posted
Does anyone else have this weird spaced out or dreamy feeling? Like everything seems/looks surreal or fake? And things look blurry and weird? I am also off balance
I HATE this feeling and I dont know if its lyme or would it be a co infection causing this?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Lyme and cos. Search depersonalization and any of my posts. It's frustrating, meds,diseases,herxes,treatment,any and all of the above...everything all day, it comes and goes for a lot of people. That's my first symptom that Lyme/cos are up again. Feel better soon.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Hi jackie,
After years of stuggling with this symptom and treating hard, I finally got relief from Coartem.
I unfortunately didn't follow it with Primaquine andrelapsed, but it surely helped tremendously to point to babesia causing that symptom.
Cleared again with Chloroquine and Primaquine. Fuzzy Slippers posted a good symptom list which also lists "spaciness" as a symptom of babs. Hope this helps you to get rid of that nasty symptom.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
interesting pocono. I also had complete relief from this and all symptoms in the middle of a course of riamet/coartem.
I have ordered more and I have also ordered a course of Chloro and Primaq to do with it. Hope this is the missing link.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
NMN,
I think you would want to do one or the other. Either Chloroquine and Primaquine or Riamet and Primaquine.
I hope it works for you.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
Sorry for being naive but is riamet/coartem a drug or is it a supplement?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
Pocono, I was intending to do a course of riamet before and at the end of the primaquine chloroquine treatment. The chloroquine is just 5 days so I will stop all drugs for that one.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
jackie,
Coartem as it is known in the U.S. is an antimalarial prescription medication that is usually taken as a 3 day course.
You don't have to be sorry jackie. This is how we all have to learn and try to help each other. Keep asking as the group here is great and will try to help as much as possible.
There is also a search function if you haven't already found it which allows us to see past posts which are often helpful.
NMN, I did the 3 day course of chloroquine so not sure about the 5 day protocol. I know it has a very very long half-life.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
I am dealing with this symptom and HATE it! I feel like I'm walking around in a dream.
My mom was over the other day, and I was looking at her thinking, "Is she really sitting here talking to me? Am I dreaming?"
It's a very annoying part of the illness that should go away with treatment.
Hang in there! I, too, am scared of all of this...and this is a flare up for me...I've been through even worse....still terrified...lol. Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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posted
For the record guys with me the deep depersonalization you are describing was bartonella and lifted with levaquin after about a month.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I had this really bad back in Feb / March. But now it is gone. I'm very thankful for that. Keep at it. You'll get there! I'm 95-100% today!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I had depersonalization and when it was gone, it was such a huge change in my quality of life. I can't remember what got rid of it but I think it too, may have been with bart treatment.
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
Yes yes yes! This got very bad for me with bartonella, but i know Lyme can cause all sorts of psychiatric issues. I guess the combination is a bad one! You're not alone!
Posts: 161 | From Southern United States | Registered: Sep 2009
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posted
thanks everyone, I am wondering if it is Bart causing this for me or now. Is anyone from Canada? Do you know if the testing for co infections here in Canada are accurate?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
why some people said it's Babs and some said Bat?
Posts: 158 | From pittsburgh | Registered: Aug 2009
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
"why some people said it's Babs and some said Bat?"
Been thinking the same thing feelbetter.
Although, I have been trying to hit Bart recently and finding I at times am feeling less spacey treating this also.
Maybe there are different levels of spaciness?
It has also been so long since feeling "normal", anything remotely close to feeling "normal" feels like a success.
I have seen this symptom listed under both Babesia and Bartonella.
For me, the Babesia spaciness was extreme! Zombie-like with confusion etc..
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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quote:Originally posted by Pocono Lyme: "why some people said it's Babs and some said Bat?"
Been thinking the same thing feelbetter.
Although, I have been trying to hit Bart recently and finding I at times am feeling less spacey treating this also.
Maybe there are different levels of spaciness?
I completely agree. Lots of illnesses cause the same symptom, and what matters is not that the symptom is THERE, but HOW it happens. Just like Bart and Babs can both cause fevers, but they happen at different times, with differevtn levels of fever. The specifics matter more than the fact that you have the symptom.
Posts: 161 | From Southern United States | Registered: Sep 2009
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posted
i have this spaceiness too.. i treatet bart aggressivly for 10 months straight with several abx, factive, levofloxacin, bactrim, mino, rifampicin etc all in combination.. but the symptom didnt go away.. now i think its babesia.. will start treatment soon
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You mentioned some balance challenges, see links below for how the inner ear might be affecting your balance and your vision, and energy to hold focus which would account for a spaced out feeling.
That can also be from adrenal exhaustion, very common with lyme + co. Adrenal support is helpful. I think that's covered in the last link below.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In addition to all the possibilities above, lyme encelphalopathy or encelphalomyolitis causes swelling in the brain. That makes everything harder.
Toxicity is a huge issue, too, and that will slow brain waves.
Brain waves for most with lyme are in the sleepy stages, so to speak. This will get better with treatment and excellent self-care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
yes.
I think mine was caused by Bartonella. Tests for that are not always accurate.
Bactrim DS (preferably with Zithromax) gets rid of mine. Not everyone has luck with Bactrim though.
For others, it takes something like Levaquin (read up on tendon issues that can result, so you can stop in time if necessary)....or something like Rifampin with Zithromax.
So Bactrim, Rifampin with something else, or Levaquin.
It CAN go away....once it does, it's like a miracle. Gotta keep trying antibiotics until something works for it. It should start working anywhere from 1 week to 4 weeks ideally, but could take up to 3 months.
This symptom doesn't take as long to get better with abx as some of the other symptoms.....normally with this symptom, when an antibiotic is gonna help it, you know within the first 2 months.
Also, I recommend boosting your immune system with Low Dose Naltrexone. An exaplanation on why it works can be found in Kenneth Singleton's book "The Lyme Disease Solution."
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