LymeNet Flash: LLMD with negative test results?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » LLMD with negative test results?

UBBFriend: Email this page to someone!

Author

Topic: LLMD with negative test results?

summer22
Member
Member # 27913

posted

Hi!

Can you see a LLMD and get treated if you were previously diagnosed clinicaly through an infectious disease dr?

What if your blood tests are negative?

What will a LLMD dr. do if he/she doesn't agree with the infectious disease dr.'s diagnosis?

Do you get something from the infectious disease dr. to bring with you that says "you were diagnosed"?

I am asking because I believe I received this in June of this year. I spent alot of time at a t-ball field coaching my son's team and the field is infested with ticks.

So I am afraid the 21 days of doxy will not be enough and I don't know if this dr. will treat beyond that.

Thanks.

Posts: 70 | From NJ | Registered: Sep 2010 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

I would get recommendations for an LLMD, then try to ask patients of his what they think.

An ILADS LLMD will know to diagnose clinically based on symptoms, so it would be no problem continuing treatment if an ID doc saw enough to diagnose you. However, I have seen people come back on here saying a supposed LLMD won't diagnose them, so best to get actual patient feedback.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

So is your test negative?? I've really never heard of an ID dr who clinically diagnosed someone with Lyme. That is amazing!

Six is right.. make sure you find at least 3 happy satisfied customers before proceeding with a name given to you.

The doctor needs to be highly recommended... not just "recommended".. hope that makes sense!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

summer22
Member
Member # 27913

posted

Still awaiting test results.

Thanks for the info.

Of course if my test results are positive then I would imagine having an easier time getting treated by a LLMD.

Yes I was clinically diagnosed through an ID Dr. who is an infectious disease specialist.

He said he diagnoses Lyme every single day!

I spoke with him this morning and asked if he treats beyond the standard 3 weeks and he said yes!

I was shocked to hear that.

But of course he did say let's see how your feeling.

He wants to see me weekly and my next appt. is this Friday.

Posts: 70 | From NJ | Registered: Sep 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

You found a rare ID dr then. Lucky you!

I don't think you'll have any trouble with an LLMD treating you.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546

posted

Sounds hopeful.......really hopeful with this ID doc. I'm sure there are some who may be "closet LLMD's".

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

Posts: 1013 | From In a van down by the river. | Registered: Jun 2010 | IP: Logged |

littlebit27
Frequent Contributor (1K+ posts)
Member # 24477

posted

I'm sure there are some closet "LLMDs" too but I also met a "LLMD" and he said he treated past the standard time by the ISDA, but really he didn't in all cases. Only when the PCR through a mainstream lab was still positive after treatment.

But getting a clinical diagnosis from an ID doc is great! An LLMD will treat based on symptoms, it doesn't matter if you have a negative test.

--------------------
*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/

Posts: 2310 | From Southeast | Registered: Feb 2010 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

If he's willing to treat you and your insurance covers it, you might stick with him for a while .... if it appears that it's going to end, then look for an LLMD. That's what I'd do ....

Or, if treatment comes to a standstill, then it's time to move on.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

kitty9309
LymeNet Contributor
Member # 19945

posted

He may not treat for co-infections, though. I would ask him.

Many are treated for Lyme and don't get well b/c of an undiagnosed co-infection of Babesia and/or Bartonella.

Posts: 819 | From East Coast | Registered: Apr 2009 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/