posted
I'm in the 3rd week of this new protocol. The first 2 days, I take, among other things, biacin and avelox.
A day nearly FREE from brainfog...OMG i had forgotten what it is like to have a normal brain! This has given me such a charge to keep going.
Also, nearly free from physical pain...well...just a wonderful "supergirl" kind of day
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is wonderful. I hope you continue to stay feeling so much better. I don't think I have heard of biacin. What is it for?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Great news!!
Keep going and you will get to the finish line!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
How wonderful. I hope you have many more brain fog-free days!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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lyme in Putnam
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posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
yes, biaxin I guess is the spelling THank you for the good wishes!!
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
still getting better... it's the most incredible feeling... the various symptoms ...it feels like an "evaporation"... liek the physical pain is evaporating, the brain fog...fading away...OMG thank you jesus
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
I'm now on day 3 of the 3rd week. I have been crying on and off all day... because I am feeling better!
This morning, I woke up and had NO SORE FEET! and, my hands and feet were not swollen....I can't believe it.
I know now that I have been sick for a loong time and just wrote the symptoms off to other things. My brain is coming back and my body... I am feeling alive again... life is coming back and I would pay someone a million dollars for this return to life!
Thank you for all of the support...keep the faith and don't ever give up hope.
I have no idea if this protocol is the real thing...but, it gives me something to guide me..
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Its wonderful when that happens---keep up the good fight.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is so wonderful. Just biaxin and avelox? That is one to remember!
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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-------------------- HAVE FAITH Posts: 27 | From Phoenix | Registered: Nov 2009
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Remember to Smile
Unregistered
posted
quote:Originally posted by supergirl: ...I have been sick for a loong time and just wrote the symptoms off to other things. My brain is coming back and my body... I am feeling alive again... life is coming back and I would pay someone a million dollars for this return to life!
Thanks for sharing your good days with us. May you joyfully continue the climb (without air hunger!). Smile
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posted
thank you so much everyone for your good wishes. I am so grateful to have these good days to guide me to full recovery.. and yes, hopefully without stupid brain fog and air hunger
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
Wonderful! Im so jealous! Not really...im very happy for you. Heres hoping for continued success!
Posts: 624 | From Oklahoma | Registered: Jun 2010
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posted
I always like to keep notes on what works for some people what is your doseage of Biaxin and Avelox? Also keep us posted how you are doing in the future. Congrats for feeling better.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
^
Posts: 133 | From Philly/NJ | Registered: Nov 2009
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
Supergirl...
A hint as you are now finally feeling great.
learn about binders here on lymenet...so you keep your supergirl powers! And continue to stay feeling great.
Binders will catch the die off that occurs with biaxin or other killing meds. Die off feels like lyme symptoms again. Can be confused with lyme symptoms...so you want to keep them all away! Candida/yeast and fungus develop from use of antibiotics which give brain fog symptoms!
A few to consider are cholestrymine(a script from a componding pharmacy so no fillers are in it)
OR chlorella (health food store), or apple pectin powder to add to your food...will catch some.
Charcoal is great...but will rob you of your minerals and vitamins if used regularly...
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Please report back if you think this has "cured" your bart. That is you get off treatment for bart and do not relapse. I am so tempted to try one of the fluroquinolones (sp?) again but probably shouldn't. Maybe next year when all else has failed - and I am getting to that point that I don't know what else to try.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
How did supergirl respond on other quinalones??? Anyone know?
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
So what about the prolonged QT interval issue here?? I posted on this today on another thread.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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