posted
Have you all gotten well w/o Flagyl/Tindamax?
I see DR. P in CT and so far have been pretty happy. My only objection might be that he is pretty opposed to cyst-busters. Seems to think that they are carcinogenic, but don't quote me on it.
Although he does do pulse therapy, I am concerned that the lack of cyst busting will just lead me to inevitable relapse. Thanks in advance.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
My doctor is the same way but he agrees to use Flagyl 2 weeks at a time. He doesn't really like to use it.
I have always felt that Flagyl or Tindi is an important part of treatment and wondered if it might be the key to turning a corner for me.
There are people that are well that have told me they felt it was a very important part of getting well.
I start IV Flagyl in about a week. Scared but excited.
Posts: 2232 | From USA | Registered: Aug 2009
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What does your Dr. say about why he doesn't like to use flagyl? Thanks.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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posted
My doctor had me start Tindamax and in the beginning I would start herxing after just 2 doses. I feel that it's helping me. Right now I only do the Tindamax on weekends.
Best,
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
He has seen many people get permanent nueropathy after taking it for prolonged periods of time. I believe that is his main reason but there may be other reasons.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Well then what should we do? I guess the pulse therapy approach's goal is to avoid cysts in the long run?
Are there any herbs that target cysts particularly well? Maybe cat's claw? I thought I heard some research to that effect.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
stork, im doing the pulse therapy with your doc too, but i add my own flagyl in for 4-5 days after a cycle for good measure
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
he's had me & family on cyst busters...plaquenil & tini, so don't know what you mean.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
interesting. maybe his philosophy on it has changed, or it has something to do with my age or some other factor. i'll have to ask him abt it next appt.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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posted
He has me on MEPRON & biaxin...According to Dr P -MEPRON is one of the best cystbusters there is..
So you must be missing something...because I see your current treatment includes mepron.. Ask Dr P to explain this to you -he is a very knowledgeable LLMD and I have alot of faith in him..
Posts: 27 | From delaware | Registered: Dec 2009
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posted
Believe me mila, it's not for a lack of faith. Just trying to hit this thing from every angle, you know? And every Dr. does things differently. Definitely been very happy with him as a Dr. and owe him and his staff quite a lot even at this point.
I'll have to ask about mepron and cyst busting. I wasn't aware of that. Thanks.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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posted
He got me symptom free in 5 months time back in 2002 using 1 month tetracycline followed by zithromax mepron...then a couple months doxy..
That lasted until 11/09 when I flared again due to too much stress & not taking care of myself..
When I walked back into his office after a long hiatus- he talked to me on a first name basis and remembered everything about my case..
IMHO - he is one of the best llmd's in the USA... and I've been to many over the past 21 yrs of dealing with lyme..
Posts: 27 | From delaware | Registered: Dec 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Grapefruit seed extract is supposed to be a cyst buster.
Just read on another thread that someone is taking amantadine with biaxin to help with cysts (did I get that right?)
I take tindamax two days a week.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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