lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Went to eye dr. yesterday. Hospital I was in a few weeks ago suggested I go to eye dr. He saw
nothing out of the ordinary. I've been seeing floaters for so long and my right eye has been
seeing blurry. About 5 days a few weeks ago I couldn't think of any words, thinking its all
lyme. Eye doc asked me why I didn't follow up with neurologist. I wanted a script for an
MRI/MRI which she did for me and shows the lesions. She's not lyme literate and wasn't
convinced it was lyme. Never went back to her, wants a spinal. Eye doc told me yesterday he
strongly suggests I follow up with neurologist because its possible I have a neurological
disorder that can cause permanent disability (he told me brain damage) and even death. Called
neurologists office and my llmd who got a copy of the neurologists report and it states nothing
about what he's talking about. Maybe from the exam and my symptoms? Got a copy of his notes and thats exactly what he wrote. I've been so numb for so long, didn't phase me, took
a .5 and made an appt. with neurologist for Tue. Wouldn't it be ironic if all this time it
was something other than lyme (even though I've been so positive for so long) that was
overlooked. After 6 mos of being negative, doing iv and I tested positive for bart, 2 strains.
Not thinking like myself, but routine doing,feeling no identity hoping it will come
back like it has before. Just took cat scan in hosp two weeks ago when I was put in for low
salt. On 4,000 mg. of salt a day to keep it up. OCD is over and beyond and I live on
xanax. Too many psych symptoms going on to know what its from. I know God gives you what you
can handle, keep saying it could be worse and God give me the strength. I love my family and
want to get back mentally to them, its been so long. Thanks for the ear.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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jess22
Unregistered
posted
Sorry you're being put through the ringer, sending positive thoughts your way!
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Does your LLMD think you need to see the neurologist?
Lyme causes MS and lesions. That's no secret. A spinal tap is not necessary to dx lyme but your LLMD really should guide you with whether or not a neurologist could offer any other detail.
And, still, it would be good if your LLMD thinks you need a neurologist for that neurologist to be lyme literate.
How else would they be able to offer you proper diagnostics unless they know how to distinguish lyme from other possible conditions? They couldn't. They simply would not be able to offer you proper advice as they'd be missing key information.
They MUST be lyme literate to know what they are looking at regarding all the possible differential diagnoses.
Now, if your LLMD has you on a good treatment protocol and is addressing the eye issue, just tell your eye doctor that. There is plenty of literature linking all sorts of vision and neurological issue to neuroborreliosis at the root of such issues.
Don't let worry run away with you. It can do that for all of us. If you have a good LLMD, and if you are doing the best you can, just stay the course. With good guidance from your LLMD, you are the person driving this bus, don't let worry take the wheel.
Say to your worries "thanks for sharing concerns, now, please take a seat in the back of the bus." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Hope you find your way.... Maybe see if there is a Lyme Literate Neurologist in your area?? Don't despair. It's a rough patch, but you can get through this. Be well, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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