posted
Hi When I first went to my LLMD a week ago and finally got diagnosed with Lyme I did not have any foot pain but the day after I started having sore soles of my feet. I also have had way more CNS problems than joint pain issues like dizziness, ringing ears, blurred vision, spots in vision etc so I suspect bartonella
Anyway, my doctor put me on Zithromax and Flagly and I was just wondering if this would be adequate treatment for Bartonella if I do infact have it. Or should I be going back and telling him about the foot problems and getting on more adequate treatment for Bartonella?
hope you can help
Posts: 574 | From Out there somewhere | Registered: Jul 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When you have your follow up appointment you could ask him to give you something to work with the zithro against bart, like rifampin.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
Thanks..my follow up appointment isnt until November and I am wondering if my CNS problems are the worst should I be trying to get rid of those first if they are caused by Bartonella? Would I be wasting 2 months if I waited until November to see him?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I would call him for a phone consult. I believe it is a good idea to treat all the infections at once or the bart will get out of control. Hopefully your LLMD will agree to give you something over the phone - sometimes they are reluctant to treat you when they did not make the diagnosis in the office. But Dr. B says when CNS are out of proportion to other physical symptoms, suspect bartonella - and pain in your feet is a classic symptom. He should agree.
But I went to a LLND that refused to treat my bartonella saying she treats lyme first. Even though I had been treating lyme for two years and those symptoms were not present she still refused to give me anything. I never went back. I got the bartonella abx from the GP.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
My LLMD says Bart must be treated before lyme.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/