posted
So I just tested positive for bart, and Ehrlichia. I was starting treatment anyway, but when i asked my doctor how long the treatment was she said usually 1 month.
I've had this for 3yrs and the treatment is 1 month. Somehow i'm not so sure.
I'm on rifampin, working my way up to 600mg, and doxy, 300mg. How long can people take these for, and do you think it will work?
Posts: 908 | From Albany | Registered: Nov 2008
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posted
To people with good immunity 2 months usually on meds mention above works.To other people 6 months and to some many years on treatment with diferent meds.So it depends on your body.
Posts: 482 | From Nebraska | Registered: Feb 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Those doses of medication are correct, so see how you feel during the next two to three weeks. If your doctor doesn't treat long-term and you still feel you need further treatment then you'll be able to go see a Lyme Literate physician who is willing to treat tick-born infections for a longer period.
It might be wise to ask the doctor what you should do if you still feel sick when the 1 month of therapy passes. If the doctor says "Then you'd be sick with something else" -- that's not an appropriate answer unless he/she is willing to investigate further, especially tick-born infections, since you obviously were bitten by a tick and it may have passed something else on to you, like Babesia, Relapsing Fever, Q-Fever, Rocky Mountain Spotted Fever, Tularemia (which should resolve with Doxycycline, but....who knows totally).
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
From previous posts it sounds like you consulted with an ILADS LLMD and have been diagnosed with lyme disease. It can take longer to get rid of co-infections, especially bart when you have lyme disease. If you are seeing a good LLMD then you are in good hands. If you aren't with an ILADS LLMD, I'd get with one ASAP.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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sutherngrl
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Member # 16270
posted
I agree with TerryK, get with an LLMD ASAP, if you are not currently with one.
I seriously doubt that 1 month treatment is long enough for someone that has been ill for 3 years. Its just not that likely; but of course I wish you to have that kind of luck. I hope you are one of the few that get well quickly.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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lymednva
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Ditto to what TerryK said!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Maybe Ehrlichia can clear that fast, but not bartonelliosis!
What test was run, where, for Bartonella spp? What species were you shown to have?
That's the craziest thing I've ever heard. Did I miss something here??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Asking about what happens if you are not well in a month is a good idea. If they say steroids... run. They did that to my son and he got 10X worse in one week. Doctors who try to treat TBD without TRUE knowledge do more harm than good.
Get on a waiting list for an LLMD now. Unfortunately you will have to travel as there are none in the Capital Region. I can suggest an ND a little north of you. PM me if you want suggestions. I am not far from you.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
I don't know what species I have. I'm seeing someone who calls herself a LLMD. She did say she doesn't know that much about co-infections.
I just did a month of Mepron and Biaxin, and when I stopped I felt a lot worse then I did when I started. Doesn't that mean that I probably didn't treat long enough.
I think I should do another 3 months minimun of mepron, but can your body handle all these meds at the same time?
Posts: 908 | From Albany | Registered: Nov 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Doesn't sound like she is ILADS trained or perhaps she is new? I'd ask if she is a member of ILADS and how long/how many has she treated.
You did NOT get enough mepron. Babesia lives in the red blood cell. According to Dr. S's babesia book, you need to treat for at least 4 months because that is the life of the red blood cell. That makes a lot of sense to me.
I was on mepron for a lot longer than 4 months and then on malarone for even longer and I see a seasoned ILADS doctor who mentors for new ILADS doctors so I don't think that is unusual treatment.
I'd consider getting someone more experienced unless you want to learn a lot about TBI's and she is open to listening and learning AND doing what is necessary to get you well.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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quote:Originally posted by jlcd1: She did say she doesn't know that much about co-infections.
Then she's NOT a good LLMD. No way.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
If she doesn't know that much about coinfections, start looking now for a doc with more knowledge.
It takes a lot of expertise and years of treating this disease to know how to get rid of it for someone. This doc is letting you know that she doesn't know enough to cure you.
Coinfections are part of lyme treatment, so she doesn't know much about lyme treatment.
Posts: 9931 | From Maryland | Registered: Dec 2007
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