posted
A friend of mine who lives in the Baltimore area told me that his wife had Lyme disease about 20 years ago. She was experiencing neurological symptoms mostly.
Somehow she found out about this antibiotic, Roxithromycin, which was/is not available in the US. She bought it somehow from Mexico, started taking the stuff and was cured in 2 months. And when I say cured, I mean gone, done. No relapses in 20 years.
Lyme Disease: Roxithromycin has been reported to be of benefit in patients with late-stage symptoms (neuroborreliosis, (1) arthritis (2)) of Lyme disease, given in combination with co-trimoxazole, although the contribution of the latter is uncertain. (3) 1. Gasser R, Dusleag J. Oral treatment of late borreliosis with roxithromycin plus co-trimoxazole. Lancet 1990- 336: 1189-90. 2. Pedersen LM, Friis-Moller A. Late treatment of chronic Lyme arthritis. Lancet 1991- 337: 241. 3. Bowman CA. Oral treatment of late borreliosis with roxithromycin plus co-trimoxazole. Lancet 1990- 336: 1514.
Anyone ever hear of the use of this stuff?
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Yes, I heard the same thing you did. That Roxithromycin is the cure, the answer to neuro Lyme. Made unavailable in the 'land of the free' by our wonderful government... such as it is.
Just as Vitamin B-17, Laetrile was outlawed because it is the cure for cancer; Royal Rife's life work was suppressed... the list goes on.
Like Nazi Germany, they will continue to take one freedom after another away slowly so we don't notice...
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
Roxy is not very popular in Germany for Lyme treatment. Biaxin and Zithromax are the macrolides being used regularly here. Except when trying the so-called "Gasser-therapy"(Roxy + Trimethoprim), which helped some - me too. My guess is, that this combination helps some (unknown) coinfections. In my case it was most probably tularemia or rickettsia conorii.
Posts: 269 | From Germany | Registered: Jul 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
Some of us have used it. Not everyone can tolerate trimethoprim (ie Bactrim/Septra DS), so the Gasser Protocol isn't for everyone.
Roxithromycin is like Azithromycin or Biaxin, except that it has very good penetration into the brain. Macrolide antibiotics target Lyme's 'intracellular form', which is one of the methods by which Lyme escapes the immune system. You probably would need to target the cyst form (like with Flagyl or Tindamax) and the spirochete form (several different antibiotics cover that) at some point in therapy to really insure you get the most out of treatment. I say this because I have had a lot of lACK of success from macrolides alone (my old LLMD was a big fan of biaxin or azithromycin without targeting other forms of Lyme, and I didn't do well with this at all).
There are numerous places online that will sell you Roxithromycin to the US with a prescription, if you can convince your LLMD to give you one. I had a listing of those sites here at Lymenet for a while, do a search.
I am using the Gasser Protocol next because I don't know whether my residual symptoms (and occasional short relapse) are due to babesia or bartonella, and I think that this protocol would help either coinfection.
-------------------- Symptom Free!!! Thank you all!!!!
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I tried it but I got very uncomfortable kidney pain. Would skip a day and pain was gone. Restart the med and pain came back. Scared me so I backed off.
It sounds good with what was written above.... almost makes me want to try it again. But I don't know. Posts: 2238 | From East Coast | Registered: Jul 2010
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onbam
Unregistered
posted
Might be the best drug for Lyme, but it's illegal in the US. (maybe for this reason?)
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
It's not illegal to get it overseas and have it shipped here, and there's a pretty well-documented case for why the manufacturers never went through the process of submitting to the FDA. (ie it wasn't denied by the US regulatory agencies, the manufacturers just never bothered to try and market it here, and didn't put it through the approval process). This has something to do with the fact that the drug acts differently in humans than in the animals (hamsters? rats? I don't quite recall) that are used in the standard tests for FDA approval and the preliminary tests made it seem that it would not pass FDA regulations. I think they later figured out that there's different action in humans (I think this has to do with brain penetration actually, which is poor in rodents and good in humans), but it was off-patent by then and there was not a major financial incentive for anyone to go through the expensive FDA approval process.
-------------------- Symptom Free!!! Thank you all!!!!
posted
Here in Austrlia Rulide is readily available. Thanks for the info - i'm going to look into it- sounds hopeful
Posts: 17 | From Australia | Registered: Oct 2010
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posted
I took rulide years ago. I still have expired boxes. After years of being on several different abx rulide was my life saver. I was able to go off abx after three months on rulide. My LLMD wrote a prescription and I faxed it to a pharmacy in Australia. Unfortunately, I have been reinfected with RMSF but this time flagyl has helped me function again.
Posts: 17 | From woolwich twp nj | Registered: Sep 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I got it online without a prescription from India. I took it for a while, ran out and then did zithro which I did have a prescription for. I did not experience much difference.
It sounds good though because it is supposed to penetrate the blood brain barrier which the other macrolides don't do - so if you have neuro problems, like me, it makes sense to try it.
I should order it again but I don't know how it would work with mepron.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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