Topic: Asacol Rx question and can Lyme induce colitis?
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Hi all. I haven't been on the board lately; dealing with gut issues again.
Question: can Lyme (and/or coinfections) induce non-specific colitis? And how is colitis confirmed? I had a colonoscopy and endoscopy w/biopsies last Oct and both came back OK except for "inflammation in the antrum" (area leading from stomach into small intestine).
A GF diet has helped me a LOT, but I'm still having flares where eating causes intense pain for weeks and I loose a lot of weight during that period.
My LLMD recently suggested trying Asacol to calm down gut inflammation. Although I am severely allergic to sulfa, apparently Asacol is the more "active" part of it's precursor that DID contain sulfa. Seems that it is truly sulfa-free, but, just to make sure, has anyone with a sulfa allergy had problems with it?
Thanks heaps!
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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I have a sulfa allergy and crohns. I have been on asacol with no problems. Before I knew I had Lyme I was on remicade , prednisone, and then humira I got horrifying neurological problems. I can totally relate to your symptoms my inflammation is mostly in myterminal ileum.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Awesome! Thanks muchas, GG.
Edited to add: Not "awesome" to your Crohns and pain of course. Hope it's getting better.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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The pain with eating is getting better!!!! Feel better.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Gatorade girl, Is there something in particular that started you turning the corner? Or a string of somethings? Could you elaborate a little bit? Thanks!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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I think was a string of things....gluten free diet, I eat small meals, I don't eat anything chilled...it sets me off in pain, antinausea medications, iv fluids, treatment for Lyme, asacol, paleomeal shakes, consistent taking of both probiotics and saccrymycees boulardii. I hope that helps. I have had the diagnosis of crohns for 22 years. It seems to be getting with Lyme treatment. I never was on a gluten free diet until July and it helped turn the corner. I also avoid my food triggers....everyone is different, but I have problems with garlic, and spice.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I'm in the same boat Gatorade Girl is/was in. Only I use Pentasa, since it's not my large colon that's facing the majority of inflammation, it's the small bowel.
I have used Asacol though. I also used a lot of the other drugs mentioned prior to my diagnosis with Lyme Disease.
To this day they still do not know if they are separate conditions or not. I think they "are the same."
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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Hope it's getting better.
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