randibear
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posted
my head always itches alot. then i scratch and get like sand and i can feel scabs and get very small blood like umm, pieces. sort of like dried blood but it's not.
i also get small gritty stuff like sand only i know it's not sand.
what is this stuff?? common with lyme??
i've tried every shampoo on the market and nothing seems to help this or my hair falling out.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lululymemom
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posted
I've had this too.. I always thought it was due to the exzema that I was dealing with but this really wasn't anything like that.
I'm not sure it's common with Lyme but I found the only thing that helped me was Nizoral shampoo. You can buy it in any drug store,(hopefully you have it in the States).
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Pinelady
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posted
I think the grit is calcium. Borrelia form biofilm from calcium.
If it surrounds them as we kill and they are close to the skin I do believe the body will try its best to kick it out as if a splinter.
I hope it is not actual bone necrosis, but I suppose it too is possible.
I have used coconut oil---grease up and leave on all day----then wash and rinse in lemon juice.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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ukcarry
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posted
Randibear, I have had this [both the sand-like stuff and the bumps/scabs on the scalp] over the time I've been ill, although it's not so bad at present. It's worse at the back of my head, lowdown and if I've been using a lot of certain products on my hair. At least it's not too itchy at the moment.
When it started, I thought that it was hair-related, but now I assume that it's part of detox, but is aggravated by certain products.
I like the sound of the coconut oil treatment.
Posts: 1647 | From UK | Registered: Nov 2008
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mojo
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posted
I get what I call "hurty bumps" on my head during certain treatments - when I was on Cumanda and also when I do some "natural" drops or parasite treatment. I think it's die off.
Mine feel like large pimples - they are very very tender, grow as big as a large blemish and then go away. Then they come back.
Posts: 1761 | From USA | Registered: May 2006
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glm1111
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posted
I know I keep repeating this ad nauseum, however, I have/had the same scabs/lesions and they are almost gone due to the extensive antiparasitic treatments I have done.
I know for sure that they are parasites because they have pushed through my scalp and I can see the shape(detox pathway). They will keep coming up to the surface and retreating until they find a way out or die.
I have never tried this but Humaworm makes a medicated cream specifically for this that you may want to try.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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17hens
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posted
Randi,
This has been happening to me too for the past 2-3 months. It started with a "pararid" tea that I drank 1 time and had a huge breakout all over my head. But after 2 weeks it slowed down but never stopped.
Mine is also mostly on the back bottom of my head.
I'v only been on Cipro and Biaxin for the last 5 weeks so now I don't know what to think.
I'll tell you what, girl, you aren't afraid to ask personal questions, are you! I haven't had the guts to ask about my itchy, scabby, sandy head to even you guys. Or maybe I haven't had the guts to hear the answer.
Gael wrote, "I know for sure that they are parasites because they have pushed through my scalp and I can see the shape(detox pathway). They will keep coming up to the surface and retreating until they find a way out or die."
But why would this be happening if we aren't treating parasites?
Gael, I'm sorry I'm so dense. And you have been so patient with me over the months. I appreciate it, really.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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glm1111
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posted
17hens, You asked,
"Why would this be happening if we aren't treating for parasites?
Because we are infected with them, just like we are infected with lyme and Co. It's possible that some of the abx can be irritating them and they are looking for a way out.
I have read on previous posts that doxy can kill the baby Filarial worms, but not the adults.
It's interesting to note that some of you have the scabs at the back of the head (I have had these in the past) because the lymephotos site discusses this phenomena at the base of the skull as being the storage area for these worms. I hope this helps clarify
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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randibear
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posted
listen, honey, i've been on this board for awhile, so i've learned to just spit it out and hope for the best.
most everyone knows me here very well and what i go through. they know i have absolutely NO support and no one to talk to except this board.
they have been a blessing and a godsend, every last pea pickin one of them.
i figure i am among very best friends and with friends, you can ask anything and not be made to feel stupid or anything else.
god bless every one of you.
and i'll keep coming up with those questions, because hey, look, i know somebody else out there might have the same problem, and no matter what i ask -- they do!!!
besides i'm 61 years old now and nothing bothers me anymore!!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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17hens
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posted
love ya, randi! you go, sister!! (head scabs and all)
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
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posted
are you still visiting your sister?
(not to change the thread 'cause i'd like to hear all i can about head scabs too...thank you Gael!)
hoping things are going a bit better for you.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
I have these too...I think Gael is right. I too have them at the base of the skull and would think the spinal cord would be a reason as it is present there too. I notice even when I do lemon water detox i start getting them.
So i feel it is detox ing issues with the parasites. I think we need to address parasites too and many docs don't.
There is a doctor that is a specialist for detecting parasites and has his own lab....but I can't find it in my files...does anyone know who this is?
