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» LymeNet Flash » Questions and Discussion » Medical Questions » Low Iodine....

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bschao
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I see Dr. F in AZ, and he had me do a 24 hr. urine test to see if I was low in Iodine. Turns out, I was so he started me on 12.5mg of Iodoral. Does anyone else take this medicine or had this test done?

Thanks,
bschao

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sillia
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I have not had the test yet. I started taking 12.5mg x 2 per day, and noticed almost immediately that my sleep was deeper, which went a long way toward making me feel better.

My LLMD wants me to keep taking it but wait for a year before testing, as it takes quite a while apparently for the change in levels to show up.

I really liked Dr. David Brownstein's book, "Iodine, Why you Need It" which is based on Dr. Guy Abraham's work as well as his own clinical practice.

The type in the book has nice wide spacing and is written clearly--so much easier to read for me than many other things I've tried to struggle through!

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bschao
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Hi Sillia,

Thanks for the reply. Have you had any other symptoms improve by being on the Iodoral? How long have you been taking it?

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sillia
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I've been taking it about 4 months now. In general I've had a lot of symptoms improve but can't tell how the Iodoral fits into that process--too many variables...I'm taking a lot of things.

The change in sleep was the one thing that happened dramatically enough that I was able to say with certainty that it was the iodine that helped.

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Pam08
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I am currently looking into this. I was going to do an iodine urine test as well over a year ago but never got round to it. I should have though because now my thyroid tests are coming back low and I know iodine can be a factor in that.

I was just worried about taking so much iodine for the urine test. Wasn't sure how I would react to it.

I have been just putting the iodine on my skin for now and letting it absorb in. I just started doing that recently and not sure that I would even get enough that way so I don't have anything to report so far.

I think I will start taking it internally soon though. I have the Lugol's right now...not the Iodoral. I think they are basically the same though accept one is in pill form.

--------------------
Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting.

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hadlyme
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I'm on Ioderal too, since last spring. I see your same Dr.

But I never had the urine test... when he put me on thyroid Armour, he added Ioderal for me to take too. Hate to admit, I don't take it all the time!

I never noticed any difference when taking it or not.

Now I have other Iron issues that he and I are trying to figure out.. so yea.. not taking the Ioderal right now. Too many other weird things to figure out this week with him.

--------------------
Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again!

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bschao
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Thanks for the replys everyone.

Hadlyme....he put me on thyroid Armour as well. What did your thyroid tests look like? Mine were all in the range but at the very bottom of the range. My hair loss got a lot better for a little while, now it's getting bad again..I don't know what's up with that. How much do you take? I take 30mg.
So how long have you been seeing Dr. F and how do you like him? Do you live in AZ or do you travel to see him?

Sherrie

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laceyj
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I think it does help alot of people. But I would start off with half and work up slowly. For me after awhile, it made me have hyper thyroid symptoms. But that was just me.
I think my adrenals were too weak also to handle it.

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canefan17
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Be careful taking iodine. It can spark an autoimmune reaction (attack your thyroid)
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hadlyme
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Bschao...
I live like a couple miles from his office. I've been going to him for just over a yr. now.

My thyroid results were just borderline.. but with my temps so low, he put me on Armour. This was last April or so.... (had other symptoms too)

I'm up to 90mg... we tried going higher and my body did not like that!

I do like him a lot! I've gone to other top llmds in NY state before, and I love how he wants to go slow and he's so complete in how he's trying to figure things out.

To me he makes sense.... Do you ever come to the AZ lyme support meetings here in Scottsdale?

I'm off this morning to his office... weird tests to turn in this morning. Other body parts are starting to be effected and we're trying to pin point where and how bad! It's always something! [Smile]

I told them I should work there... I'm there that often!

--------------------
Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again!

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