I only know how to treat Bart using frequencies, so I cannot really give you any other method of treating it yourself.
I do think Bart should be considered as a possible cause, and it could also be Lyme causing it.
These tests cause as many problems as they resolve in my opinion. I have done quite well with treatment without a single positive test for anything. I am glad I did not trust any of them.
I hope you can get to the bottom of this.
Good luck
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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What treatment protocol did your daughter have success with? My daughter has been on several antibiotics, the latest for close to 2 months, without any relief for her headache.
Posts: 5 | From East Montpelier, VT | Registered: Jul 2010
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Jane2904
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Rifampin and Minocycline seemed to help in many ways.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Carol in PA
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The thing that made the biggest difference for my headache was systemic enzyme therapy.
I started Wobenzym in an effort to see if reducing the hypercoagulation would reduce headache, pain, and fatigue.
Within two weeks, I no longer woke every day with a splitting headache.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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tick battler
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Rifampin was the drug that stopped my 5 year old son's 8 month headache. After 2 months on Rifampin, it went away. He was also on clarithromycin. You apparently need to take Rifampin with another abx so it will not lose effectiveness.
I believe it was caused by bart, since that's what Rifampin hits. Also his bart titers went down after starting it. It took about 3 months to get the titers to normal.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Pinelady
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It could be anything, if she has lyme you may not be able to see the co-infections until you get the loads down----
you could try a pinch of coconut oil to see if it hits anything, sweet oil in the ears, heat pad mild to start, keets hate heat, Epsom salt soaks, vitamin C for the immune system, and coconut oil on the skin after soaks.
Lemon juice in water, sweetened with Stevia. And it has stopped my hot burning neck many times by just rubbing a lemon on it.
Ginger has also been shown to relieve pain by 25%. You can use it in drinks, and rub the root on the skin. Hope you find something to help....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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