posted
I've been at this for awhile and have taken many different combo's before.
My stomach has periodically been bothering me, nothing horrible but I don't want to develop permanent GI problems.
I am on Malarone, Biaxin, omnicef, rifampin and now I'm starting plaquinel. Also, I'm on the cowden protocol.
Have any of you taken this much medication at one time? I know several of the people who have gotten better did take alot of medication but I am wondering if this is too much and will it cause permament problems?
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
This is what I too am concerned about on a similar protocol. When you get to 4-5 drugs, it gets very scary.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I know. A few of the others who have gotten well have talked about taking alot of medications. I'm just not sure how long they took them and how many at one time?
posted
Thanks. I know I have asked that before however, this time I'm taking even more. I think this is the most I have ever taken in six years. (at one time of course)
Posts: 219 | From Michigan | Registered: Apr 2008
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posted
Thanks so much everyone. At times I get sooo sick of taking all this stuff but I know there is no alternative. It seems its the only way to get better.
I have to say I have made huge progress in the last year or so. I'm just wondering if all this stuff is tolerable without causing huge problems. Like I said, in the past I have taken many medications....but never 5 at one time.
It is such a long haul. I'm glad to hear you are thinking like your old self. Thats great!
I try to remember how far I have come just to keep it all in perspective.
It is so difficult having the patience and determination to keep going. There are so many ups and downs.
At least the ups are longer and the downs are not as bad.
I just hate always trying more medications and wondering how you will feel or if it will work. Its a crap shoot.
Oh well...no choice in the matter.
Good luck with your upcoming protocol. I will say I was on the Mepron and Zithromax protocol. Just take it slow with the Mepron. It worked very well for me. Switched to Biaxin..it worked so much better than zithromax for me.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
But Lymetoo, I thought you wanted to take Mepron, Biaxin, Flagyl, Plaquenil, IV Tygacycline, IM Bicillin, Levaquin and 2,500 mg of Artesiminin all at once. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
As I've said before... we want to kill the disease, not kill us.
I would not take this many at one time. Any one taking that many pills for any disease would be sick.
I now know to do what my mind and body are telling me this time in treatment. My first time I was dumb enough to take everything the llmd wanted me to. AND was terribly sick vomitting, turning allergic to drugs, and had to have my gallbladder out because of so many strong drugs.
Ask yourself if you want to really do this. It doesn't take that many drugs to kill this.
Just my opinion.... but hey.. I want to live through this treatment.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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I will say, I agree with you. Sometimes you don't know which is worse the disease or treatment.
Well I guess thats when you know you are starting to improve. I was sooo sick that the disease nearly killed me. Literally. Now I am much improved since treating babesia but I still have significant periods where I am not well.
My doctors goal is to get me to 100 percent. He feels multiple intracellulars are very important.
Trying to give it my best shot.
But you are right we need to pay attention to our own bodies.
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Katrina, I have also been on heavy oral protocols like that. Took the meds with food and had no side effects/GI irritation. If you are already used to the first 4 meds, Plaquenil should be an easy add on. I've never herxed from Plaquenil, it only helps.
Good luck with your new protocol, hope it brings you to 100% wellness!
Posts: 5237 | From here | Registered: Nov 2007
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posted
Katrina, My llmd's that I've had want to get me to 100% too. My first one did this same type of treatment you're in now. And, as I said... I could not handle it.
My llmd that I have now also wants to get to 100%, and he's a microbiologist along with llmd, and yes, different drugs for different areas and all, but he (thank God) believes in killing the 'bug' not my organs. So, we're going slower and longer with it, and I'm living a normal life working full time within the treatment.
Just an FYI that we all don't have to think that more is good when it comes to multiple drugs at once.
I had all drugs listed on Dr. B's protocol the first time... hm.... I have been good for 8 yrs in between... and now back in treatment again. I was deathly sick the first time also... but most of the deathly sick came from all the drugs I was taking. I was in the ER and hospital more than home. Since I've been there done that... just letting everyone know sometimes a bunch of pills are not worth it.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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I LIKE your protocol. Just from a standpoint of what ABX is supposed to target certain co-infections, I feel like that's a really good combination.
You'll have to let us know how you're doing in a month or so on the protocol.
I'm assuming your doctor had to readjust your dosage of Rifampin and Malarone, because they have an effect on one another.
But I took Omnicef a while back, for a "sinus infection," and it worked real well, and quickly....but I was under-treated.
Posts: 829 | From MD | Registered: Dec 2009
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posted
Thanks so much all of you. I appreciate all the information. I have been tolerating the 4 drugs so I guess I'm going to give the 5th a whirl.
I will let you know how it goes. I do agree that sometimes slower and longer works also. I think my doctor is reasonable and if I tell him this is too much he will back off. I just get nervous with all the drugs. I know that eventually my Dr. wants to back off the meds and lean on the herbals for maintenence.
Wolfed Out I did make slight adjustments to the Rifampin and Malarone. I've been treating the babesia for 2 solid years. I'm on 3 malarone daily and not the full dose of Rifampin. I'm at 450mgs daily.
Just hoping the plaquenil helps to give me that extra boost.
quote:Originally posted by seekhelp: But Lymetoo, I thought you wanted to take Mepron, Biaxin, Flagyl, Plaquenil, IV Tygacycline, IM Bicillin, Levaquin and 2,500 mg of Artesiminin all at once.
I would have no stomach left in two days.
I lost my gallbladder either to Lyme or to Lyme treatment. And I only took 2 of the above at the same time!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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