posted
Getting ready to start Samento and Banderol today.
I will keep you posted.
Posts: 412 | From Virginia | Registered: Sep 2010
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Our EDS testing is showing that Samento and Cumanda and GSE have significantly lowered our levels of lyme, bart, babs after 10 months. We think it may be gone but don't know yet for sure. It tested better than abx for us.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
I have been using cumanda for a long time now. I am only at 5 drops a day though. I probably could have increased it a lot more by now if I weren't doing so much other stuff etc.
I had to start so slow with it though because it was so strong. At first I could only handle one drop 2 times a week.
I also tried the Samento a couple of months ago. I was doing just 1 drop a day but that too was strong. I actually only took it for maybe 10 days because I realized it was the cause of my abdominal pain.
For years now I have had abdominal pain off and on. No cause was ever found after extensive testing. So I imagine it is lyme. It feels like gallbladder problems but my gallbladder tested fine.
Anyhow after starting Samento my abdominal pain really flared up bad. I had no clue what was causing it at first until I realized it was the Samento.
Once I stopped the Samento the pain stopped again.
I have been afraid to try it again since because I didn't know if it was some sort of die off or if the Samento just didn't agree with me and was aggravating my gallbladder or something.
I have been thinking of trying it again but starting at only 1 drop a few times a week.
Anyhow...I have heard good things about it so I am hoping I can do it again at some point.
I also have banderol and enula but haven't gotten to try those yet after the Samento experience.
Good Luck!!!
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
I am on Samento (liquid) and Banderol, about 2 weeks now. I did not experience the severe reaction that some have reported. I am up to 20 drops 2 x a day of Banderol and 15 drops 2 x a day of Samento. I have periodic herxes, including very painful toes. But I'm also on antibiotics and Mepron.
I read somewhere that Banderol and Samento were shown to be very helpful in "curing" neuropathy, which is a lingering problem for me.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
I tried Samento, it did nothing. I got all the way to 15 drops 3xday, but nothing. My LLMD said with the herbal remedies, they work for some but not for others. Someone might have a major herx from one drop of Samento, I could drink the stuff and feel nothing. He switched me to "A-L Complex" today but I haven't started it yet.
Although I know of some people that Samento was their only treatment, and they are healthy now.
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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