posted
So I just started my ABX treatment 16 days ago..started feeling REALLY bad about 8 days in and have felt pretty bad since then.
How long did it take for you to start feeling better and some symptoms to go away?
What is driving me nuts right now is all the muscle twitching and jerking..I just cannot sleep because I keep jerking. I also have a HUGE amount of anxiety with this awful feeling in the pit of my stomache.
I am wondering when I can expect to start seeing an improvement?
I have had symptoms for 10 months
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Could take months..give it time. It's not a marathon
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
BackinStOlaf, do you mean it's not a sprint?
BackinStOlaf is correct, it could take months. You might see improvement more quickly than that.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Hate to say it, but for me, I started feeling better about 2 years into treatment. So at the very least, you need to expect "months". If you are lucky you might feel better sooner than that. It might depend on how long you have been ill. If you started treatment within a few weeks of becoming ill you might feel better in a month or two.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I only had symptoms for 6 months, abx now for 4 months and just feel very slightly better. I am nowhere near being well. I expect it will be at least a year to feel anywhere near being back to my old self.
Posts: 319 | From Mass | Registered: Feb 2010
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posted
I had symptoms for 6 months prior to diagnosis...but severe at the onset, not gradual...
I have been in treatment for 6 months now and no real improvement yet, so I guess that I am in for a marathon (more like a REALLY LONG Ironman!) for awhile!
Hang in there!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
im not as sick as others. i stated treatment a few weeks after getting sick. im just finishing up year one. i still feel sick all the time. no end in sight.
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
When I started treatment I felt better after about 4 weeks. However, every time I went off the medicine symptoms returned.
After about a year I started to feel more consistent ups and less downs.
It's been about a year and 1/2 and I have not had treatment with an LLMD on a consistent basis. I have had a hodge-podge of medicines.
I'm now doing Flagyl 2 weeks on 2 weeks off (will also do IV Flagyl). I believe this will help me turn the corner, but can't say for sure.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Didn't turn the corner for 2 yrs... treated for another 2.
Patience is the key.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
At year 3 here and finally starting to see some improvement....I became sicker after beginning treatment for a long time...but! I was also undiagnosed for at least 18 years....
everyone is different Jackie..you may have a great response!!! don't give up.
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I was undiagnosed for 8 years. Have been on antibiotics 7 years. Now have some control over my weight!! Big issue for me. Pain is not so bad that I can't cope with life anymore. Will always be on meds and/or supplements of some kind.
Do people understand that the spirochetes eat your connective tissue, then your brain tissue, then you die? Is that too blunt?
Also you must understand that antibiotics cannot kill a spirochete. Only when they reproduce do they form a cell wall - - - then you kill some.
This is your new life. It can be a VERY fulfilling one if your learn to embrace it and see the positives.
Posts: 108 | From Florida | Registered: Sep 2005
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
omg paula.....that is one debbie downer post!!!!
I'm sure that everyone (including myself) feels just great after this:Do people understand that the spirochetes eat your connective tissue, then your brain tissue, then you die? Is that too blunt?
yikes...we're looking for bright futures here...not what sounds like a horrific death....ewwww.
Just go after the bas****'s Jackie, chances are, you'll be fine.
Posts: 3975 | From usa | Registered: Aug 2007
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
The macrolides, zith & biaxin, and the ketolide, ketek are effective against CWD (cell wall deficient) Borrelia.
Dr B's guidelines have a good explanation of the antibiotics-it's a must read
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Paula, It may feel like a very negative situation; but many ppl have been cured of LD for good and have moved on with their lives.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Wow Paula, they say a positive attitude and hope is crucial to recovery...
You say to embrace the positives, yet you imply doom and gloom...I dont find any positives in your comment about the spirochettes eating my brain and then I die...
For me personally, I am feeling FANTASTIC!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Although, I have hope and a good attitude to go with that.
Posts: 747 | From Utah | Registered: Apr 2010
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posted
Also, I believe the question here is "when did you start feeling better"?
Now, with comments such as the above made, I can guarantee you will NEVER feel better.
Jackie81...I am so sorry. You will find lots of positives and lots of negatives here on LN. You really have to sort it all out and take it for what it is. Yes, many people do not get better, but the majority 80% do. All you can do is put your game face on and fight as hard as you can. A multi approach is your best bet: medications, detox, supplements, exercise when you can, and try to be positive/hopeful.
I am not cured, but I can tell you that my daughter and I are much better than what we were before starting treatment. We both are HLA DR4+ which they say is the worst case scenario for lyme patients. We are both playing tennis, bike riding and playing. I can not let this disease destory the life I worked so hard to get!
To answer your question, we both started to feel better with in a couple months of starting treatment.
Posts: 747 | From Utah | Registered: Apr 2010
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