posted
My LLMD recently gave me 300mg 2x a day fo Rifampin and 500mg 2x a day of Biaxin plus Plaquenil.
Prior to that I did Levaquin for almost 3 months, but was starting to really effect my joints so he switched me.
Last night was my first dose of the combo above, and today my head feels like a brick and my insides feel weird.
Is this normal? He gave me that combo to treat Bartonella and Lyme. He thought Lyme may have been treated but once I started with the joint aches, he was suspicious that I still had the Lyme.
Are there any other side effects besides the orange urine? Any info helpful.
Posts: 134 | From NY | Registered: Aug 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
This seems like a good combo IHMO (I'm not a Dr.)
I did Biaxin with Amantadine for 12 weeks. Worked well for me. Amantadine raises the cellular PH and makes the biaxin work better...just like Plaquenil, but doesn't have the potential vision issues.
Did Levaquin for 2 weeks and stopped last Friday due to achilles tenderness. Just started 300mg Rifampin last night and will up to 600 in a few days.
Feel pretty good so far. I suspect the Bart is on the run!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
bcb120-- do you mean 600mg once a day or 600mg 2x a day?
I need to take my next dose now and I am not sure how I feel about that since I am at work. LOL
Posts: 134 | From NY | Registered: Aug 2009
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posted
I don't think anybody takes 1200 mg of Rifampin a day.
I'm on Biaxin and Rifampin and now, Bactrim. Rifampin really nailed me at first. I've been on it for over six months now. Bartonella must be really tough.
Posts: 152 | From West Palm Bech, FL | Registered: May 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When I had a relapse a couple of months ago I dug into the old abx and took 300mg rifampin once a day along with the 500 zithro and bactrim ds twice a day that I have been taking for over 9 months. It seemed to knock it back down for me. I ran out of rifampin and am currently waiting for a LLMD appointment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Rifampin was really rough the first 3 weeks. But after that, I found out it was so worth it!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Rifampin can cause nasty herxes - but make sure you also get your liver enzymes checked regularly.
Posts: 1761 | From USA | Registered: May 2006
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
600mg 1x / day.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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