posted
Please post your results. Just because they are in range doesn't mean they are normal.
Thanks
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I have been on thyroid meds for that for the past 24 years. I was hypothyroid, and treated for that, monitoring the nodules.
Last year my LLMD did more testing and dx'd me with "Euthyroid Sick Syndrome."
He has taken over the management of my endo issues now, in part I think because my endo doesn't think outside the box and was always telling me things like, "There is no such thing as adrenal fatigue.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
huh? Fuel1212, supressing the pituitary gland activity means you're heading straight to breast or thyroid cancer from what i've read... so not sure I understand your advice...
Posts: 723 | From Montreal | Registered: Oct 2010
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Your TSH is way too high, normal ends at around 1,5. In Germany they ahve lowered the uper end of normal sown to 2,12 or 2,5 many years ago. Also, lots of patietns on the forums say the max TSH they can have is 2, otherwiase they just lay on the couch.
Also, a high TSH (3 is high) will stimulate nodules. TSH must be as low as possible. TSH also triggers thyroid antibodies. Or, any other antibodies too.
Posts: 366 | From Europe | Registered: Nov 2008
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posted
Northern - Yeah, we are on the same page here. I have had my left lobe removed because of a suspicious nodule. The TSH is considered Hypo in my opinion. You need more thyroid hormone, or something that will be converted better.
I would also check for Hashimotos Antibodies if I were you.
Your tsh needs to be under 1 at least...mine I try to shoot for .80 and slightly under. This is called suppressing for those of you that are not familiar with terminology.
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
JJ I am in the same boat. LLMD started me on low dose synthetic T3.
My labs were also all normal.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
Thanks,Fuel, I just started the condensed cowden protocol in the last 3 weeks and have been feeling a little sluggish on and off but otherwise I don't feel unusually fatigued......I am not on any thyroid meds.....who advised you that your tsh should be under 1 your llmd or endo?.....I will ask my endo to order labwork for hashimotos antibodies....
Thanks, northern lights for the web site.....I'm confused you mention that my TSH is too high but labcorp says it's normal.....are they using outdated guidelines?
Is there info online by a source that my doctors would consider credible that talks about what optimal thyroid hormone levels should be?
Thanks, Lauralyme, what made your llmd decide to prescribe low dose synthetic T3? What was your tsh level etc?
Posts: 574 | From New Jersey | Registered: Feb 2004
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posted
JJ - The ranges labcorp and every other lab uses are very broad and probably included people that were borderline hypothyroid at the time. If you feel fine and think you have the energy you need, then maybe you are fine? If you feel you are lacking some energy you may want to ask the doc for some thyroid meds. In fact, I would get a new endo because if they don't have you on meds yet, I am not sure what they are thinking.
When it comes to meds, I highly recommend a dessicated over a synthetic. Armour, Nature Thyroid, and ERFA(Canada I am on this) are all great choices.
I just know that I have been researching thyroid info and levels for quite some time and know that in the forums everyone that feels really well have their TSH at 1 or below. They have their Free T3 in the upper 3/4 along with their Free T4 same.
BTW my Thyroid doctor is the one that told me about the suppressed pituitary and TSH. Also know that TSH is not the best determinant of thyroid conditions. Free T3 is very important.
Night
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454
posted
I was diagnosed with hyperthyroid and then hypothyroid after lyme disease diagnosis. The nodule came later. Went away eventually.
Posts: 1738 | From over the rainbow | Registered: Jul 2009
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posted
Thanks fuel for your natural thyroid meds recs.
Rdaywiilcome, thanks for sharing your experience....did you do anything that may have helped your nodule to shrink?
Posts: 574 | From New Jersey | Registered: Feb 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When I was five years old I was given radiation up my nose to shrink my adnoids. It is very common for people who received this to get thyroid nodules and even thyroid cancer or brain cancer.
So when I developed a nodule the endocrinologist recommended I begin thyroid supplementation even though my lab tests were normal. That was way before lyme.
This is supposed to keep the nodules from growing or developing into cancer. It has been over ten years and everything seems to still be ok. It does not get smaller but it stays the same.
I also feel much better while on thyroid supplementation. I believe the radiation messed up either my thyroid or pituitary gland which affected my hormones. I had two miscarriages and low progesterone which was discovered years later when I went through menopause.
Most doctors just give a TSH, thyroid stimulating hormone, to evaluate thyroid function but there are other things that can be wrong. The thyroid produces T4 and T3. T3 is the active hormone for metabolism so your body has to convert T4 to T3. You need to check those levels as well.
I like to take Armour thyroid because it is natural (from pigs) and contains both T4 and T3. I
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Nefferdun,thanks for sharing your experience...I can't believe that you were given thyroid supplementation with normal labs...you were really lucky that you had an endo who was willing to think out of the box....so glad to hear that the nodules have not changed in the last 10 years.
You are right about the T3 and T4 being important, I'm not sure my levels are in the appropriate range.
Looking for an endo who is knowledgeable about treatment of nodules in the ny/nj area.... if anyone knows someone please send me a pm.
JJ
Posts: 574 | From New Jersey | Registered: Feb 2004
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