kidsgotlyme
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Member # 23691
posted
I'm not sure what to do. My daughter, who is 14, is in extreme pain.
She is having stabbing pain in the front part of her hip. She is also having pain in her shoulder.
Her LLMD was reluctant to give her anything for her anxiety so I am a little hesitant to ask for pain meds but I could tell from her face tonight that she was REALLY hurting.
Is their anything that I could ask the doctor about giving her at our appt. on Tues.? Any other parents with teens that have been prescribed pain meds??
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
My 17 YO daughter has a 'pain doc' who manages the pain she has from Lyme. She manages as much as she can with diet/supplements and abx treatment. But when it gets bad, she does take vicodin. It helps her to function and have a life.
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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posted
My daughter has had a lot of pain the past couple of days and I gave her 4 Ibuprofen. It really seemed to help.
Posts: 499 | From Malta, NY | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I would lessen my pain in Epsom salt soaks-hot as I was comfortable in, if she is very neuro you need to check it and stay close--as she may not feel the real heat--
rubbing Ginger root all over the effected parts,
and halved lemon rubs helps too...
B12 IM helps the nerves behave
and many take Magnesium. I liked a spoon of liquid MAG for great sleep.
Soft gentle massage may help some too...I feel for you both..
Ginger has been proven to reduce pain by 25% And works great to shrink hemorrhoids.
Which I'm sure she don't have---but you might before this is over....Hugs...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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ktkdommer
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posted
My son's doctor feels he should be as comfortable as he can be until he gets better. He prescribed tindamax for the pain. He can take up to 4 a day. He is 15 and addiction was never an issue. He is better this month and barely takes it anymore. For anxiety my son has benefited by effexor and he has valium type med that he takes before bed. It can be given when his anxiety is over the top. This too has gotten better this month.I think he is kicking some of the bartonella. He has been on IV antibiotics for 3 weeks and we hope to see even more recovery.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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ktkdommer
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posted
It is tramadol that he takes for pain not tindamax. There are wayyyy too many medications in this house! Sorry!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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momlyme
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posted
Pinelady - great suggestions... where do you get the liquid MAG? and what do you mean by B12 IM? It's the IM that I don't understand.
Momofthree and Deb133 how old are your children? My son is 11-- 75lbs on a good day (85lbs before Lyme) and I was 'warned' not to give him more than 2 Ibuprofin by doctors... I think because of liver problems? LLMD won't prescribe anything for the pain.
My son hates baths and says he doesn't want to straighten his legs out for a foot bath. He sits with them curled up underneath him.
It's terrible to watch your child suffer.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I am going to ask our LLMD about giving her a prescription for some type of pain meds when we see him this week.
I don't understand why some doctors will give meds and others won't.
My daughter takes a lot of magnesium. She also does epsom salt bathes but it's not touching the pain.
I will give her some ibuprofen, but I hate to do too much because of the risks of stomach problems.
Thanks everybody for responding to my question.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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momindeep
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posted
My daughter took Valium and morphine...sounds extreme, but her pain was extreme.
I think when a person is hurting so powerfully, it makes it very difficult to heal.
All someone can do, when in such horrible pain, is make it one minute to the next and that struggle conflicts with healing.
I was pretty adamant with her primary doctor. I went in with my daughter to her appointments, laid out the fact that I would be in control of her medications, told him what pain meds I thought she could benefit from, and pretty much would not take no for an answer.
She had been on and off pain medications from about 15-23. It wasn't continuous...and only a couple meds would actually touch the pain.
You can also set up a consult with a pain clinic/doctor, if you don't get anywhere with your doctor...sometimes that is the best way because pain doctors are not under scrutiny for perscribing such medications.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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kidsgotlyme
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posted
momindeep- If I can't get any answers at my appt. I think that I will see about getting her into a pain management doctor.
Just because these kids are not technically adults, it doesn't mean that their pain is not real. It really makes me made when a doctor doesn't want to treat something just because they are "teens."
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
I am surprised by how well the Ibuprofen helps my daughter. I think her pain was pretty extreme as she would actually cry out in pain. It was mostly her hands and knees.
So perhaps in her case it was alot of inflammation. One never really knows. I dont often like to give her 4. Usually I might give her 2 or 3...but this time the pain was pretty bad.
