posted
Morning to all! I've posted once before, it's been awhile. I've been pretty overwhelmed with a diagnosis of late stage lyme, and decided the route I want to take.
My husband also has shown symptoms of lyme disease. He just had the blood test, and we'll know shortly whether he has it as well, or not. He started having shaking problems and twitching about 14 years ago.
No doctors could figure out what was wrong with him. It's gotten worse over the years, till he's disabled now. Finally a doctor told him he has a myoclonic form of Epilepsy.
We were at our regular doctor's to have him tested for lyme. He has infection in his gums, as well as a skin problem on his hands. He was given Amoxycillin for his gums, and Prednisone for his hands. The only other medicine he takes is Lamactil 400 mg daily for the "Epilepsy", he's been taking it for months, slowly building it up, it does NOT work.
The day after he began taking the Amox. (500mg 4x daily) and Prednisone (20mg twice daily to taper off), his more severe twitching stopped! Of course the first thing I thought of was the abx. - could Lyme disease be causing his "Epilepsy"?
We are waiting to see how the rest of the 10 day dose of Amox. does, if it continues to help him, and also the test results, although we know that it's a 50/50 chance of an accurate result. He still shakes (like parkinsons), but the severe twitching that always comes when he is working or exerting himself has just about stopped, beginning the day after he starting taking the Amox and Prednisone. This has never happened before, except when he took Depicote for a short time.
Any ideas or input would be great!
-------------------- "Rapture...the only way to fly!" < Posts: 5 | From NW Pa | Registered: Sep 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
If I remember correctly, Prednisone is a steroid which is terrible for someone with Lyme to take..
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Be sure to open the last link... It contains several important links, including one with a symptoms list of Lyme and its coinfections. You or your husband could have one or more coinfections.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Thanks for the quick replies! So I think I can assume I'm not overreacting about the abx. helping the twitches... . We'll keep going, and see what's happening. I'm glad someone mentioned about the Prednisone - the doctor has me on it, too, for a couple of weeks. I think it was for inflamation, and because I'm having the cognitive trouble, but it's not helping, and the dose is almost finished, so...
I was shocked to hear that others on here have the Myclonic issues. Now, here's the strange part, lol - my husband is from Mexico - and his mother and his uncle have the same symptoms as my husband! I should say, his mother had, she passed away a few years ago from the myoclonus, it progressed into seizures as she got into her 70's and eighties, and they eventually were too much for her, she couldn't get medical help, and she died from them.
So adding that info, could they have all had Lyme disease - I know that it is in Mexico, so I think it's possible - just like my husband and I both have it(we're assuming he does have it, I've already tested positive), and now we're worried about 2 of our grown children.
I will definitely look into the link for the coinfections - I'm following Steven Buhners protocol myself, because I don't think we will have the wherewithall to afford a LLMD. Unless insurance would cover it with a referral? Otherwise, we're on our own, pretty much. Buhners book does talk alot about coinfections, symptoms, and what to take for them, I just have to try and wrap my brain around it, lol, that's hard to do these days!
Even if my husband tests negative, we may still start him on the same protocol, and pray that we are on the right track. There isn't anything else we can do, but God is in control, and that is comfort in itself!
-------------------- "Rapture...the only way to fly!" < Posts: 5 | From NW Pa | Registered: Sep 2010
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