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It's almost 3 months that I was doing good with no cold feeling on legs and arms.
Most of symptoms gone except burning and twitching and allot of hope of wining in this struggle.
Today I just went through a cold filing almost shaking for one hour.
Last days twitching is more frequent it was very rare not more than once ore twice a week and just small parts of muscles.
Anybody has this and what helped. Worried last time when I was cold just went down hill fast .
Posts: 482 | From Nebraska | Registered: Feb 2010
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Maradona, I had cold feelings like the chills on and off for several years prior to my diagnosis. I use to say I felt "fluey"
After treating for several months this went away. I did recently had a few chills out of the blue and wondered too "was I having a relapse"?
I'm on iv rocephin now and have had no "cold feelings" sence then.
I can only speculate that for me when I had the chills I was symptomatic again.
I hope you are able to figure things out. For me chills when you have no reason to feel them is not normal. hope this helps some.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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Maradona, I really can only guess as to what my "flare" was. I have been on "most" of the orals out there and these did take care of most of my symptoms, including the fluey feeling.
My LLMD I think I remember saying flu feeling was lyme, and not co- infection but everyone is different.
I'll pm you with dose of Rocephin.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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Cold feelings can be related to Thyroid disorders. Have you had it tested?
With Babesia you will get chills...
Twitching can be from too low Mag. levels...
Are you seeing a LLMD and in treatment?
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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