posted
I've read a few posts that have me confused?
If at one time your were under treatment for Lyme using abx and finished....and a few weeks, months or years later you start having symptoms....
Why am I reading NOT to use abx for first choice? and the fear of stirring the pot? What does this mean?
I just asumed that going back on abx with any symptoms would be most beneficial, since waiting to get treated correctly is what put us all here to begin with! Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
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posted
Hmm, if I were using abx to treat, I would go back on them at the first symptom. I don't know why you're reading that. I would want to hit the bugs hard right at the start to kill more of them before they hide.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I'd get on them ASAP and not waste a minutes time.
Some may feel after prolonged treatment with ABX that if a relapse occurs that alternative modalities may be the thing to try but that's really a personal choice.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
That's what I thought!! I flew back to abx with first signs of symptoms..... Thanks guys ((Hugs))
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Most people get back on abx immediately when they feel symptoms return. You should see an LLMD and not try to handle it yourself.
Dr. Burrascano was symptom free and quit abx. When he relapsed he waited until he was extremely sick again before hitting it with ceftin again. Then he went until he was symptoms free for two months before quitting. He did this twice and then was cured.
The author of Cure Unknown cured herself the same way.
However this is ONLY for Bb, not the co-infections so you must be clear of them first. That is why you need to do this under a LLMDs supervision.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I never heard anyone say that... but some don't like antibiotics to begin with... so...
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
"Why am I reading NOT to use abx for first choice? and the fear of stirring the pot? What does this mean?"
Hey Jenn,
I'm not sure if this question has anything to do with my recent post, but thought I would addreess your comment anyway.
I think that when some of us have been on some sort of ABX for years, and have at last found some sort of balance between not needing heavy meds to function again...
At least for me, there is always that hesitation that IF I go back to meds immediately again, it will just make me worse instead of better. Sort of like shaking up the balance I have found just enough to push me back on the really sick side. And I am not talking about a temporary herx here from ABX, but a long lasting blast of renewed and increased issues.
Issues of other health problems that stem from years of ABX use and compromised immunity.
Also, at this point, I just don't tolerate certain meds any longer. My body rejects them instantly in no uncertain terms.
This has happened to me a few times now, so I know it occurs for me and for others I have spoken with.
I also realize that I am no longer looking for a complete cure, but an ability to just function somewhat normally in a state of remission. Going back on medication places that in jeopardy as body chemistry and reactions to that chemistry are altered.
So, I first look to see if there is something else (a least invasive method) I can do to help my natural defences out... because ultimately, I want my own body to be able to fight this without meds in order to get back to and remain in that remission state. Sometimes, I can find other things to help and sometimes not... it just depends on the current situation.
Please keep in mind that I have been fighting these diseases for several decades and have been on major medications for almost 8 years.
My advice to others with a new infection would NOT be the same. I have always been a strong cheerleader for ABX ASAP and for as long as needed!
Hope this helps... M
Posts: 7052 | From Colorado | Registered: Mar 2003
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onbam
Unregistered
posted
If antibiotics were what got me well i'd go right back on them.
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
"If antibiotics were what got me well i'd go right back on them."
In order to even make that statement... you first would have had to reach 'wellness'.
MY point is that many of us have not ever reached that state even after years of trying. And eventually, other things start to go wrong that all the ABX in the world can't fix.
This is not a simple disease or complex of diseases and the answers are not always that simple either.
Posts: 7052 | From Colorado | Registered: Mar 2003
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Absent allergic reaction(s), a paradoxical effect of antibiotic(s) for lyme borreliosis, is to feel worse. This happened to me many times with several courses of antibiotics for lyme-borreliosis.
In 2009 I got an infection from shaving, and picking at a spot on my face where it felt like a zit, or perhaps boil was breaking through. The antibiotic I took for the skin infection in the jaw did not cause a worsening of my discomfort.
Good Luck,
-------------------- pingpong Posts: 361 | From At the Pingpong Tournament | Registered: Oct 2007
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
quote:Originally posted by nefferdun: Most people get back on abx immediately when they feel symptoms return. You should see an LLMD and not try to handle it yourself.
Dr. Burrascano was symptom free and quit abx. When he relapsed he waited until he was extremely sick again before hitting it with ceftin again. Then he went until he was symptoms free for two months before quitting. He did this twice and then was cured.
The author of Cure Unknown cured herself the same way.
However this is ONLY for Bb, not the co-infections so you must be clear of them first. That is why you need to do this under a LLMDs supervision.
What Nefferdun stated above deserves repeating. Heed this valuable advice -- especially the part about being sure that there are not any other tickborne co-infections going on and that it's only just Lyme by itself that you're dealing with.
If it takes several months to relapse, then it's probably only Lyme. If the relapse occurs within a few days or so, then it's probably Bartonella. (Bartonella is more prevalent in warmer climates because fleas which spread it proliferate during the warmer season.) If you don't really reach a symptom-free stage at all, then consider Babesia as a possibility also. And depending on the part of the country where you live, you might need to be tested for Erhlichia as well.
Posts: 4563 | From TX | Registered: Sep 2002
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