seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
This is starting to be bad. For the last 2 weeks I struggled with my neck glands feeling very swollen and my lymphs under my chin. My ID doc suspected mycoplasma pneumonia and ran a few tests. My initial test showed low positive and he asked for a titer level. It came back normal. No active infection based on my IgM results. My cold agglutinins are elevated at 1:128.
Either I have become very resistant to Abx, have a funky virus, or am using the wrong Abx. I just can't improve at all. My jaw feels swollen. I went to the dentist and they said all checked out OK, except based on an x-ray they suspected an old root canal went bad. They sent me to an endodontist. He looks at everything and said no way all is fine.
I feel much weaker than normal and sleepy. I'm dripping sweat beads a lot and cold sweats. Had to go to my PCP last night due to bad ear pain on my right side. He diagnosed an ear infection and said my eardrum was bulging a bit and he could see some water on it.
The whole time I've been on Biaxin. So I got this while ON this Abx. He switches it for Augmentin (875 mg) 2 x day. Just 3 weeks ago I was on Augmentin XR (2,000 mg 2 x day).
I can literally feel my neck swelling. If I look down, my jaw feels like it's going to spasm.
Temps are OK. My chest feels somewhat tight and I tire easier than before. I saw a pulmonary specialist y-day. He looked at an x-ray done on 7/20 and said it's perfectly clear. He said my lungs show no signs of infection and are clear. 3 other docs informed me before they heard congestion and a rattle. He laughed at me and said I look great and he's got patients who really are ill and need oxygen to get around. My O2 level on my pulse-ox was 98%.
Is this just my new way of life now? Neck swelling for no reason? There were no medication changes? I wonder if Biaxin just started to be useless.
My ID doc wanted to move to me Minocin at a high dose and try an anti-viral. I can't handle Doxy well, but I may have to do something if this acute issue doesn't get better. Can you get false negatives on Myco? A Myco PCR blood test was negative too.
My pulmonary doc said the only other thing they can do it a bronchoscopsy (sp??). The actually knock you out and take samples of deep secretions to look for infection in your lungs. He said it seems very unnecessary based on my presentation. He didn't even think a chest CT-scan was warranted. This swelling in my chin got much worse in late July (after the x-ray). He said nothing would change in 17 days.
What to do?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Bart or BLO caused these same symptoms for me, clarith ith bactrim helped quite a bit but did not cure despite taking them for 5 months. Now taking Levaquin and that has resulted in a large further improvement.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
At least in my wife's case, the unexplained ankle swelling was directly from Bart infection.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Red Root tincture to drain lymphatic system.
Rebounder (trampoline) - bounce on it 5-10 minutes every day.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Have you started your Alinia yet?
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I start my Alinia this weekend glm1111. I'm seeing a LLMD now, but my ID doc made the initial diagnosis. He will treat Bart but is not a clinical Dx type person. I'm going to try the Red Root Tincture today. I have some.
I woke up in the middle of the night hacking up phlegm. I couldn't stop coughing and started gagging due to it. Sure, I'm healthy as a horse. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sorry you are feeling so bad. If it will make you feel any better, I have been there with the same symptoms.
I have found that high dose Vitamin C powder with bioflavinoids with lots of water used to help my bronchial symptoms and asthma as well as calm down the other infections.
I am sure you know it can be a great immune system builder. Also cleans out the colon where a lot of these infections are sitting. Hope you get some relief soon. Good luck with the Alinia.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Sure, I'm healthy as a horse. 
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