posted
I see alot of people here talking about cystic lyme. and cyst blocker meds and stuff
I know that lyme can go dormant and stay in your system in a cyst form and then return . I think that might have hapened to me.
Does the ILADS guidelines know about cystic lyme and give ways to treat it?
Posts: 995 | From somewhere out there | Registered: Oct 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Someone else can probably answer your question better but I will offer my explantion. Bb forms a cyst when it is stressed by abx (or whatever) and can remain in this dormant state for a long time - some estimates are decades.
So if you do not take an abx that attacks the cyst form you will relapse whenever you quit treatment. You feel well, quit abx, and the cysts become active again - relapse.
Certain drugs attack the cysts. Fagyl and tindamax are most effective but plaquenil also helps. It is now thought that Diflucan may attack lyme and the cyst form of it. Grapefruit seed extract is believed to attack the cyst form as well.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Yes..ILADS guidelines, particularly Dr. B's treatment guidelines, address cysts.
Your regimen should include cyst busters at some point. Each doc's protocol is different. My LLMD has me pulse 1000 mg of Flagyl / day for 3 days every 2 weeks. Other LLMD's I know tell their patients to do 500mg / day for 3 days weekly, while still others say take for 3 weeks on, 1 week off.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic