tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Just got my ingenix test done. My doctor called I am postive. At first they thought I just had bartonella. But it came back very postive for lyme. UGH i was wishing i just had bartonella har enough (. I go on Friday to find out my routine. They treat using Dr. B's protocol.
I am so nervous and sad (
Also they are retesting for Babesia.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
So sorry Tricia, but also thankful that you didn't fall through the cracks. It sounds like you are in good hands.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
You got it back that quickly?? "just got my Igenex test done"
The good news is that you know what you have and have a doctor who will treat it!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
It took about 2 weeks to get my results back..
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Tricia, I thought Bartonella was lyme.. I am beginning to feel I know so little. Good luck to you, so glad you have a doctor.
I do not have a LLMD and the doctor I am seeing told me yesterday I had, had lyme to long for any treatment. Even cut back on my xanax. That was keeping me from the mental ward.
So discouraged and so understand you being nervous and sad... prayers.
Posts: 1058 | From VA | Registered: Oct 2010
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quote:Originally posted by phyl6648: [QB] Tricia, I thought Bartonella was lyme.. I am beginning to feel I know so little. Good luck to you, so glad you have a doctor.
I do not have a LLMD and the doctor I am seeing told me yesterday I had, had lyme to long for any treatment. Even cut back on my xanax. That was keeping me from the mental ward.
So discouraged and so understand you being nervous and sad... prayers.
Bartonella is a coinfection of lyme.
phyl.. please dump this doctor. I had Lyme for 42 yrs before being diagnosed .. and after 4 yrs treatment I've been off abx and doing well for the past 6 1/2 yrs
You can do it too!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Maybe the ingenex was closer to 3. yes it was closer to 3 weeks and the results came back....I feel so defeated...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Congratulations. I guess.
Most of us have Borrelia, Bartonella and Babesia.
Fry Labs has a more accurate Babesia FISH test than Igenex.
You could also do an antibiotic challenge for Babs to see if you herx.
Many people make the mistake of assuming they don't have Babs if the test comes back negative. Not treating for it will keep you from progressing in your Lyme treatment.
posted
Phyl, yup, that's what I was told. I was told that because I was IgG positive, I had lyme before, but I don't have it anymore, and what I had was psychological.
I found a new doctor. Treated. Got better.
Please find a new doctor.
Tricia, congrats on the clear test results.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Hopefully I do not have babs too
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Although you thought you only had bart, you should be happy that you CONFIRMED lyme. Now you can get well!
Posts: 342 | From northern california | Registered: Dec 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Sorry to hear. But now you know who your enemies are so you can go after them. Good luck with your treatments.
Posts: 2238 | From East Coast | Registered: Jul 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Tricia,
Though it's overwhelming, now you know and that's the most important thing. You can now get with your md and come up with a plan to get better. You can do it. Many here have gotten better.
Phyl,
Don't be discouraged. There's a lot to learn. We all are learning, even those who have been here the longest. That's what lymenet is for.
So we're here for you. Many with tons of knowledge just waiting to help. Those who advised to get a new doctor, an llmd, were right.
Check seeking a doctor and put the wheels in motion to find a competent practitioner. You will feel much more optimistic with a knowledgable md in your corner.
Take care.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks to each of you for your help. I am searching for a doctor but so far no luck.. I can't pay out of pocket or travel far. I feel hopless. Plus all the ABX to treat lyme I am allergic to.
posted
^ Phyl,. how do you know you are "allergic" to the antibiotics?
What are your symptoms when you take the meds? Dont mistake a herx for an allergic reaction. Almost everyone feels REALLY crappy when they first start treatment
Maybe you should have a drug allergy test done to see if you truely are allergic.
Posts: 995 | From somewhere out there | Registered: Oct 2010
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(. I go on Friday to find out my routine. They treat using Dr. B's protocol.
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