lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Starting tonite. Some people said bactrim was great, couldn't tolerate it. Anyone on rifampin? We're all different, but anything I should look out for? Thanks.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I like it but it is combined with biaxin right now.
On a 10 day switcharoo protocol that is working good for me. Really helps my rash.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I hated it.
Caused muscle contractions (cramps) for me.
From my bladder to my legs every night.
It may help to up magnesium while on this med.
However, on a lighter note,
My children thought it was "way cool" that I could pee orange.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I don't know if I felt horrible on it because it was working or because it wasn't working. After three months waiting for the window to open, I gave up and went to Bactrim DS and rapidly made progress. It could be the stage was set for me to start to get better by the rifampin. I have wondered if I took it again if I would see more progress because I have plateaued on Bactrim. Good luck.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Daughter couldn't tolerate even a small dose of rifampin 25 mg from a compounding pharm. Trying mino/zith for now, but anticipating that she'll start bactrim soon.
Good luck...hope it works for you.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
I found that it made me feel out of control, like I was PMS'ing all the time. That faded after about 1.5 months or so, and while my temper isn't as good as I'd like it to be, it's better.
I also had increased forehead acne, and slight fatigue. I'm also able to lose weight now, due to it apparently lowering cortisol levels. Libido is down as well - I was warned about that too. Posts: 131 | From PA | Registered: Aug 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Rifampin is one of the best meds for me along with Clindamycin. I hope it helps you!
Posts: 4681 | Registered: Oct 2000
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posted
Is rifampin usually taken with food or on an empty stomach? I will be starting rifampin this weekend and am unclear if I need to 'buffer' it by taking it with my meals.
I forgot to ask my LLMD when he gave me the prescription and, right now, feel incapable of calling his office and asking the question. Too much fatigue, brain fog and a massive headache. I am really hoping that rifampin will help!
Posts: 40 | From New York | Registered: Mar 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Mine says on the label to take with food.
Posts: 4681 | Registered: Oct 2000
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Rifampin should be taken on an empty stomach. Its effectiveness may be reduced by as much as 30% when taken with food.
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Thanks to both of you. I finally had enough energy to call my doctor's office and he also says to take with food. He is very concerned about the possible impact on the stomach. But I also saw that the directions said to take on an empty stomach, thus my confusion.
I will take with food. I am hoping this will make the headaches go away. Like now!
Posts: 40 | From New York | Registered: Mar 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Good luck Mariski!
Posts: 4681 | Registered: Oct 2000
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