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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randibear
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posted
i'm leaving on the 13th of september and coming back on the 27th.
she's having catarack surgery on one eye and then a week later on the other eye.
so i'll be in north dayton for awhile, cleaning house for her and chasing 5 cats!!
and yep, i'm thinking of doing humaworm.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymeboy
Unregistered
posted
I get alot of "sand"and grit....as well....I have also gotten the increasing sensation of being bit al over my body by tiny insects. I am guessing this is a neuro thing...it feels like a flea bit, and they typically concentrate in the same area, though they happen everywheer, but commonly in one spot...MADDENING. Anyone have this?
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glm1111
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posted
I just have to add that I have been putting a poultice mixture of mixing yogurt with milk and putting it on my head. The lactic acid drys them out. I put some paper towels under my baseball cap and I am good to go.
I can't wait until they are all gone so I can take off these dumb hats! This FREAKIN DISEASE is a MESS!!!
Hope everyone gets well soon.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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randibear
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posted
um. yogurt and milk on your head? uh huh...
if you tell me you wrap it in aluminum foil and get the sci-fi channel i'll crack up....
no seriously, i believe you.
i had somebody tell me they used mayonnaise on their head and it seemed to help.
i bought nizoral shampoo and am trying that.
i swear i'm digging and scratching like an old dog...you'd think i had fleas or something....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
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posted
Oh Randi you must be psychic! I wrap the tinfoil around the brim. I am trying to signal a ship to come pick me up.
I think they did already because I swear one of the bumps behind my ear is an implant!
You are so funny with your digging and scratching comment. Where did you get the rizoral shampoo?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I get little things on my forehead almost like pimples. I've read that can be a vitamin B deficiency. Mine area almost gone now and I do supplement vitamin B.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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IckyTicky
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posted
I have this. I'm amazed that someone else described it so accurately. I thought I was the only one with this issue.
It is worse some times than others, and it is definately not dandruff and the like.
It's like grit! And nothing I do really makes it go away.
I find myself constantly scratching with my fingernails in my hair trying to get the stuff off my scalp, but it never seems to end.
Mine is worse around the ears and sides of my head. I have no idea what it is but the person who mentioned calcium caught my attention.
I do have higher levels of calcium and even had a parathyroid tumor removed.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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randibear
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posted
i went to walmart and bought a neutrogena theraputic shampoo.
it has coal tar in it.
reminds me that i asked my mom about it when she was alive, and she told me that long time ago (in the good ole days), when people had head lice and such, they used coal tar to put on their heads.
now ya'll have to understand my people were coal miners from kentucky and tennessee. they lived in what we used to call "hollers". some of you might recall that term. it's an old mountain word meaning a valley back in the mountain.
now these mountain people used all kinds of natural cures and all, and coal tar on your head was one of them.
well today it's put in shampoos to treat head and scalp conditions.
you can't use it every day because it's pretty harsh. so once a week or so. i'd say no more than twice a week.
can't hurt.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I have the "hurty bumps" on my ears. I can't even got a doctor to feel them.
One LLMD told me they are inflamed lymph nodes and to put a hot pack on them. He said the area around the ears has lots of lymph nodes. This made sense that it was lymph nodes because the other ones in my groin and armpits are giant like marbles.
Hot packs did NOT help.
Posts: 192 | From Dwight, IL USA | Registered: Mar 2007
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posted
Nizoral works very well for most scalp issues. I keep it on hand.
lymeboy... the bumps could indeed by inflamed lymph nodes. I used to have them too. My doctor knew they hurt, but had no clue what to do about them....
hmmmm... however, he was the first dr to recommend Nizoral shampoo to me! I think it did help. (this was many years ago.. had Lyme then too)
You can find it at Wal Mart.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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glm1111
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posted
Randi,
That's so interesting about your background. It reminds me of the way Dolly Parton relates to her family. I think old timers had some really good home remedys.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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17hens
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posted
One of my all time favorite shows is the Waltons. There were people on that show who lived in hollers.
Think I'll go watch Liv and John and the gang while I scratch my itchy, bumpy head.
All kidding aside, this is an interesting thread.
Randi, glad you've finally reached an age where nothing bothers you! I'm gittin' there, I'm gittin' there!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Leelee
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posted
OMG! This is a new-ish symptom for me too and it seemed so impossibly weird that I have never told anyone about it.
Thank you so much, all of you, for sharing as once again I thought I was imagining this craziness.
The top of my head has little sand-like things stuck into it. I can scratch them off fairly easily, but more keep "growing". They look like tiny blackheads or itty pieces of rice, but are very small and hard to see well once extracted.
The corresponding problem I have is what others have mentioned -- the itch at the back of my head. It is maddening, but there are no sandy things there. Only constant itching.
My hairdresser hasn't noticed anything, so I decided I was yet again crazy.
