lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
A condition called syndrome of inappropriate diuretic hormone? Doc thought it was med induced. Off Meds that would cause it and still have condition. Anyone?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I guess no one has this. My nephrologist doesn't know how I got this and not correcting itself. Would appreciate anyones help. Its low salt, but a specific condition, not just low salt. Salt low again, was stable for a few months with a diuretic and 4,000 mg salt. Hospitalized twice in the summer and fall with this, doesn't seem to be correcting with salt tablets and fluid restriction. Psych symptoms with low salt, between lyme, low salt and genetics (OCD/anxiety/depersonalization), I'm not meant to be what I was once. Can't take SSRIs and tricyclics cause that was the reason originally the salt went down so low was those meds. Can take klonapin, now salt dropping with no reason. Sorry if it sounds like self pity, but once again, alone. Sad and scared.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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You said you are taking "salt tablets'? Have you tried using "real salt" (the kind with the specks in it, or the salt that actually is moist and grey in color.
I am no expert by any means but thought your body would be able to utilize it better than the bleached processed kind.
Also thinking drinking too much water at one time flushes out minerals too fast for the body. Siping some mineral water with a little sea salt all day long, not guzzling it down fast.
hope you get better soon.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
You may also try sodium bicarbonate or baking soda, Bob's Mill product is the best to alkalize the body, not sure if Arm & Hammer is ok. Research it first! I often wonder if acids in the body change how we absorb certain nutrients.
By the way using sodium bicarb can effentually affect the blood pressure. You have to know when to stop.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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TerryK
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Member # 8552
posted
I've heard that a number of Chronic Fatigue patients have difficulty with ADH so you might look into that angle in order to get more ideas on the cause and effective treatments.
This is an old article and I don't know if there is new knowledge out there but you can probably get more info by doing a google search.
Chronic fatigue disorders: an inappropriate response to arginine vasopressin?
S.J. Peroutka
Received 12 February 1997; accepted 3 April 1997.
Abstract Chronic fatigue disorders are characterized by a subjectively defined group of symptoms such as chronic fatigue, mental confusion, exertional malaise, weight changes, and/or diffuse multi-joint pains.
Significant clinical overlap exists between chronic fatigue disorders and the syndrome of serum inappropriate anti-diuretic hormone (SIADH).
Both chronic fatigue disorders and SIADH are characterized by lethargy and mental confusion. Both disorders can be induced or exacerbated by viral illnesses, physical exertion, emotional stress and/or hypotension.
Both can be treated with salt loading and glucocorticoids. Therefore, altered water metabolism resulting from inappropriate release and/or response to arginine vasopressin (AVP) is proposed as a pathophysiological basis of certain chronic fatigue disorders. Moreover, these data suggest that salt loading and/or direct inhibition of AVP may be an effective therapeutic approach in individuals with chronic fatigue disorders.
Posts: 6286 | From Oregon | Registered: Jan 2006
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The connection to CFS and ADH is the biotoxin pathway. In certain genotypes; 4-5-53, 11/12-3-52B, 15-6-51, 14-5-52B, and 11-3-52B are found to be harder to treat because of detox polymorphisms found in these genotypes. Those with CFS are also showing same/similar genotypes.
Consequently, CFS sufferers are also finding methylation problems as well.
Laurie
-------------------- �Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it�s the only thing that ever has.� Posts: 149 | From Kansas/Missouri | Registered: Aug 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Other posters are correct. You will find this in much Chronic Fatigue research.
It also appears to be connected to the adrenal exhaustion component of Lyme/CFS. I healed my adrenals by treating my HPA axis with D-ribose and phosphatidylserine (both are supplements). I believe the problem was really in my brain (hypothalamus), and I could not regulate any adrenal hormones.
Once my HPA axis healed, my adrenals could heal, and a bunch of adrenal-related problems resolved.
You will find tons of info on the HPA axis and D-ribose and endfatigue.com
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