beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
5 months off abx, after 4 long years. The past few weeks I have been feeling like the old me- I have energy, I feel good! I even upped my hours at work.
The only downside is I'm hitting menopause, and my hair is thinning, but I try to keep it in perspective. 3 years ago I would have gone bald for a normal life!
I never thought I would be well...or even able to get off the sofa, my POTS was so bad.
Keep hope, follow your doctor's recommendations, know your body...and hang in there.
Thanks to those of you who e-mailed me during my real sick time and gave me hope...actually, many of those people aren't on the board anymore.
I promise to lurk in, and give encouragement to those still sick.
posted
Congratulations!!!!!!!!!!!!!! Can't wait for the day when I forget how this feels!
Posts: 707 | From Colorado | Registered: Jul 2010
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
That is super news.
I hope you continue on your road of wellness.
Keep us posted and encouraged
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
This is great- so happy for you!
Thanks for giving us hope and encouragement.
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
| IP: Logged |
posted
So Happy ! Gives us all hope Posts: 85 | From Long Branch NJ | Registered: Dec 2010
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
This just made my day! You just don't even know.
May I ask, what was your treatment protocol?
I have POTS, too
Thank you for sharing this great news.
Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Beths,
thanks so much for the good news after four dedicated years. Enjoy life, now. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
So great to hear news like this. Keep on going!! And enjoy your renewed life!
Posts: 2238 | From East Coast | Registered: Jul 2010
| IP: Logged |
posted
I only wish that I had the strength to last four years with this!! God bless you and much health always.....Whats POTS? New here sorry
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Thanks Beths. Incredible news. Do you have any words of wisdom for those of us still in the battle field? Was there anything specific that helped you turn a corner?
Have fun!
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I can always determine how my treatment is going based on my hair. lol
When I start worrying about my HAIR falling out (only symptom) - I MUST be doing better : )
When I say/think things like, "I don't care HOW I look... I just want to feel better." - Clearly I'm not doing well.
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Congratulations and always good health.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Thanks everyone.
Words of wisdom...keep plugging thru. Not every symptom is lyme...my shortness of breath initially was, but then it was from GERD from abx. Once I controlled the GERD, after I controlled the babs and bart, my shortness of breath went away. You have to sort of tease out what's what
My treatment protocol was every abx known to mankind!
I lost 25 lbs in the beginning, couldn't eat, had horrible dizziness, stomach pain, tremors, palpitations, tachycardia from the POTS. I just wanted it all to end. But my husband and children needed me, so I tried to focus on 1 thing I could do.
In the beginning I though..ok, I have teens, I can still listen and talk to them, because I couldn't do anything else. Several months later, ok, I can drive now-I can get them from school. Baby steps
Thanks for your well wishes....hugs to all
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
Thanks for coming back here and posting - those of us still struggling really need people like you.
So glad you have your life back!
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
| IP: Logged |
onbam
Unregistered
posted
That's amazing. You're probably the 5th or 6th to make a recovery this month, at least.
IP: Logged |
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Yeah!!! Keep on keepin' on!
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
| IP: Logged |
Remember to Smile
Unregistered
posted
Hooray, beths! Happy New Year! Thanks for posting.
Plz continue to lurk now and then, and keep us heading down the happy, healthy trail.
quote:Originally posted by canefan17: I can always determine how my treatment is going based on my hair.
I just realized this.
I'd always been blessed with pretty hair, but then it became very blah, dull, lifeless for several years before my big LD crash. Had nothing to do with shampoo type or daily habits.
Now in treatment with a very good LLMD. In the last two months, my hair looks vibrant again (when I shower! lol!).
My renewed "shiny coat" came along with excellent within-normal-limits routine blood work (NOT co-infection levels). For decades prior, I hadn't had a routine blood screening come thru without a couple factors testing out of whack.
IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
God bless you, Beths. Thanks for sharing.
Happy future for you and your family!
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
'Gives us folks still deep in the trenches much needed HOPE!!!
Congrats!!!!!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Frown]](frown.gif)
Printer-friendly view of this topic