She hasnt ever had a problem with her stomach and Ibuprofen tho I know that can tear your stomach apart. We havent had to take anymore since yesterday morning and things have calmed down.
Momlyme we have talked before as I'm not too far from you. My daughter is 16.
I think a pain management doctor may be a good idea as well. Hopefully, at your appt he may give you some good advice. Keep us posted!
Deb g
Posts: 499 | From Malta, NY | Registered: Dec 2008
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momlyme
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posted
Yes Deb, sorry - brain cramp. I just looked through my PM's and I now recall our conversation, lol.
When I was 15, my doctor prescribed 800mg Ibuprofin for my monthly friend because cramping was terrible. So, I see no problem with 800mg for someone who is 16...
If you find a good pain management doctor PM me and I will do the same. It's nice that we are close enough to share that kind of information.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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And he actually got mad when I told him all my symptoms.
He said he just wanted to know the nuerological ones. I was crying, so I just handed him my list of symptoms. How am I suppossed to know what he wants.
He poked me in a few spots and told me I had Fibromyalgia, but didn't argue when I told him I was being treated for Lyme.
I go to my doctor's office almost every week because of the pain, and she just mocks me. I am amazed that your child got morphine.
That is the only thing that helped me too.
I ended up in the hospital from all the pain, they gave me a morphine drip and it was the first time I hadn't been in pain for years.
Gabapentin and amytriptaline helped me too, but it takes a month or so for it to start to work.
That's along time for a child to suffer.
If they can put these kids on morphine, they should. The pain is torture.
My daughter has Lyme but no pain. If she did, and wasn't helped , I don't know what I would do.
I will pray for all these kids here.
It is not right to make them suffer.
Lord help us all to find compassionate and understanding doctors. Please.
-------------------- I am not a doctor. I have no clue. Posts: 606 | From somewhere out there | Registered: Sep 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
The B12 vitamin is in the muscle shot. It worked for me...Liquid Magnesium is at health care stores.
You can buy Epsom in bulk--cheaper than store bought. And for the need and the price it is wise if you can do that...
I still do them at least once a week...
I would go ahead and get something for the pain, but it may take 6mths to get free of the pain. So keep on keeping on...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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momindeep
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posted
When discussing big-gun pain medications with my daughter's physician I said something like this: "Please tell me, what child...WANTS to be on ANY pain medication?" "Can you not think, for one minute, how devastating this must be...having to even consider pain medication of any kind...especially medication of this magnitude?" "What kind of pain must my daughter be in, for her mother to come to you and suggest such a thing?"
Basically, I wanted him to stop and think LOGICALLY about the situation...how awful it is and to have a tiny glimpse into our lives.
We would give anything as mothers to have our child well...and when we have to go into a doctor's office and BEG for pain medications for our children, I will call them on it every time...I am not snarky...I try to remain level-headed as much as possible considering the situation...and YES...I WILL let my eyes tear up, but I will not cry...as to not loose credibility.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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I think our llmd would give pain meds if needed. He is so compassionate and just wants to get people well. He has dealt with lyme and co-infections himself so he truly knows the pain and horror of lyme disease and its little friends...
Sounds like there are a bunch of wonderful moms on this thread....
I only wish it were be that were sick and not my daughter...I want her to have a life..I really dont care about mine..
Prayers for everybody and especially those of us who watch our kids suffer every day of their lives...
Deb g
Posts: 499 | From Malta, NY | Registered: Dec 2008
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posted
My daughter can take excedrin, doesn't help.
Aleve, doesn't help.
Advil, doesn't help.
Tylenol, doesn't help.
None of these otc pain meds have ever helped. Poor kid.
She was afraid of taking ex strentgh vicodin because she thought she would get addicted becuase of the length of time she will probably be treating Lyme.
She got over her fear of addiction and began taking the vicodin. OMG, what a change. She can get through the day. It doesn't get rid of her headache, but makes it tolerable. When she needs to take it, it's the difference between being in excruciating pain and be able to somewhat function.
When she's herxing or going through a really rough patch she may need to take up to 4 per day. She doesn't take them now unless she is going through a herx. Ends up being about 1-2 day for a week or so every 5 weeks.
Good luck with the doc and let us know how it went.
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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kidsgotlyme
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Member # 23691
posted
LymeMom, thanks for sharing. I will post on how our appt. went.
I'm ready for battle
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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