posted
Well that went about as expected. He was nice enough. Asked what was going on, so I told him. (he had all my records from my NP)
He said "I don't think it's Lyme, that would be cured from 2 weeks of Doxy". He said he "thinks" it is either tick fever, or Tulmeria, so blood tested me for those. Then he said if those are neg, probably a yeast infection. He scripted me Doxy for 2 months. I asked him what about the neuro symptoms? He said, Doxy. I said what about this horrific pain, can you give me something to help with that?
He said, I don't really do pain meds. He then said, I could give you some Darvocette, I said that won't even touch this pain. He said, I can give you TEN generic percoset (lowest dose) wow.. what a guy!
He suggested that I "mediate" because I can "mediate" myself better, AND he also said it was up to me to "mediate" a diagnosis~~ Any suggestions???
Posts: 41 | From Springdale Arkansas | Registered: Aug 2010
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posted
Wow ...what a freak !!!!!
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
Hope you have found yourself a good LLMD?
Nancy
Posts: 1487 | From New England | Registered: Oct 2000
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I'm sorry you went through that - the majority of us have, and it hurts every time to see someone else suffer through it.
I have NO idea what he is on about with "mediating" your diagnosis - unless it's his way of saying he thinks it's all in your head, which is usually their fallback diagnosis when they don't know the answer.
As for talking to him further, if you absolutely HAVE to, here's a very helpful paper supporting "long-term" Lyme treatment that you can download and print out for your ID Doctor if you ever see them again (or any other doc that might gain from the knowledge):
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
ChristieL~ If you are going back to him to get the results of your lab tests, ask him if he will test you for HHV-6 (code #40540) and EBV (code #2420)at Focus Diagnostics Lab, and ask if he will test you for enteroviruses at ARUP lab.
At least he was willing to test you for other things. Most docs won't give out pain meds. The fact he gave you some is quite generous. However, you need to find out the reasons for your pain, not mask it.
Good luck, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Thanks for your replies, I appreciate the support. I agree timaca, but to be really honest, I dont know how much more my body can take. Surely there is something safe I can take until someone "fixes" me. I don't know how others get through the pain. It feels like my body is exploding. I can't eat, I can't sleep, I can't think. I don't want to mask my symptoms or illness, but how do I survive? I am becoming suicidal. I will check out the links, thank you. I am "scheduled" to see him in a month, not sure if he will call and give me any results before that. He pushed me about the work I do, and was so "enthralled" that I work in spirituality, he wants to "trade"... oh goody...
Posts: 41 | From Springdale Arkansas | Registered: Aug 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Ultram or Lyrica may be useful in modulating your pain. Additionally, that ID guy was actually one of the best I've heard (which is sad). I've never heard of an ID guy prescribing 2 months of Doxycycline in one appointment.
He was right to test you for tick fever and tularemia. Both of those tests are effective and should come up correct no matter which mainstream Lab you use.
Of course you'll still need to see a Lyme Disease specialist, but this is a start.
Get whatever information you can from him and have him run you through all the typical testing, including viral infections. Might as well if insurance is covering it (I assume it is?). Get HIV testing, HHV6, EBV, CMV, Mycoplasma Pneumonia, CPN, Rocky Mountain Spotted Fever, Ehrlicia, Bartonella, Babesia and anything else associated with ticks. Obviously some of those tests are inaccurate, but running them can't hurt as long as we know which ones.
An ID guy isn't a bad thing when you already know what they think about Lyme (If the ID guy is a good guy). You can exploit him to get testing and rule things out that need to be done anyway.
Hope this helps.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I will do that, get him to test me, but no I do not have any insurance. He does use a lab that has a sliding scale fee, and we may even qualify for almost free lab work! So he would be the one to get to "run" the tests, you actually have a wonderful point. I may go back to my NP and ask for a NON narcotic pain relief, maybe she will be ok. I am fine with anything that works. I have a few other tricks, now that I have decided suicide is not really an option. I also am sure from what I have read here, that I have EBV. I had a weird thing on my finger, they said maybe a spider bite, maybe a herpetic whitlow. But from this site, I have concluded I probably have that too. I have a LLMD apt Nov 29, but I have another dr that I can call on Monday, a little further but was told I can be seen in 2 weeks! I appreciate so much this forum, this site, all of you. I think I am going to give up, and then I read something and realize I won't. I wish we could all be well someday. If NO WHEN I get well, I am going to specialize in counseling Lyme patients~
Posts: 41 | From Springdale Arkansas | Registered: Aug 2010
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quote:Originally posted by ChristieL: I will do that, get him to test me, but no I do not have any insurance. He does use a lab that has a sliding scale fee, and we may even qualify for almost free lab work!
So he would be the one to get to "run" the tests, you actually have a wonderful point. I may go back to my NP and ask for a NON narcotic pain relief, maybe she will be ok.
I am fine with anything that works. I have a few other tricks, now that I have decided suicide is not really an option.
I also am sure from what I have read here, that I have EBV. I had a weird thing on my finger, they said maybe a spider bite, maybe a herpetic whitlow.
But from this site, I have concluded I probably have that too. I have a LLMD apt Nov 29, but I have another dr that I can call on Monday, a little further but was told I can be seen in 2 weeks!
I appreciate so much this forum, this site, all of you. I think I am going to give up, and then I read something and realize I won't.
I wish we could all be well someday. If NO WHEN I get well, I am going to specialize in counseling Lyme patients~
Breaking this up for easier reading.....
back to comment....
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Dump the ID, that is for sure! If you're taking Doxy, then you must get on probiotics ASAP or you really WILL have yeast!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I like the way Met.Blue thinks.---- "You can exploit him to get testing and rule things out that need to be done anyway."
Don't forget to get copies of all tests and bloodworks.
If you go back in 2 mths might be a better time to push for more.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Well, Christie, we kinda knew this was gonna happen. Darnit, I too was hoping for a miracle, but alas, none.
What's this deal with the docs in that area saying folks have "tick fever"? Isn't that Lyme? When I visit the area, they say, "Oh, so & so has the tick fever...."
Anyone know if tick fever & Lyme the same? I assume so...but with those Ozark docs, who the heck knows?
Oooooh my goodness, this Duck is just like the rest. Well, at least you were prepared for it, but certainly not as bizarre as this was! Good grief, what next!!???
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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quote:Originally posted by Lymetoo: Tunica?? For an LLMD?
Yes.. name given he is based out of memphis but does see patients in tunica mississippi, about 5 hours from me. Dump the ID, that is for sure! If you're taking Doxy, then you must get on probiotics ASAP or you really WILL have yeast!
You are so right!
Posts: 41 | From Springdale Arkansas | Registered: Aug 2010
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