Thanks for writing about this.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
My itchy head was worse at night and drove me crazy...mostly at the back of my head at the hair line.
Acutally any hairline was always itchy!
After 6 years of aggressive treatment and detoxing it has finally gone away!
I am still on treatment and it comes back faintly during a herx.
I also get the "bumps" on my face, escpecially on the forehead. They feel like an open sore that I never scatched as they burn from soap or even water.
They start out painful like a zit but never comes to a head and then it seems like they would pop on their own.
I always figured it was something trying to get out. I also had them on my upper arms.
Keep treating lyme & co and detox!
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
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mojo
Frequent Contributor (1K+ posts)
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posted
quote:Originally posted by sixgoofykids: I get little things on my forehead almost like pimples. I've read that can be a vitamin B deficiency. Mine area almost gone now and I do supplement vitamin B.
Six or anyone - I only take B-12 - I could use a recommendation for B supplement. I have these on my forehead, too. I did notice they almost went away when I did a few days of Activated Charcoal, not sure if it's coincidence -
Posts: 1761 | From USA | Registered: May 2006
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posted
i get the bumps, sand, itchy scalp thing too. it seems to get REALLY bad when i wear a hat outside and my scalp sweats. as soon as the hat comes off i scratch like mad!
i also have gotten little bumps, like heat rash on my arms. they're not red and don't have white or black heads so i wouldn't say they're body pimples. anyone else have that?
i'm a little confused about the remedy though. if they are parasites, is the shampoo and home remedies alone enough to kill them? do they die off during abx treatment? or do you have to take an anti-parasitic?
also been having a lot of hair loss Posts: 95 | From IL | Registered: Jun 2010
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posted
Okay....been here for almost two years and never brought it up but I have this to...the meds i'm now target the blood brain barrier and low and behold my forehead is a mess.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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IckyTicky
Frequent Contributor (1K+ posts)
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posted
Being from Tennessee and growing up in an actual "hollar" (yes, we actually called it that) I can so appreciate that
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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randibear
Honored Contributor (10K+ posts)
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posted
i was born in oneida, tennesee, and my family is from tennessee and kentucky.
mom was born in domino kentucky and my dad ws born in hazard.
my grandparents were in robbins, tennesee.
our history goes back to long before the civil war.
and yep, we actually had "moonshiners" in our family.
i have a lot of really interesting stories to tell. mom and i got to talk alot about our family history so i know all the old stuff.
we had ancestors on both sides....
so you'll find i still use alot of the old expressions.
they're comforting.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
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posted
catdog,
The shampoo and home remedys alone are not enough because the parasites are systemic and have dessiminated from the top of the head through the G.I. track to the bottom of the feet.
Taking antiparasitic herbs have helped me the most. Coconut oil is also good to take as well. There is a lot of info in the archives about parasites and tx.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
thanks gael for the info! i'll make sure i bring it up to my LLMD next month Posts: 95 | From IL | Registered: Jun 2010
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Remember to Smile
Unregistered
posted
Just looked at this thread, as I'm getting little forehead bumps now with a few stray grains of sebaceous sand...
My dermatologist declared "Rosacea" a couple yrs ago, but that was due to redness about the cheeks.
A friend who's not treating for Lyme or anything may have Rosacea (common, fungal) or SLE (autoimmune, serious). Experiences major itchy forehead & nose, and looks pink & inflammed much of the time now.
Have any of you looked into or been diagnosed with either of these?
Overall, our hard-working sebaceous glands may not be getting enough respect.
Found this descriptive info on a web page focused on the origin of words:
* * * * * * * * * * sebaceous having been obstructed and the secretion accumulated, this being accompanied by overgrowth of the epithelial lining of the sac and the surrounding connective tissue.
Sebaceous gland, crypt, or follicle, a cutaneous acinose gland of small size, opening usually into a hair-follicle, and secreting a greasy substance which lubricates the hair and the skin.
Such structures are almost universal among the higher vertebrates, and of many special kinds, though all of one general character.
In man they are especially notable on the face, being represented by the pores in the skin, which when stopped with a morbidly consistent secretion produce the unsightly black specks called comedones.
The Meibomian follicles of the eyelids, the preputiiil follicles of the penis, the anal or subcaudal pouch of the badger, etc., are similar structures. The rump-gland of birds is an enormous sebaceous gland. (See elfeodochon.)
The mammary glands are allied structures, and apparently derived from sebaceous glands.
The scent-glands of various animals, as the musk, beaver, civet, badger, etc., are all of like character. They serve to keep the skin in order, attract the sexes, repel enemies, etc. See castorV, civet*, musk, and cut under hair.
Sebaceous humor an oily matter secreted by the sebaceous glands, which serves to lubricate the hairs and the skin. Also called sebum, sebum cutaneum, and smeffma.
