posted
Thanks! Does she continually stay on the Pekana as long as she is taking abx?
Our LLMD didn't mention Burbur, what does that do?
Posts: 166 | From USA | Registered: Feb 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Burbur is part of the Cowden protocol and it helps with the herxes as well as supports the liver. I am hoping to keep her on the Pekana for as long as she's on abx which could be another 2-3 months. She's already doing quite well..
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I take NAC 1200mg twice daily, ALA 300mg once daily, Pekana detox drops once daily, and Bupleurum. Supplementing with whey protein will also help your body produce glutathione and support the liver.
Posts: 5237 | From here | Registered: Nov 2007
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Nac is good as well, however, I have heard that ALA should be avoided when taking Mepron. That and CoQ10..
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A few different thoughts from different sources ================================
Some infections can cause Hepatitis of the liver. Some infections can cause the more serious liver condition of cirrhosis.
Some medications can also cause Hepatitis. Some medications can also cause cirrhosis. Some OTC (over-the-counter) products can also damage the liver, as can too much bad fat in the diet.
For all these reasons, it is essential to consider liver support. That can be achieved in a variety of ways.
NAC is one that is often used with Cpn treatment.
Cpn (Chlamydia Pneumonia) can become a chronic stealth infection. It is similar in difficulty regarding treatment with some of the same concerns with protection and supporting the liver both from the toxic infection and also from treatment with combination Rx. From the main website ( www.cpnhelp.org ):
. . . "Surprisingly, the only anti-chlamydial agent that did not cause hepatitis in some patients was NAC. In fact, NAC is recognized as being protective. . . .
. . . My conclusion is that NAC should be the first agent in an anti-chlamydial regimen and should be a constant part of the therapy for this protective effect, not to mention it's effect against elementary bodies. . . .
Do read my older posts before taking NAC. I learned this during my healing journey from Dr.K. several years ago
Several studies have shown that all the sulfhydryl-containing amino acids can redistritute mercury to other body compartments.
Following the law of osmosis, we separate the body into two parts:
1. the brain 2. the rest of the body
They are separated by the blood brain barrier. If you have a lot of mercury in the lower part of the body, it may cause very, very few symptoms. If you have a tiny amount of mercury in the brain, it causes a hugh amount of pathology.
What happens when you swallow N-acetyl cystine, it first contacts the gut mucosa which is loaded with mercury. It picks up the mercury there and then it kind of goes through the lymphatic system and the immune system and picks up more mercury in the endothelium; but the brain sends a message that it needs cysteine for functioning, so the cysteine then drags it in its tail. It's used as a shuttling agent. It drags with it the mercury back into the brain.
Only if all the areas besides the brain have been cleared of heavy metals is NAC safe to use. None of the agents are bad if given at the right time, in the right sequence, together with the right co-factors and in the absence of things that disturb the process. Your doctor should know how if he/she is familiar with heavy metal detoxification.
Be very careful with NAC.
Take care. (GiGi)
============================
LIVER SUPPORT is vital and can be achieved in a variety of ways. 3/4 of the way down page one in the thread below, see many links explaining how the liver works - and what can help when it is under severe stress:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
===========================
Each patient is best with treatment individually designed.
If at all possible, if one's LLMD is not educated in supportive techniques, it would be an excellent idea to consult an ILADS-educated LL ND (naturopathic doctor) - or someone with similar post-graduate medical college training -- and experience with lyme treatments. There are some herbalists, DOM (doctor of Oriental Medicine), D. Ay. (doctor of Ayurvedic Medical), etc.
Many LLMDs have good working relationships with such - for more detail: ---------
posted
Thanks for all the response everyone, I am certainly going to look through each and every one!
Much thanks, God bless!
Posts: 166 | From USA | Registered: Feb 2010
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Hoosiers51
Frequent Contributor (1K+ posts)
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posted
I have heard that alpha lipoic acid is another no-no with Mepron, just like Milk Thistle.
I took a blend from a practitioner out here on the West coast for the liver, that had artichoke and sarsaparilla in it.
Posts: 4590 | From Midwest | Registered: Jun 2008
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
We've only had my daughter taking lemon water to help with detoxing Mepron and Zith. In week 16 now and while we've had a few minor issues (like not using lemons a few times and fell behind) we've been able to control it pretty well.
Typically use 1 & 1/2 to 2 full lemons a day (squeezing into a water bottle).
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
My ND initially recommended this dose of NAC for liver support. I later learned about the importance of NAC supplements while treating CPN. This is one of my coinfections so I feel that it is doubly important that I continue the supplements.
I guess that this is one area where you have to trust your practitioner.
Posts: 5237 | From here | Registered: Nov 2007
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posted
Hoosiers, does that mean you have to stay away from spinach, broccoili, peas, etc...or just the suppliment? Good to know
Tim, thanks, I tried that last night and seems to work quite well for her and me (I am taking Mep/Zith). She on the other hand is on Mino/Zith.
Sammy, what particular brand and dosage of NAC should I take? What's CPN? Her practitioner doesn't believe in suppliments and unfortunately I cannot afford to call mine for questions (had to quit my job & 2 kids with Lyme).
Posts: 166 | From USA | Registered: Feb 2010
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posted
Sammy disregard the dosage question..just realized you had already posted that above (Lyme brain, ugh!) Brand would be helpful though, lol
Posts: 166 | From USA | Registered: Feb 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I like the Jarrow Brand "NAC Sustain", it is slowly released over 4hrs, gives your body more time to use it. Each tablet is 600mg. You and your daughter probably only need to take 1200mg per day for liver support.
It is usually cheaper to purchase your supplements online instead of local health food stores. My favorite is iherb.com, I've heard that vitacost is good too.
CPN is an infection that can be chronic like Lyme. The acute form causes pneumonia. Chronic form can cause MS type symptoms. It is treated with a combination of antibiotics similar to our Lyme treatments. This site is a great resource if you want to learn more: cpnhelp.org
Posts: 5237 | From here | Registered: Nov 2007
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posted
Thanks Sammy...I'm going to look that up! I have used Vitacost and they were CHEAP and FAST! Though I have also heard great things about iHerb too. I looked at the link you shared, thank you. It sounds very similar to Mycoplasma Pneumoniae which is what my daughter has additionaly. How did you know you had that? Is it as clever and invasive as Lyme?
Great to know hshmb! There are so many in's and out's..it's great to know there are other options. Do you feel ok while on it? Do you take it 2 hours after abx as well? Oh, and are you treating the Babs first or was it Bart? I have both too and just started treatment for Babs..
Posts: 166 | From USA | Registered: Feb 2010
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posted
Thanks for the heads up GiGi, that's so good to know...especially when you are dealing with a child too. I am going to hold out on the NAC until I can find a LLND and have us tested for metals, unfortunately, there are none around here, that I know of anyway. Ugh. Posts: 166 | From USA | Registered: Feb 2010
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posted
I do take away from antibiotics, but my dr did not specifically tell me to do that. I felt no physical change when I started; but I do feel better knowing that I am doing something to protect my liver while on Mepron. I am treating for Babs first. I don't know if that is standard or if my dr chose that because I was positive for Babs and borderline for Bart.
-------------------- Bit - years ago, Dx 07/10 Igenix/CDC IgM +, Igenix/CDC IgG +, Babesia Ducani +, Bartonella +/- Posts: 14 | From Nor Cal | Registered: Aug 2010
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