posted
I was bit in 1992, treated with abx - then never thought about it until I had to have an emergency hysterctomy in 1994. I never recovered from that, forgot about the Lyme. Started going from dr to dr, test after test because I was experiencing pain in my legs, felt like I had the flu, it was awful. I was bedridden for seven years at one point - oh that's right it was fibro....
I have been going down hill ever since. Just this May, 18 years after being bitten - I started to question things; like this can't all be from Chronic Fatigue, Fibromyalgia or all the other things that come with it.
Had my PCP run a Western Blot... surprise negative. Started doing major research, found another doctor this time LLMD. He ran it (WB)and put me on just 5 days abx. I still felt like crap, can't work, can't do much of anything.
I finally asked for a CD57 test, yesterday I got the results and my number is 41. That's when my LLMD said you need to come in and we need to do something. (really?)
I'm thrilled that finally I am being taken seriously and going to get treatment.
My question; Has anyone ever gone to see Dr. M in California? Did he help you with the Lyme?
Just thought I would see if anyone had been his patient and how they liked the way they were treated for their Lyme Disease.
Thank you in advance...
Posts: 2 | From Northern California | Registered: Aug 2010
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posted
Most LLMD's treat based on symptoms not tests, so I'm surprised an LLMD would deny you treatment based on a WB being negative. Lyme is a clinical diagnosis.
I'm glad you're getting treatment. I hope someone can answer questions regarding your LLMD (but details need to be by PM).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I don't know anything about the doc.
But I would like to say I'm glad your still with us...Lyme is a long road for many of us.
Prayers for a easy one.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Just wanted to say good luck! And good for you for sticking with it. Kind of going through same run-around here. My first LLMD appt. tomorrow!
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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posted
Just wanted to say good luck! And good for you for sticking with it. Kind of going through same run-around here. My first LLMD appt. tomorrow!
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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posted
I hope the DR M is a different dr from the one who left you hanging with only 5 days of abx!! Please tell me this is a different person, because the first dr was not an LLMD.
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