posted
People always say that with Bartonella you have alot of head symptoms and eye symptoms and feeling derealization and dis attached. but I have read that lyme can cause the same thing.
how come everyone always says that?
Posts: 995 | From somewhere out there | Registered: Oct 2010
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posted
I am not sure..but that is what lead me to inquiring about Bart with my doctor.. I also have very sore bottoms of my feet which made me suspect bart as well.
I am now on Bart treatment (started 5 days ago) and symptoms are flaring BIG TIME
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
I received my Lyme & Bartonella diagnosis at the end of August. Before I was being treated I was having horrible episodes of de-realization, depression, and panic attacks. I have always been slightly anxious but those episodes were entirely different.
I have increasing amounts of floaters in both eyes, along with what I can best describe as visual snow. When I look at a white wall I see tons of little pixels floating around. I also sometimes see little flickers of a neon blue color in my vision (i know it probably sounds crazy). Also have pain behind both eyes.
I am also dealing with an enlarged lymph node on the right side of my neck just below the jaw and ear. It had been swollen for several months now and has not gone away despite my antibiotic regiment.
Im not sure if these things are because of the Bartonella or because of the Lyme or something else...
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I have many of these symptoms. My depersonalisation is MUCH, MUCH better after bartonella treatment.
I still have floaters but most of the squiggly, pixie dust things are gone.
This is interesting...I have had a swollen gland on right side for YEARS! It is the same place as yours ross...It has gone away with anti malarials but always comes back.
Not sure if it's babs or something else.
Posts: 1104 | From N.California | Registered: Jan 2008
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steve1906
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Member # 16206
posted
Bartonella may not present in its usual form when additional infections, such as Lyme or Babesia are present. In addition, typical Bartonella lesions are not always seen in patients, therefore, a diagnosis of "fever of unknown origin" should alert a physician to consider Bartonella. It is estimated that approximately 2/3 of the patients with Bartonella have a fever. Involvement of practically every organ has been reported.
There are a variety of symptoms associated with Bartonella, including, but not limited to, the following:
BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.
RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.
EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud.s Oculoglandular Syndrome, and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis, Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.
HEART: Endocarditis, Cardiomegaly.
Possible lab findings: The following may show up during standard testing: Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes. X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal reaction. Cardiomegaly may show up on a chest X-Ray.
Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies strongly suggestive of lymphoma do occur.
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
I am currently on an anti-malarial drug; (amoxicillin, azithromycin, probenecid, nistatin, & malarone). Been on these since 10/25/10.
Is your lymph node firm or is it soft, tender, and rubbery? Lately I have been very worried about my lymph node. Mine is firm and sometimes decreases in size but never completely goes away.
Posts: 28 | From NYC | Registered: Sep 2010
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Lyme disease can cause ANYTHING, that's why it's called the great imitator. =)
Dr. Burrascano say that if you have a lot of neurological symptoms with little of the typical Lyme symptoms such as joint pain, then bartonella is most likely a factor. (That's me, too. I have both Lyme and bartonella but my neurological symptoms far outnumber anything else.)
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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lymeboy
Unregistered
posted
Anyone have horrendously clogged ears that cleared after Bart treatment?
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janice victorov
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posted
Yes, had horribly clogged ears. It has started to subside thank god.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
Bartonella also known as cat-scratch fever is a bacterial infection.
Symptoms include swollen, painful lymph nodes, muscle and/or joint pain, nausea, vomiting, chills, anxiety, insomnia, red rashes that resemble stretch marks.
Treatment is often Levaquin or Rifampin, Biaxin or Azithromycin. Septra/Bactrim has shown in some cases to be effective.
Bartonella Brain Fog Fever Foot/heel pain Ice pick headaches Photophobia Tachycardia Bowel problems IBS/IBD Swollen Glands OCD behavior Anxiety Endocarditis Retinitis Peripheral Neuropathy Rapid relapse off abx Immediate illness following tick bite Subcutaneous nodules Swollen Joints Swollen lymph nodes Psychiatric problems Shin pain No response to previous abx Plantar and costal margin pain (plantar=soles of feet costal margin = The lower edge of the chest (thorax) formed by the bottom edge of the rib cage) Rapid mood shifts Development of these symptoms during Babesia Treatment
BARTONELLA & �BARTONELLA-LIKE ORGANISMS�- � Gradual onset of initial illness. � CNS symptoms are out of proportion to the musculoskeletal ones- if a patient has no or minimal joint complaints but is severely encephalopathic (see below), then think of Bartonella/BLO. � Obvious signs of CNS irritability can include muscle twitches, tremors, insomnia, seizures, agitation, anxiety, severe mood swings, outbursts and antisocial behavior. � GI involvement may present as gastritis or abdominal pain (mesenteric adenitis). � Sore soles, especially in the morning. � Tender sub-cutaneous nodules along the extremities, especially outer thigh, shins, and occasionally along the triceps. � Occasional lymphadenopathy. � Morning fevers, usually around 99. Occasionally light sweats are noted. � Elevated vascular endothelial growth factor (VEGF) occurs in a minority, but the degree of elevation correlates with activity of the infection and may be used to monitor treatment. � Rapid response to treatment changes- often symptoms improve within days after antibiotics are begun, but relapses occur also within days if medication is withdrawn early. � May have papular or linear red rashes (like stretch marks that do not always follow skin planes), especially in those with GI involvement.
Bartonella
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever."
Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats).
Bartonella can also be transmitted by ticks that transmit Lyme Disease.
In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.
It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified.
While BLO has features similar to organisms in the Bartonella family, it also has features similar to the Mycoplasma and the Francisella (causes tularemia) families.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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