Sebaceous tumor A sebaceous cyst. See above, (ft) Same as pearl-tumor.
posted
I get it but only when I'm on certain meds..
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
just went to get a haircut.
asked about the thinning hair, he said use zinc and biotin (which i'm already doing).
asked about the sand thing. he said t-gel once a week and stop scratching... easier said than done.
i'm not on any meds cept olive leaf right now and vitamins. so here's hoping the hair thing will straighten out.
i did use the t-gel on sunday and it certainly seemed to help with the itching, so we'll see.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Wow, y'all! I'm new to the forums here, but I've had this scalp problem for many, many years. Fascinating to consider that it may be the Lyme.
Do you also get skin boils? I get these cysts and boils on my back, my neck and sometimes my face; smaller ones on my calf muscles. It's not acne. It's boils. Could it be Lyme?
I have only recently begun to research Lyme and I have most of the symptoms. I keep reading "cysts" and I can't figure out of those are skin cysts or just places where the bacteria like to hide in clusters or something.
-------------------- Funky tick bite ~1986 Home schooling mommy of 4 little ones. Posts: 15 | From West GA | Registered: Jul 2010
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posted
Oh, and yes, I get these scalp bubbles too. And "sand". I never knew what it was.
-------------------- Funky tick bite ~1986 Home schooling mommy of 4 little ones. Posts: 15 | From West GA | Registered: Jul 2010
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by Leanne: Wow, y'all! I'm new to the forums here, but I've had this scalp problem for many, many years. Fascinating to consider that it may be the Lyme.
Do you also get skin boils? I get these cysts and boils on my back, my neck and sometimes my face; smaller ones on my calf muscles. It's not acne. It's boils. Could it be Lyme?
I have only recently begun to research Lyme and I have most of the symptoms. I keep reading "cysts" and I can't figure out of those are skin cysts or just places where the bacteria like to hide in clusters or something.
I can only speak for myself and yours maybe something different than mine, but I have similar skin problems. My LLMD said it is bartonella. Who knows, though. Lyme can do weird stuff too.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Randi Leave it up to you to start this topic. Now we are all scratching !!!
Yeah, I get the head itchies, nose and forehead and at night if I lay on my stomach for a short while, my lips and chin itch. What's with that???
Excuse me a while, I have to go scratch some more.
Good topic.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
why, thank you, thank you very much.....
i'm a mindreader ya know. but with lyme, it's amazing. sooner or later someone will mention something and lo and behold, alot of other people are going through the same thing.
well, at least we're not alone huh?
oh, here's a tip from my llmd (well the one i USED to have).
use dial soap. apparently it's antibacterial and will help with boils, acne, etc.
so now i use dial soap in the shower.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
My tongue itches. I've chewed on it for years. And the area right in my bangs. And right in front of my ears. And my back itches. Will somebody come scratch my back?
-------------------- Funky tick bite ~1986 Home schooling mommy of 4 little ones. Posts: 15 | From West GA | Registered: Jul 2010
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posted
"my head always itches alot. then i scratch and get like sand and i can feel scabs and get very small blood like umm, pieces. sort of like dried blood but it's not.
i also get small gritty stuff like sand only i know it's not sand."
I have this exact thing too plus the "hurty bumps" and was told it was related to iodine by an alternative practioner...after reading this whole thread...I think not.
Amazing how these oddball symptoms you deal with turn out to be part of this. Who knew?
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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posted
oh and I found that when I apply tea tree oil it helps a lot...only to the individual spots.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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posted
I used to have all kinds of issues with my scalp...scabby, itchy, painful bumps, and yes, mostly at the back of my head near the nape of the neck, along the brain stem, and behind and above my ears.
It's mostly gone now after years of systemic antibiotic treatment and topical treatment with all kinds of things, from Farah's Lymessence essential oil, ozonated olive oil, coconut oil, Venex bee venom ointment, metronidazole (Flagyl) cream, and various and numerous herbal tinctures/remedies. They would all make me herx.
Before Farah disappeared/quit making her Lymessence oil, she told me that she believed that it was key to her improvement that she massaged her entire scalp every night with the Lymessence oil. I haven't been disciplined enough to do it every night, although I did do it for quite a while.
I agree with Gael in that I believe all of it represents bugs, both bacterial and parasitic, trying to get out of our bodies/brains. I think it's an indication of how overwhelmed our bodies are with the infection.
Patti
Posts: 975 | From California | Registered: Apr 2007
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posted
patti makes sense that it is evidence of overload. I am definitely working towards detoxes. Been reading the thread on detox.LLND has me on some measure of that...but i can tell more is needed. I have massaged my scalp with tea tree oil for some relief. Also helped a lot by a shampoo that had aloe (in place of water), tea tree, rosemary and a few other. I had stumbled upon at TJMaxx and trying to find again. Edited to say I found it at iherbs.com-cheaper. Giovanni's .
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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