posted
Just a little introduction, I'm Jane and I was diagnosed with Lyme the summer after I graduated from college. The doctors put me on Doxycycline for three weeks and said I would be fine after. Being so preoccupied with career plans and the future, I never really gave my Lyme a second thought. Within a few months I started experiencing daily fatigue, migraines, nausea, loss of appetite and most recently difficulty concentrating and maintaining my train of thought. Finally, I was retested and re-diagnosed October '10 but now also with the presence of a co infection. I was admittedly naive and now I'm trying really hard to learn everything and anything I can about this (our) disease. I don't have any family and I feel like my health situation is too much to put onto friends, as a result I've began to feel somewhat isolated and hopeless. I am grateful to have stumbled upon this community and hope to get to know all of you and share our stories. To a Happier New Year~
Posts: 2 | From Long Island, NY | Registered: Dec 2010
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posted
Well, you are definitely not alone. The people on here are great. I have learned so much that has helped and given me hope.
My piece of advice is to make sure you get a great LLMD and to treat fully including co-infections.
Not having family is tough but to be honest, even family members can't be as supportive as someone who has/had tick born infections.
I wish you a Happy New Year too!
Posts: 472 | From New Jersey | Registered: Dec 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Jane sounds like you have been doing some research.
Glad to hear it.
The reading here is invaluable to show you what you can do to help yourself as well as finding a great LLMD to help you get well.
I don't know what resources are available to you but you may find more support over in the Support section.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Welcome...and the above poster is right. You will find more support (most times) from people who are also suffering because we understand. It's hard to explain to people all these crazy symptoms and pain.
I have a friend who has it, and while she told me how much pain she was in, I didn't get it until I got DXed with Lyme. And someone once told me that "You don't "get" it until you GET it"
Very very true statment. If you posted in the seeking a doctor forum I will be answering all doctor posts first thing tomorrow morning so be expecting a PM, if you haven't posted over there....please do so and I will send you some information.
You are definitely not alone here and will learn alot.
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Hi there and welcome to Lymenet.
Dealing with Lyme is a difficult road but you will get stronger. I encourage you to reach out to friends and family and don't isolate yourself. I have found that many people do not understand. Still, I would not want to take this journey alone. You need people. You may find a support group in your area.
Hang in there and ask as many questions as you like.
Posts: 2232 | From USA | Registered: Aug 2009
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